Posted By Posting
Nov 22, 2011
cbwm
Preemie with GERD, projectile vomiting and desperate for answers
Hi all, I'm new to this forum, but I am feeling desperate and seeking help from experienced GERD parents: I have b/g twins born at 31 weeks on June 30, 2011. My son, Daniel, has had reflux for months now At first, we thought it was colic, but he cried constantly in pain and when we switched from Zantac to Prevacid we realized that the poor little guy had been in agony from silent reflux. Daniel weighs 13 lbs and he is on the 15mg dose of Prevacid, split 2x per day. That helped, but didn't solve things, and the doctor told us to thicken his feeds. We use 1 tsp of rice per ounce of formula. Once we got that figured out, he seemed to be doing really well... And then he started projectile vomiting -- through his nose and mouth -- 4-5 times per day. For the last 2-3 weeks he's been doing this, and he's not gaining weight anymore. The vomiting doesn't always happen right after a feed. It's more likely to happen a few hours after a feed, or before the next feed. He heaves and convulses and then vomits. It's just so awful. We had an upper GI barium study and x-ray of his stomach yesterday. All clear. No pyloric stenosis, no malformation of the small intestine, and his stomach does clear out food at a decent rate. But in two weeks he only gained 2 oz. This can't go on. He only eats about 20 oz a day, so that's a problem, too, as I know he should be eating a lot more than that. I am going into the pediatrician again tomorrow for a weight check there (they didn't seem to trust the report from the hospital scale and wanted to see it on their own scales). Is there anything else I should ask about? We tried switching formulas (soy, Alimentum etc.) but haven't tried it recently since the addition of the rice and the full dose of Prevacid. So I'm willing to try that again. Should we thicken with oatmeal or barley? Should we make his formula more caloric somehow? I am a really pro-active Mom, we've got good insurance and I think we're getting excellent medical care, but I just refuse to believe that we have to "wait it out" for another 6+ months until he grows out of this!! Thanks in advance for any suggestions!!!
Nov 25, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
I'm sorry you are going through all this. I personally didn't thicken feeds and dont' know how much it helps. My kids had a hard time digesting the cereals at first when I did start solids. I would be open to switching formulas if I were you.. Maybe try a hypoallergenic formula. My kids were BF but I had to go off dairy and soy for both of them. Is he on solid foods yet? Does he tolerate those? Are you giving the meds on an empty stomach? I hope you get some help at the pedi visit.
Nov 26, 2011
cbwm
Thanks for your support, mangogal. Yes, we give the Prevacid 30 minutes before the feeding, and we just stopped thickening his feedings yesterday. It seems to have helped a bit. He's not eating solids yet at all, and I do wonder about an allergy. We have Neocate arriving on Tuesday and we will try that for 2 weeks. If he still continues to vomit on that, I think we can go back to the Gentlease formula and assume it's "just" reflux and not an allergy... but if all the vomiting stops on the Neocate, then we will know that we've got to look further into allergies as well as the reflux. Thanks for your reply--and for any other suggestions you might have!
Nov 28, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
It sounds like a good plan to try the neocate for a few weeks and then go from there if you think it is an allergy thing too. I would probably skip any solid introductions (cereals too) until you get the formula figured out. My second child didn't really start to tolerate or eat much solids til 9 months.
Check with your
doctor first!