|Nov 08, 2011|
|I am not a doctor, but I am at this point a fairly experienced reflux/MSPI mom. And my opinion, wholeheartedly, is that your daughter is NOT testing you. 9 month old babies do not "test" their parents in this way. She's not faking it or trying to get attention. It sounds like she is very uncomfortable/experiencing pain. Reflux is notoriously worse at night, when babies are laying down vs. sitting/standing upright. You are her mom. You believe she's crying in pain? -- Trust your gut.
I do not have much faith in Gaviscon or Ranitidine for reflux. PPIs (proton pump inhibitors) like Prevacid, Zegerid, Prilosec, etc. are considered the gold standard in treating reflux because they actually stop the acid before it starts, vs. work to neutralize it after it already occurs - which is how H2 blockers like Ranitidine, or Zantac, work. Other problems with H2 blockers is that they are EXTREMELY weight-sensitive, so you need to constantly update the dose, AND the body can quickly develop a tolerance to them, - so even if you're giving her the right dose for her weight, it just may not be working anymore.
It sounds like your baby is desperate to sleep, and she would if she could only get comfortable. I would get her on a PPI ASAP and see if that makes any difference. Remember with the PPI, it's essential to administer it correctly - i.e. on an empty stomach, at least 1 hour before a meal. Ask your doctor for an Rx the Zegerid powder packs, or buy the Prevacid capsules over the counter, cut them open, and sprinkle the beads on a spoonful of applesauce. (Of course talk to your doctor before trying any new med.) And if you continue to give the Ranitidine, make sure she space it out from the PPI or they'll cancel one another out.
The fact that she refuses formula is another red flag. Personally, I would not be comfortable with a 9 month old only eating solids and water. What about whole milk? Almost ALL doctors/dieticians will tell you that babies need either whole cow's milk, soy milk, or a formula in their diets up until the age of TWO. Without one of these options, it is VERY difficult for them to get the amount of fat and protein they need for proper brain development. I know you said she has seen a dietician. I would seek a second opinion...my daughter has a pedi, a pedi GI, an allergist, and a dietician, and I have participating in a lot of reflux and food allergy forums for nearly 21 months now - and I've never once heard of a doctor signing off on a baby under two not drinking a "milk" every day.
The fact that your daughter threw up all the time and was uncomfortable on formula - and then eventually weaned herself off it altogether, which is when the vomiting stopped - makes me think MSPI (milk soy protein intolerance) could be at play along with the reflux.
MSPI is actually quite common in infants under the age of one, and it often goes hand-in-hand with reflux. The symptoms of both conditions mimick each other and can make it hard to tell which is the root problem. In many causes, it's both.
Please go to Neocate.com and read everything under the "Parents" tab to learn more about MSPI. Most babies with MSPI do not need Neocate, which is an elemental (or, completely broken-down) formula. Most babies with MSPI will thrive on a hydrolized (or, partially broken-down) formula, like Similac Alimentum or Enfamil Nutramigen, which you can buy over the counter.
Since your baby is older and has been off formula for a while, it might be a challenge to get her to drink a hydrolized formula, since they don't taste good. What about soy formula? Has she ever tried that? (Some babies with a milk protein intolerance also have a soy protein intolerance, but others don't, so soy would be worth a try.)
Anyway, my advice is to get her on a PPI ASAP. I would also get her on a "milk" ASAP - she needs it for the nutrition. Given her history, I would start with something that does not contain cow's milk protein, since my guess is that it has caused her tummy upset in the past.
Please keep us posted and come back with any questions or more information you may have. I hope you get things sorted out for your little girl and she starts feeling and sleeping better soon.
|Nov 08, 2011|
|p.s. I misspoke here:
"Almost ALL doctors/dieticians will tell you that babies need either whole cow's milk, soy milk, or a formula in their diets up until the age of TWO."
I meant to say that babies under the age of two need either whole cow's milk or formula. Regular soy milk does not contain enough fat or protein. Her options, at 9 months old, would be whole cow's milk (I would avoid because of concerns about MSPI), soy FORMULA, or a hydrolized formula like Alimentum or Nutramigen.
If it were me, I would start with soy formula or Alimentum. (Because soy tastes better than the hydrolized formulas, and Alimentum tastes slightly better than Nutramigen.)