Posted By Posting
Dec 03, 2011
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Reflux got worse once starting Prilosec???
I am new to this forum so thank you in advance for reading my story and helping any way you can. My son was diagnosed with reflux at 1 month. He was started on Zantac and his symptons did improve. He has never been a good eater. He never nursed well or taken a bottle well. I have went through numerous bouts of him not eating well. They would normally last a couple of weeks and then he would start to eat again. He has never taken more than 4 oz with most bottles and has only averaged about 22 oz a day since he was 3 months old. He is now 6 1/2 months. About 4 weeks ago he started fussing all night long. He would cry about every hour. Then he started eating only 2 oz from his bottles during the day. Then in the last 2 weeks his sleep patterns have improved, but he started flat out refusing to drink from a bottle during the day. He would only eat at night while asleep. The only way we can get him to eat during the day is to mix his formula with cereal or baby food. I tried numerous bottles, nipples, and I even switched to Soy. Last week his Ped called in Prilosec to see if this would help his eating. The first day we stopped the Zantac and started the Prilosec he started spitting up again and had the hiccups after every feeding. He woke up twice at night screaming in pain and would spit up as soon as I picked him up. After that one rough day he was doing ok, but still not eating. Today is day 7 on the medicine. Well by some miracle this morning I decided to try one last bottle brand and he ate 4 oz without a fight!!! He ate well all day, actually ate 24 oz in one day all from the one new bottle type. But his reflux was awful! He would wet burp and I could feel the stuff coming up in his stomach. He had the hiccups at least 5 times. He coughed and choked all day. He struggled to nap and when he was really fussy he was wheezing! I have never have him do that and it scares me. My baby has been a very happy baby through all of this even though he has not ate well in 4 weeks, but today he was not happy. So my question is... Has anybody else experienced this after transitioning to Prilosec? Is it possible that I need to be patient and give it time to work. BTW I asked my Ped if I could continue with the Zantac while we waited for the Prilosec to work and she said they could not be taken together. Has anybody used Mylanta to help with symptons between Prilosec dosing?
Dec 04, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I can't speak specifically to Prilosec, but I know that none of the H2 blockers or PPI's are designed to eliminate reflux. The purpose of an H2 blocker, like Zantac, is to reduce acid, and the PPI's are designed to eliminate it, but it is usually NOT acidity levels that are CAUSING the refluxing -- just the burning sensation and potential damage that can otherwise go hand in hand with it. When my son first started on meds for reflux, I noticed a worsening of actual reflux, and the best explanation I could come up with for it was that, in the absence of pain, he was able to eat more than usual, and so he had more to reflux and may also have had more stress on his stomach and LES valve as a result of larger feeds.

As far as the wheezing goes -- report that to the pedi right away. Aspiration and respiratory issues are a real concern with refluxers, and wheezing can be suggestive of them. Are you working with a general pediatrician, or a specialist? How is his physical and cognitive development?

Dec 04, 2011
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I have not seen a specialist as of yet just our regular Ped. I figured things were worse yesterday because he actually ate, but I never had these issues on the Zantac. So I guess I have to work with my Ped to find a way to keep him eating and reduce the reflux. As far as his development. He has rolled over maybe 4 times total both stomach to back and back to stomach. He is just not into it. He really hates to be on his back or stomach so I am thinking that is part of it. He is sitting independently pretty well. Not enough that I leave him that way, but he is getting close. He is not babbling yet, but squels and sings etc... I do not think he is too far behind. I worry more that he will not crawl, but I guess some babies do not. He is just very small. He is the 3rd oldest in daycare, but is by far the smallest. Thanks for your input!!
Dec 06, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
At this point, in my opinion, it would be wise to start seeking the help of a pediatric GI specialist. When it comes to feeding aversions and developmental and or growth delays, it is just not worth messing around as far as I'm concerned. A lot of general pediatricians approach reflux as something that babies just outgrow naturally -- and for many that's exactly what happens -- but for some that isn't the case, and if reflux is interfering with growth and development, then it is important to be working with someone who is up on the latest diagnostic and treatment options. Of course, it all comes down to the individual physician -- some general pedis really know their stuff and some GI's are not very helpful, but in general, you are likely to get the best, most current input from a GI specialist.

As for crawling -- it's not uncommon for babies who can't tolerate tummy time to skip crawling. My son, for example, started off being mobile by doing the butt scoot, and then went straight to walking. He didn't voluntarily lie on his stomach or crawl until he was about two years old.

Dec 06, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
I would definitely seek out a pediatric GI doctor for another opinion. My experience switching meds was it was a difficult time. I kept my DD on the zantac once a day til the zegerid took effect. The first two weeks were the hardest. Both meds can be given together but must be spaced out. You can use cherry mylanta supreme as needed. I had a fussy eater. My DD would flat out refuse to BF or take a bottle. I had to bounce her to sleep on a yoga ball and then trick her into eating. It was horrible. She ended up having a malrotated stomach on top of dealing with the reflux. We saw an Occupational therapist to help with the feedings. I hope when the prilosec fully kicks in your child starts to eat better. I would definitely follow up about the choking and wheezing with your pedi.
Dec 06, 2011
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Thanks everyone for the info. He is still fighting his daytime bottles pretty hard, but I am managing to get about 22 oz in him a day for the past 4 days so I am pleased and feeling better. But his actual Reflux symptons continue to get worse. He has now started projectile vomiting. 3 times in the last 48 hours. I see the Ped again today and I am hoping she will agree to refer me to a specialist. I guess I am trying to figure out if the Prilosec is doing anything or it is just my adapting his schedule to feed him while asleep that is helping. I also have an OT coming to observe him in a couple of weeks. I am hoping they can help us with our feedings also.
Dec 30, 2011
sebastian
Sebastian's parents. Baby stopped eating at 4 months.
Just wanted to let you know Prilosec did not work on our son. Prevacid was much better. One of the GI spec we saw said that Zantac and Prevacid (PPI) work against each other.
Check with your
doctor first!