Posted By Posting
Dec 14, 2011
kavyamom
DCD - Great to hear that you are off Neocate now!
Read one of your recent posts...it is great that Kylie is able to tolerate whole milk now! So, did you gradually go from Neocate to whole milk or did you first do something like yogurt before the milk? Kavya is still a long way from normal (now without BB, prevacid on its own has just not been that effective and she is allergic to zegerid so that's not an option either.)
Dec 15, 2011
dcd
Hi Sandhya -- thank you! Yes I am cautiously ecstatic, if that is possible. Kylie seems to be doing ok but I am having a hard time trusting that we have actually made it to this point...

She started eating cheese and other dairy products like sour cream a few months before we made the jump to whole milk. (She never would eat yogurt, still won't.) She loves cheese. Then we went cold turkey when we switched her over to whole milk. Her intake plumeted for a week or two. I think she missed her Neocate. But it's back up - not up to what it was when she was drinking formula, but she eats enough other foods and dairy products that she is getting the nutrition.

I'm sorry to hear that Kavya is still struggling. It's such a tragedy what happened with Marci-Kids, seriously. I can't believe that even all the reference info they had on their site no longer exists on the internet. I met a mom over the weekend who is new to reflux and food allergies and I was so upset that I didn't have the Marci-Kids info to share with her.

We are trying to wean Kylie off Prevacid, but I am terrified we won't get there before I run out of Buffer Babies. There is no way we'll be able to administer the Prevacid capsules correctly with both me and my husband working, and her in daycare. No way. I think I have like 5 packets left. (I've been afraid to look.)

Dec 15, 2011
dcd
p.s. What is Kavya allergic to in the Zegerid?
Dec 16, 2011
kavyamom
Not sure exactly what in the Zegerid she is allergic to. Maybe the flavor or xantham gum or maybe even the prilosec. We could try giving prilosec by itself to try to isolate but we are already doing prevacid on its own and don't want to switch at this point. We could also try the Zegerid capsules which won't have the flavor and xantham gum I believe but somehow I don't like the idea of mixing the capsule with Mylanta on a daily basis (that is how Dr. P recommends administering it).
Check with your
doctor first!