Posted By Posting
Nov 08, 2011
sloanestar
Ready to stop meds? Add back soy/dairy?
So grateful for this site. It really helped me in the beginning of our reflux adventure. This is my first post. My 15 week old takes 15 mg solutab of Prevacid dissolved in breast milk once a day. I have stopped eating soy and most dairy, though I still have dairy cooked in things. So I guess I've done a lackluster and very imperfect elimination diet--at least for dairy and soy. Baby girl started on Axid, which helped initially, but then we moved to Prevacid and saw a world of difference. The pediatrician recommended trying to cut back Prevacid mid October, but the reflux seemed to flare, so I chickened out and instead cut the soy and dairy. Roughly a month later and we're doing great. I'm ready to make a change and see if she's outgrown the reflux, but I don't know if I should start eating dairy and soy again or start cutting the Prevacid. My pediatrician hasn't been as knowledgable as I would like--he said I didn't need to worry about when she'd eaten in relation to giving the Prevacid (though I wait an hour after a feeding and try not to feed for 30 min after--though I've gotten more lax about this, and haven't seen any problems from it. In the beginning I could tell that meds on an empty stomach made a huge difference in efficacy.), and he was zero help when I asked about giving up soy and dairy. The nurse gave me a list of things that can give babies tummy trouble--soy wasn't on it, but fish and gassy stuff was. Anyway, I'd love to hear what you'd recommend from your experience. I don't know if she's better because of age, diet or what. Also, I read in the forums that Prevacid solutabs have milk in them. Has my lame dairy elimination been just silly? I actually hope so. I miss cheese. Thanks for your help!
Nov 08, 2011
dcd
Is your daughter 15 weeks old or 15 months old?
Nov 08, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
My opinion....... At 15 weeks..let the sleeping dog lie. Babies dont out grow reflux or MSPI at 15 weeks old. Likely she is happy because you found the right combo for her. If the elimination diet is getting really hard for you, then you can try adding one thing back.. one thing only.. observe and document for 1 week. If all is well, add one more thing for a week, observce and document. If not, then go back to previous state. Slow and steady wins the race mamma. If you put back all foods and all is great then you are likely dealing with just reflux, in which case I would stick with the meds for quite a bit longer. If putting foods back in your diet goes poorly then you know for sure that you are dealing with food sensitivities. Get back to a strict diet for a month, and then try to back off the meds. If it goes well, then it is stricktly MSPI, if it goes bad then you know you are dealing with both in which case you need to stay the course that you are on till the one year mark before you try changes again. Slow and steady wins the race. Does all that make sense?
Nov 08, 2011
dcd
I agree with Karen...if she's 15 weeks not 15 months I would definitely NOT start trying to wean or change anything. When that time comes, you'll feel more sure about it.

When dairy is baked into things, it breaks down the proteins, which is what can cause the tummy troubles. That may be why you have seen improvement even though you haven't done the "perfect" elimination diet. I would stick to what you're doing. If you really miss dairy, do like Karen said and add one thing back in at a time, very slowly, and document.

I would not try to wean her from the Prevacid yet. She probably needs more time. 15 weeks is still young for a reflux baby.

Nov 08, 2011
sloanestar
Thank you! She is 15 weeks. Why is my doc pushing to get off the meds so early? Why did he tell me to not worry about a full tummy when giving the Prevacid? Kind of frustarating. I mean, I don't love that she's on medication, but if she needs it, I'm all for it. I felt so bad when her little voice was all hoarse. I am missing the protein I got from both dairy and soy. I've been getting dizzy a lot and I think my protein and carbs are out of balance. I thought maybe I wasn't eating enough, just from being distracted and busy, but it might be that I just need more protein, which is hard throughout the day. Can you point me in the direction for more info about MSPI?I'm guessing that's milk soy protein intolerance? I'll google that, but if you have a link at the ready, I'd appreciate it. Again, thanks for your replies.
Nov 08, 2011
dcd
The issues you've encountered with your baby's doctor are, unfortunately, really common. Most regular pediatricians don't know much about reflux. That's why a lot of us get referrals to see pediatric GI doctors, which are the experts in reflux.

Getting the administration of the PPI correct - on an empty stomach, at least one hr. before a meal - is crucial. I'll come back when I have more time and post some info explaining exactly why this is so important. It helps to understand HOW PPIs work.

This is a good site for info on MSPI: http://www.refluxrebels.com/Acid_reflux/Acid_reflux_medication.html#

I would also go to Neocate.com and read everything under the "Parents" tab. And there's tons of info online about MSPI and how to do an elimination diet. Like you said, you can Google it. This forum and the infants forum at www.kidswithfoodallergies.com are also great resources - just search the archives.

Check with your
doctor first!