Posted By Posting
Nov 21, 2011
skohanek
Reflux, Virus, Nexium, and Zantac
This is a repost from the older kids' forum: We have an almost 4 year old who has been on medication since he was 1 for reflux. He was on Prevacid from age 1 to age 3 1/2 and never had any problems (other than lots of spit up). In May 2011, something just erupted (probably related to seasonal allergies), and we have been on the reflux roller coaster ever since. He is 90th+ percentile for height and weight, but about every other month, he has an episode of tummy pain, not eating, not sleeping, and then turning from sunny disposition to a kid I almost don't recognize. He's getting over a virus now, and the reflux is back in full gear. He currently takes 20 mg Nexium twice a day (40 mg total) and 1 1/2 teaspoons of Zantac at bedtime. In September, he had an upper endoscopy and an impedance probe. His diagnosis was mild to moderate reflux. My questions are medication and expectations related: 1. Does anyone else have kids who take this much medication and still experience reflux problems? 2. Is it generally expected to deal with reflux for 1-2 weeks after a virus? His fever did get up to 104. Does my story sound at all familiar to anyone? I'm so frustrated by the amount of medication and that we live our lives by the clock. It's also so hard to watch him not eat. Thanks! I should add that he was tested for food allergies and celiac (4 vials of blood), and everything was negative. Our pediatrician, however, believes we should stop dairy to see if that helps. She really believes in the dairy-reflux connection, even without an identifiable allergy. Since dairy is his only source of protein (other than the occasional chicken nugget), I hate to stop it. Thoughts?
Nov 22, 2011
bellymom
Isabella 10/04 Severe reflux, nissen fundo, g-tube, mito disease, epilepsy, DGE, asthma, aspiration, allergic to milk and soy
hi! Sorry to hear that reflux has reared its ugly head. From past experience zantac doesn't work. was curious did they stop meds before the test? If not and he is still refluxing then meds arent working to their full potential. there are tons of kids that have milk/soy protein intolerance without and id on it by blood or skin test. I know for a fact viruses and sickness indeed make reflux worse especially a sickness with increased mucous. throwing a lot out there but we do rice almond and coconut milk for substitute of dairy along with neocate jr. Have you tried different types of beans for protein?
Nov 25, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
Hi...I have a 4.5 year old son that is on medication for reflux and has a dairy intolerance. We have trialed him off meds every year since he was a baby. He lasted off 3 months this summer but symptoms began again. He is going to have an endoscopy and ph probe in a few months to confirm if this is reflux we are dealing with. I totally understand about not recognizing your child and their behavior when reflux is at its worst.

I would suggest that you really try to cut out the dairy. My DS is intolerant of dairy. He had allergy testing done and wasn't "allergic". But he has strong GI symptoms, vomiting as a baby with dairy, screaming fits, not sleeping, abdominal pain with dairy. He also can't have soy either. I saw the biggest change in how he felt when we went off dairy and soy.

My DS does through periods of really poor eating but overall has been about 75 percent for height/weight. He isn't on a high dose of meds at this time. Max he has been on in the past was 30 mg of prevacid. He's on 15 mg now and I give mylanta or tums as needed. Waiting on endoscopy to see where to go from here. When DS is sick, I do see an increase in reflux symptoms. I have reflux after having babies and got sick recently and boy did I have horrible reflux pain. So I know it happens. good luck to you.

Dec 06, 2011
skohanek
Updates...
Thanks for the insights... He continued the 40 mg Nexium for the probe in order to test the efficacy of the medication. It was barely controlling the reflux which is why the dr. added the Zantac at night. We did great for about 5 weeks, until the virus. He got sick the week before Thanksgiving and still isn't the same. He's an incredibly picky eater. He eats pretzels, Quaker Oat Squares, Dannon Activia Vanilla yogurt, sharp cheddar cheese, red grapes, gala apples, all natural applesauce, cantaloupe, an occasional chicken nugget, kraft mac and cheese, pancakes, and an occasional chocolate chip cookie. He stopped drinking milk and instead drinks only juice/water. He's never been a great eater, but he's always been better than this. We go back for a follow-up with GI specialist this week, but of course, now he's got sinus congestion and a touch of diarrhea. So, of course, he's eating even worse. I'm afraid he has a sinus infection from the reflux, but with such minor symptoms, I haven't taken him to the pediatrician this week. He doesn't eat much dairy anymore which means no protein. I've even tried to just get him to eat toast or mashed potatoes, but he won't even try them. He won't drink almond milk, but I'm willing to try it again. He won't drink soy milk either. I hate to take away the little cheese that he does eat since it's protein and calcium. I'm so tired. And frustrated. It scares me that he rarely eats, and even when he does, it's not much. Any further insights are always appreciated.
Check with your
doctor first!