Posted By Posting
Nov 06, 2011
jenjentulane
Jenna
Mom of Jackson, 5 months old.
diagnosed with reflux at 3 weeks old.
currently on 15 mg prevacid
5 MONTH OLD, DON'T THINK REFLUX IS UNDER CONTROL
Hi I'm new to this forum so I'll give a little background. My son, Jackson, was born at 36 weeks 4 days but came home with me from the hospital, he was very healthy for being early. At 3 weeks he was diagnosed with reflux and put on Zantac. That didn't do much so his ped switched us to prevacid solutabs (15 mg, half in morning and half at night). We saw improvement with the prevacid and around September he started sleeping better at night. Down to one feeding and rarely waking up and easy to settle when he did. At the end of sept. he started spitting up a lot more and it was obviously bothering him again. He's always been an eater and weight gain was not an issue. He's a comfort eater I guess and would want to eat all night long at his worst. We went to the ped and he suggested cutting his bottles down to 4 oz at a time and thickening with cereal. At first this seemed to help. His spit up is greatly reduced and he started sleeping better again. But recently his sleeping has gone to hell. We've done the putting him down drowsy but awake thing for a while and he can put himself to sleep. He's easy to get down, but he's been up every hour, if not more recently. He wakes up crying. I've never let him CIO. I always go to him when he wakes. He's drawing his legs up and arching his back. Sometimes he farts and will go back down other times that doesn't help. He's getting increasingly hard to settle back to sleep. He's starting to show signs of the spit up hurting again and now showing signs of silent reflux (I can hear it coming up but no vomiting). He's a happy baby during the day, just always tired which is understandable since he's up so much at night. I swear just when I think it's getting better, it gets worse. Oh did I mention my husband is deployed and I'm pretty much doing this by myself with some help from my parents when they can. But they both work so they're often not here to let me nap during the day. I'm calling his ped monday. He hasn't been pooping well the past few days and things aren't improving. Idk if there is really a question in all this, I just need somewhere to vent with people who understand. I think the doc thinks I'm exagurating sometimes because he is gaining weight but the kid has to get some relief at night!! As do I. Thanks for anyone who reads this. I'm sure it's all over the place. -Jenna
Nov 06, 2011
jenjentulane
Jenna
Mom of Jackson, 5 months old.
diagnosed with reflux at 3 weeks old.
currently on 15 mg prevacid
oh
I guess I should probably mention he weighs 16.9 lbs. Is on similac sensitive ready to feed. He sleeps in a fisher price rock in play so he is elevated when he sleeps and I still swaddle. He doesn't seem to mind and I'm scared to try to wean until I get a little sleep.
Nov 06, 2011
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
((HUGS)) to you Jenna!! I know how hard this all is!! I can't imagine doing it while my husband is deployed too!

Is Jackson cutting teeth by chance? Sometimes that can really aggravate things. We had to add some Maalox for breakthrough pain (along with Tylenol) while ours were teething.

Did you change anything or add any new foods? I'm sure he isn't eating all of these yet but we have found our biggest triggers to be juice, citrus, tomato or tomato products (even ketchup), chocolate or high fat food.

Constipation is a HUGE issue with reflux. It can make reflux way worse and it can also cause a ton of pain on its own. Ella did really well on Miralax. I am not kidding about how bad it was though... she actually ended up throwing up all of the time bc she got so backed up... not a good combo with reflux needless to say!

If you need someone to chat with feel free to e-mail me anytime!! RackleyFive@cox.net I can even e-mail ya my # if you want to chat! You need some extra support with your hubby deployed. BTW.... THANK YOU for everything your family does for our country. God bless.
Nov 06, 2011
jenjentulane
Jenna
Mom of Jackson, 5 months old.
diagnosed with reflux at 3 weeks old.
currently on 15 mg prevacid
the only thing that has been added is the cereal. I do oatmeal because he seems to poop a little easier than rice. I was dissolving his prevacid in apple juice (as per the nurse) to give to him, but read that it can increase gas etc so I cut that out week or so ago, though it was a minimal amount. I now dissolve it in water to give to him. He's a gassy little boy and often has man sized farts. The more I read I kind of wonder if he is having issues with dairy. I don't see any teeth coming in. Since he's gotten better with his hands everything goes in his mouth and he's been constantly nawing on his fingers for a month or so but no signs of a tooth. Thanks for your response!
Nov 07, 2011
poorhenry
Henry was born 5/12/11 at 5.8 lbs. A peanut, for sure. He was healthy and gaining weight steadily for first 6 weeks, then began refluxing through his nose. By 3 mos. he was projectile vomiting. Trying our 4th attempt at medication and desperate for a good night's sleep.
You may want to ask your doctor about switching to Prilosec. Our GI doc told us that Prevacid can cause irritability in babies and if you are dosing at bedtime, it may be to blame for some of his night wakings. Also, since you have to dissolve Prevacid, it is tough to dose properly. We learned that you would have to dissolve a tablet in 4 oz of water to get the right concentration and that's obviously too much water for a little baby to drink at one time. Prevacid and Prilosec work the same. The bad thing is, Prilosec tastes nasty because it has to be compounded and apparently they can't mix flavoring into it because it will break down the medication. What I've been doing is pulling his dose into a syringe and then pulling a little cherry syrup (local phamacies can give you some) into the syringe, too. The cherry hits the tongue first and helps get the nasty-tasting med down. Since we started dosing this way, he rarely fights taking it. We are on a high dose (3mL 2x/day) and it is finally helping. He does not scream during feeds as often and has learned to settle himself when he wakes at night. We were getting only 2-3 hour stretches of sleep at a time and for the past week or so, we're getting anywhere from 6-9 hours. What a difference! Good luck! I know how bad it is to be suffering with a baby that can't sleep 'cuz they're in pain and you can't do anything to help. Hang in there.
Nov 07, 2011
jenjentulane
Jenna
Mom of Jackson, 5 months old.
diagnosed with reflux at 3 weeks old.
currently on 15 mg prevacid
I called his doc today, who doesn't want to change anything because he's gaining weight. The boy eats to feel better. I can smell the acid on his breath and hear it coming up but not out. Seriously!! I'm getting a second opinion. The sucky part is I can't get an appt with a pediatric GI without a referral and his doc doesn't want to do anything. Hopefully I can get somewhere with a different doctor. At least now I've got some good info and new questions to ask the doctor. Thanks for the responses. I'm open to any and all suggestions
Nov 08, 2011
dcd
I'm sorry your baby is having a hard time, and I'm so sorry that you are mostly on your own right now.

I would definitely make an appointment with a new pedi, and when you meet with him/her, I would ask about upping your baby's Prevacid dosing. 15 mg split may not be doing the trick any more; he may need a higher dosing. My daughter's reflux issues were only resolved when we put her on 27 mg/day. Now we're slowing weaning her down.

Considering the gas, constipation, and general discomfort, I would definitely look in to the possiblity of MSPI (milk soy protein intolerance). Neocate.com, under the "Parents" tab, has a lot of useful info.

MSPI often goes hand-in-hand with reflux and the two conditions can complicate/mimick each other. You might consider doing a trial of soy formula or a hydrolized formula like Alimentum or Nutramigen. My daughter was EXTREMELY sensitive to milk. She even had issues on Alimentum. When we finally switched to Neocate, she was a new baby in 12 hours. But most MSPI babies don't need to Neocate. I definitely think a trial of one of the others is worth it.

Good luck to you. I hope he feels better and you both get some sleep soon.

Nov 08, 2011
dcd
p.s. I am SO SICK of hearing doctors tell parents there's nothing wrong with their kids SIMPLY BECAUSE they're gaining weight. What BS. As if the growth charts are the only gauge for health and wellbeing.
Nov 11, 2011
jenjentulane
Jenna
Mom of Jackson, 5 months old.
diagnosed with reflux at 3 weeks old.
currently on 15 mg prevacid
Well we've made some progress at least. His new ped was very helpful. She wasn't comfortable changing his meds but is referring us to a ped GI (finally) and we have switched him to similac alimentum and added probiotics to his cereal. Also taking care of the constipation. I was so glad she listened and was willing to try some new things and refer us to a specialist!!! Hopefully we're on the right track so we can both get some sleep!
Check with your
doctor first!