Posted By Posting
May 22, 2012
awaynot
just discharged from hospital
We just came home from the hospital where Sophie was diagnosed with Reflux. We are on pepcid and prilosec now but Sophie is still vomiting a few times/day. We ended up in the hospital because of dehydration and she's been refusing to eat as much and screaming and crying at feedings for a month or so. The doctor prescribed Zantac and on the 2nd day she started vomiting every bottle and didn't have wet diapers. We were in the hospital for 5 days, she's doing better, not vomiting every bottle, but still some and still having the fussiness and crying during feedings. I dont' know how much more I can take and feel like I'm not doing enough to fix it. How long does it take these meds to really work??
May 23, 2012
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I'm so sorry your little one is having such a rough time. Is she still on Zantac? If not, what was she switched to?
May 25, 2012
awaynot
they switched her to Pepcid and Prilosec and a probiotic to help with digestion. The fussiness and crying and improved, however she is still taking smaller amounts of formula more often, which is OK, but I"m so tired from waking up every 2-3 hours at night and trying to work. I just want things back to normal. lorenzomama, how was your little one diagnosed with sensory processing disorder and what were you seeing? I suspect some sensory issues with Sophie
May 28, 2012
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I'm glad for the medication change -- Zantac is not very effective for most little ones with significant reflux and side effects of it.

I didn't really clue into Sensory Processing Disorder until my son was 3 years old and a sleep study (he has sleep apnea) which showed no REM sleep in over 6 hours -- which we were told virtually unheard of outside patients with pre-existing neurological disorders. I had been suspecting a neurological disorder since he had a history of random aspiration events and EXTREME sleep disruption, well beyond what was explained by his apnea. A friend gave me the term SPD, and when I started researching it, I couldn't believe how obvious it was that he had. He was diagnosed about 8 months later, when we finally got in to see an Occupational Therapist who specialized in SPD. Here is a link to a website which has a helpful symptoms checklist for infants and toddlers:

www.sensory-processing-disorder.com/SPD-symptom-checklist-for-infants-and-toddlers.html

If for some reason that doesn't work, go to www.sensory-processing-disorder.com, then click on "Helping Baby Sleep" from the menu on the left, then scroll down until you find "The Infant/Toddler SPD Checklist." Feel free to email me at cristina@mothersupportnetwork.com if you want/need to talk more about it or get additional resources.

Check with your
doctor first!