|Oct 26, 2011|
Is this as good as it gets?Hello! Just discovered this site and hoping for some feedback before the next GI appointment on Monday, 10/31.
Here is our story.
*My son is 16 weeks old. He has had feeding problems from birth. He was tongue tied and that was clipped, but we struggled with feeding for weeks before pediatrician sent us to a feeding therapist. She figured out that it was a combination of reflux and a weak suck reflex.
*We tried Zantac but it had no effect. Then, he gave us Prevacid 15mg solutab- split in half for 2 doses a day. This DEFINITELY reduced the screaming/arching back/popping off the bottle. But, we are still having problems.
*Daniel had been a silent refluxer before the prevacid I could see it in the back of his mouth and he would swallow it back down. :(
*Since the prevacid, he doesn't seem to fight the feedings as much (grateful for that!). But, the spit up/throw up is worse. I call it "throw up" because it happens 2-3 hours after he has eaten. Not to be gross, but it smells like 'throw up', not formula spit up. It wakes him from sleep. It comes out of his nose and mouth. It looks curdled.
*At our first GI appointment 2 weeks ago, the doctor suggested that Daniel's constipation could be making the reflux worse. He put him on Miralax (1 tsp a day). We have done that, but I don't really see any difference in the reflux. When I asked the doc about the throwing up in his sleep, he said it would probably NOT go away but the pain should decrease.
So, here is my question. (I feel like I have no sense of what is "normal" for an infant!!) Is this the best that I can expect from the medicine? I am very happy that he doesn't fight feedings as much as before. But, the throwing up in his sleep concerns me. He is not able to sleep more than about 20 minutes during the day. He has inconsolabe periods (30 minutes-1 hour) a few of times a day. He has a lot of painful gas. I sort of got the feeling from the doc that this was about the best I could hope for. If that is true, I just need to accept it, but I was really hoping for a little more improvement. The constant laundry does not bother me, but to see him in pain DOES bother me. There has definitely been improvement with the PRevacid, but I'm just curious if it could be better!
We have an appt with the GI doc on Monday. I think he sort of dismisses my concerns becasue my son is gaining weight. And, i'm just not sure if I am being unrealistic in thinking that he could do more to help my son. Any feedback is greatly appreciated.
|Oct 27, 2011|
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
|What formula do you have him on? A lot of kids are intolerant of dairy and soy. Mine were both BF but I had to eliminate dairy & soy from my diet. Were is the baby sleeping? Mine needed to have a special wedge made by an occupational therapist to get them at a high enough angle in order to sleep. You can also use a bouncy seat, swing. Propping up the crib mattress can help too.||Check with your