Posted By Posting
Aug 03, 2012
3 week old baby admitted in hospital... Please read and reply
So here is the update... My 3 week old is admitted in children hospital as he is refusing to feed... He screams and cries through the feed... Has been loosing weight everyday. He had a barium swallow study done today and he was massively refluxing. At one point the food was staying in the esophagus and not going in stomach.. The radiologist thinks its because the esophagus is irritated He was put on 15 mg ranitidine twice a day three days ago but I still see no difference. I asked to increase tge dose but the gi doc is mot agreeing saying he usbin high dose. I asked thd doctors to put him on a different med- omeprazole or something else. The doctors said these mess are not for new borns.. I'm so fed up and worried that he will soon be tube fed as whatever Hez taking I'm pushing it... He is hardly taking an ounce every two hours n that only after forcing him ...please give me suggestions. Is it common to have reflux this severe and still not vomit? Or can it still start? Anyone whose baby is on a different Ned that helped.... Please write back as I'm sitting here at the hospital helpless... It's so hard seeing him in so much pain... He cries with hunger n pain and yet can't eat.
Aug 10, 2012
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I am so sorry that none of us has gotten back to you before now....I was out of town when you posted. How are things now? It is not uncommon for severe reflux to lack actual vomit -- silent reflux is the common term for it, and it can actually be much more problematic than reflux that makes it's way out, as it can burn the esophagus on the way up and then on the way back down as well, causing additional pain and increased potential for damage. Spitting up may or may not ever occur -- for some it never does, for some it occurs for awhile then goes away, and still others have it at random periods throughout. You are right to advocate for a change in medications -- although many reflux meds are not "approved" for use in newborns, their use and success is well documented and if he is not responding to Zantac (ranitidine), then it would be totally appropriate to use another, stronger medication. I will hold off on any additional advice until I hear how things are currently going.

Watching your little one suffer is like no other pain in the world. We have all been there, and we share that pain with you. I recall being unable to really hear people saying things would get better, because it didn't really matter I was hurting so much for my son's pain in the moment, but it is true -- so many of us have been here with children who have been through indescribable challenges and pain, and while it never diminishes what you are going through right now, it truly will get better than it is, your baby really will experience life without that kind of pain. The impact on both of you is real, and lasting, but it will, I promise, change. You will be in my thoughts....please let us know how things are going.

Check with your
doctor first!