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Dec 30, 2011
sebastian
Sebastian's parents. Baby stopped eating at 4 months.
Baby on Prevacid. What food should I start with?
Our son is on Prevacid. He is on breast milk and I am egg, soy, dairy, nut, seafood, gluten and corn free for the last 5 months. He eats sweet potato carrots and apples and rice. I need to slowly start giving him other foods but I am extremely scared. He stopped eating when he was 4 months due to the acid redlux pain. We guess he has EEG. He was even allergic to Elecare. I am scared we woud end up at the hospital again if I give him the wrong food. Allergy tests are not accurate until 2 based on what we heard. I want to see of other moms went through this. How can I start giving him other foods? Why should I start with? He was a silent refluxer until he stopped eating. Should I start with glutens? And finally, how many years are kids usually on Prevacid? I really appreciate any guidance.
Dec 31, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
My DD had an extremely limited diet until she had surgery. I did an elimination diet similiar to yours for a while too. I was very stressed out trying foods. How old is your child? Not sure what you mean by EEG. For a really long time all my daughter tolerated was butternut squash (I did homemade foods so they wouldn't have any addititves that would bother her) and pears. I also did oatmeal cereal. I can't remember what brand I used right now but look for one that doesn't have issues with cross contaimination (some have hidden soy too). What about meats? what about the organic puff cereal. I was super stressed about her being on a limited diet but really the first year bm/formula is the most important.

It varies how long kids are on prevacid (or any acid blocker). Many outgrow reflux around a year. My 4.5 year old is still on prevacid and I have a nearly 14 month old on zegerid. So clearly mine aren't the lucky ones that come off early. Every kid is different. Good luck with trying new foods.

Dec 31, 2011
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
How did you all determine he was allergic to Elecare? Were you using the vanilla kind or another flavor? that could be the culprit right there.

All the kids I know that have EE disorders are on Elecare. As far as I know, none of them react to it (I could be wrong, don't quote me LOL). Some of them have issues with the flavors but not the unflavored kind.

Have you ever done an EDG? That will tell you for sure if you are dealing with an EE disorder or not. But, if you have already been limiting what he is taking in, then the results can come back a false negative.

If things are going great, I would be very reluctant to mess with it until you have some further testing done. You don't want to rock the boat at all.

As far as Prevacid, Jedd is 5 and he takes 15mg once a day. He has been on one PPI or another his entire life minus maybe 6 months or so when we tried an H2 blocker and failed. For us, the benefits out weigh any risks of long term use being that Jedd was 100% tube fed in the past.

Dec 31, 2011
sebastian
Sebastian's parents. Baby stopped eating at 4 months.
Thank you both so much for responding. I really appreciate it. Sebastian is now 9 months. Since we have been careful with what he eats an endoscopy would not helpt at this point (basically in case he has inflimation in the esophagitis)http://www.ncbi.nlm.nih.gov/pubmed/12645786). We just did a blood test looking for IGEs and they were low but that's because he is not exposed to anything. We did a patch test on his back this week, we are waiting for the results but wheat, soy and milk looked different than the others. It's still very hard to feed him, giving him solids takes about an hour each time. We have to play and entretain him so he accpets to eat. I am always scared that he is in pain, but now I am wondering if he is getting tired of his food. Which is why I would like to be able to start giving him other type of foods. I am also wonderign what I will be able to feed him when he becomes one. He was on the regular Elecare on the tube and on the vanilla flavor when we tried to bottle feed him. He was on the tube at nights, no matter what flow we used (10 to 60ml) he would get up screaming after 2 hours. Non-stop cry, he used to scream the same way when they had to put the tubes in each time. So we knew he was in pain. The vanilla one would not make him scream, but he would cry and then stop taking whatever bottle we tried feeding him with. I have not tried chicken and beef yet, I am scared of allergy reactions. But I guess I need to start somewhere. One of our friend's son tested negative for 3 years on Celiac disease (3 different endoscopies). The fourth time it came positive. They were able to take him off Prevacid once he was gluten free for 3 months. I have not tried oatmeal yet, I was scared because I had heard it gets processed with wheat and therefore may be contaminated. As you can read .... I am scared of everything. I think I cried so much during the months he could not eat that just the idea of him not eating terrifies me. Thank you again both so much for replying. I really appreciate it.
Dec 31, 2011
sebastian
Sebastian's parents. Baby stopped eating at 4 months.
So ... we are checking his back bc of the patch test. So far it seems he is alleric to soy, dairy, eggs, chicken, bananas, wheat and corn. I really hope that is it and that it goes away with time. I guess Rice milk later will be my only option after he is one. We still have two more days left.
Jan 01, 2012
kavyamom
My DD was on Nutramigen, oatmeal and pears for a very long time. Now, even at 3 yrs old, she can only have Neocate and 6 single ingredient foods (all made at home). Except for milk she tested negative on allergy tests (blood and scratch) for everything else but in reality she is allergic to 99% of foods. BTW Avocado was a safe food for us with no reactions but each child is different. It was all trial and error for us. Did your doc tell you how accurate the patch test is? When you say your child is allergic, how does she react?
Jan 02, 2012
sebastian
Sebastian's parents. Baby stopped eating at 4 months.
I know it's more accurate than the scratch testing bc his scratch test came all negative but now with the back patch we see that he has allergies. He told us until two years of age none of the tests are really accurate. Unfortinately Sebastian has no skin reaction, we only find that things don't work on him after he has been given the food for 4 to 5 days and by then he must have inflimation in the esophagitis because it because really hard to breastfeed him. He does not want to lay down. I have to breastfeed him while he is seating. Then it takes for ever to clear again. We tried avacados, he seemed okay but does not want to eat much of it. Maybe one teaspoon. I don't know why. Did you guys do a patch test? I read one mom created a menu for the week based on here child's reaction to the patch test. For example she would only give him some foods once a week and not with items that he was sensetive too. For example, yesterday tomatoes looked really bad on our son's back. But it was okay the first day. Are your DD's allergies getting better with time? Usually they say 3 year and 5 year are the magic numbers. Thank you for your help.
Jan 09, 2012
kavyamom
We haven't done patch testing...current allergist doesn't do this. I am trying to find one in the area who does. Do you do some patch testing at home itself (does the allergist provide you the patches or whatever is needed?). Her allergies haven't improved much at all. In fact she is having a lot of chemical sensitivities now that she didn't have before. BTW the KFA (Kids with food allergies) site has a lot of info.
Jan 09, 2012
sebastian
Sebastian's parents. Baby stopped eating at 4 months.
The first allergist we went did not either. Hopefully you will find somebody that does it in your area. I don't think you can do the patch testing yourself. I think it must be done under doc supervision in case of severe reactions. I am trying very hard to keep him off all dyes, parabens and sodium Benzoate. It has not been easy. I had to give him two times Pedialyte and both times he had bad reactions (he became jittery). I think it was the dyes in it, so I started to make my own at home. One time I also did not pay attention to the dyes in his Pediacare medicine (he had fever after vaccines), that did not go well either. Now I only give him the dye free Advil because it's the only one without parabens. I found this link which is helpful: http://www.traditionaloven.com/articles/122/dangerous-food-additives-to-avoid I don't know if he is allergic to dyes or sensetive. I am going to the allergist on Wed. I will ask to see if they can be tested for dyes. I will update the forum and let you know what I find. This weekend I met a mom whos daughter is allergic to peanuts (9 years old). She said the new allergies for kids under than 4-5 are wheat and soy. I was actually surprised. I had heard sesame and corn were the top ones these days. Thank you for the website. I just browsed it and it has good information. Ah, one more thing. Our son takes prevacid and this weekend I jsut found out that prevacid has soy lecithin.FDA does not require for drug companies to write the inactive ingredients. So in our case we have been giving him for months what we are trying to hard to avoid other places. But we are too scared to switch him to something else. It seems most medicines have soy in them...
Jan 10, 2012
sebastian
Sebastian's parents. Baby stopped eating at 4 months.
I forgot to mention. The patch was added on his back at the doc office. It has a bunch of small circles and under each circle is a food type (soy, milk, chicken, corn, etc). They marked his back to know where each food was. We left it for two days and then started to take pictures every 24 hr for 4 days. He also tested him for IGE level for gluten. I have hard they should not test for igG4 or if they do, does not provide much information. I don't know enough about IGEs. I am trying to learn about them at this point.
Jan 26, 2012
seb's mom
Just wanted to write an update. It might help somebody one day. http://apfed.org/drupal/drupal/sites/default/files/foodallergy.pdf http://apfed.org/drupal/drupal/sites/default/files/Fact_Sheet_basic_2011.pdf http://www.organicconsumers.org/articles/article_5296.cfm The doctor told us to go back in 3 months and do another patch test. I did ask about testings for dyes and chemicals. The doctor said there is not clear method at this point to test for dyes. For example he had patients that are 100% sure they are allergic to yellow #5 but yet he was not able to test them. But he said that does not mean they don't have the allergy, it just means we don't have methods to test yet.
Check with your
doctor first!