|Oct 18, 2011|
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
|Can you clarify if your daughter is 8 months, or 8 weeks?|
I would definitely recommend seeing a pediatric GI specialist given what you've said. The benefit of of a pedi GI specialist is that they are typically better versed in the latest diagnostic and treatment options, and they will generally have a better understanding of the relationship between GERD and other health issues. (Obviously there is no guarantee that this is the case with all of them, but as a general rule you do benefit from the specialists tracking of recent research, as well as experience.) From what you've said, I would consider looking into having a pH Impedance Probe done.
So, it immediately jumps out at me that she has choked to the point of turning blue on liquids. That is fairly unusual and, in my experience is suggestive of a very high risk of aspiration and/or a neurological response to the refluxing that is triggering a more extreme than usual response to temporary blockage of the airway by fluid in the esophagus/upper airway. My son used to appear to choke on refluxed breastmilk while sleeping (stop breathing or have respiratory effort with no air movement, I would have to do a sort of lift and tip, and he would wake coughing and sputtering and spitting up), no matter what the angle of elevation, and sometimes he aspirated. In his case, we determined eventually that it was due to a neurological irregularity in the way he processed the stimulation of the reflux. The broader term for the disorder is Sensory Processing Disorder, and he did show many of the symptoms of it, but his response to refluxing was, evidently, fairly unusual. Most physicians are not yet well versed on SPD, so I consider it essential to educate yourself if you think there's any chance it might be at play. A good place to start is at www.sensory-processing-disorder.com, then click on Helping Baby Sleep on the menu to the left, then scroll down to the Infant/Toddler Symptom Checklist link and click on that. If you want additional resources, let me know.
As for the neutropenia, I have no experience with it related to reflux, per se, but my son did spend most of his second year of life isolated from others because we literally couldn't take him anywhere without him developing an infection of one kind or another. We never did any blood work (we assumed it was due to a combination of the reflux and sleep apnea/profound sleep deprivation) so I have no idea how that looked during that time. I do know that reflux can create a state of chronic inflammation throughout the digestive and, for some, respiratory, systems (and the reflux does not, contrary to popular belief, have to be acidic to do so). I don't know if that would contribute to neutropenia or not.
|Oct 19, 2011|
Isabella 10/04 Severe reflux, nissen fundo, g-tube, mito disease, epilepsy, DGE, asthma, aspiration, allergic to milk and soy
|has anyone suggested to use thick-it as opposed to rice cereal. Im sure she had a double whammy because prevacid causes lots of gas as does the rice cereal along with severe constipation in some kids. We are on thickened liquids still now at 7 because of aspiration. the thick it is equivalent to fruit sugar. It is nicer than cereal because the thickness can be so versitile. In other words you can go from one extreme to the other easily. We were on rice ceral in bottles/sippy cups until we discovered thickit. the rice cereal also changes the taste i think a lot more than compared to thickit|