Posted By Posting
Oct 16, 2011
shamroc1
8 month old with reflux seems to be getting worse
I am new to this site and reflux in general. I have an 8 week old daughter who has been diagnosed with reflux and is currently taking 15ml dose of Prevacid solutab (1/2 the tab twice daily) for a month now. I have been BF and just yesterday thought we would try Infamil Gentlease through the encouragement of my doctor. My main reason for post is my daughter seems to fair well with the BF (I think) but she projectile vomits - spits up at least 3-4 times every feeding and even spits up several times between each feeding. We nurse at night and express/bottle feed during the day. The main concern now is that she spits up after feedings and it will awaken her from her sleep with major discomfort and crying. Once she is awake it is very difficult to go back to sleep. She tends to do well at night, this is more of an issue during the day. Nightime she will go down at 9-10 nurse again at 3-4 then again at 6-730. Her daytime naps are almost ALWAYS are interrupted with reflux and discomfort 30-45 minutes later. Sometimes she will have just mild spit up, other times I think she will spit up half her feeding. She tends to be very fussy as well. We spent a day in the hospital a few weeks back as we were battling choking episodes where she would turn blue in the face so they ran tests on her and did an upper GI thus determining it was only reflux and not any other medical conditions related. Those episodes do not seem to be happening now as I am very aware of every feeding and watch her every move to ensure she does not start choking. The hospital doctor sent her home with orders to add rice cereal to every feeding which in return caused her to not go to the bathroom for days, she had very bad smelling gas and was very uncomfortable. I immediately stopped the rice cereal and after several weeks I think she is somewhat back to normal bowels. It seems like some days are better but overall we have very rough days as she is fussy a lot and very uncomfortable. We have her up all the time, bed is up along with the U shaped towels to keep her in an upright position so we are doing all the gravity related actions. She takes a pacifier to help her sleep/go to sleep as it seems to help the discomfort. Lastly, while she was in the hospital she had blood work drawn that determined she was neutropenic. Her levels were around 500. Secondary test was ran to ensure it was just a possible infection and she was at around 1000. Doctor wanted just one more test to ensure they were still going up and we just found out they were back down to 470 so she has been ordered to see a Ped Hemotologist. I am curious if anyone has found any relation to reflux with neutropenia. Basically right now the doctor says she cannot be around anyone and the first sign of fever she has to be taken to the hospital. She does not show signs of sickness so we are at a loss. Other than the reflux. We have not seen a GI specialist yet for the reflux but I wonder if we are at that point. Thanks for the feedback, Laura
Oct 18, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Can you clarify if your daughter is 8 months, or 8 weeks?

I would definitely recommend seeing a pediatric GI specialist given what you've said. The benefit of of a pedi GI specialist is that they are typically better versed in the latest diagnostic and treatment options, and they will generally have a better understanding of the relationship between GERD and other health issues. (Obviously there is no guarantee that this is the case with all of them, but as a general rule you do benefit from the specialists tracking of recent research, as well as experience.) From what you've said, I would consider looking into having a pH Impedance Probe done.

So, it immediately jumps out at me that she has choked to the point of turning blue on liquids. That is fairly unusual and, in my experience is suggestive of a very high risk of aspiration and/or a neurological response to the refluxing that is triggering a more extreme than usual response to temporary blockage of the airway by fluid in the esophagus/upper airway. My son used to appear to choke on refluxed breastmilk while sleeping (stop breathing or have respiratory effort with no air movement, I would have to do a sort of lift and tip, and he would wake coughing and sputtering and spitting up), no matter what the angle of elevation, and sometimes he aspirated. In his case, we determined eventually that it was due to a neurological irregularity in the way he processed the stimulation of the reflux. The broader term for the disorder is Sensory Processing Disorder, and he did show many of the symptoms of it, but his response to refluxing was, evidently, fairly unusual. Most physicians are not yet well versed on SPD, so I consider it essential to educate yourself if you think there's any chance it might be at play. A good place to start is at www.sensory-processing-disorder.com, then click on Helping Baby Sleep on the menu to the left, then scroll down to the Infant/Toddler Symptom Checklist link and click on that. If you want additional resources, let me know.

As for the neutropenia, I have no experience with it related to reflux, per se, but my son did spend most of his second year of life isolated from others because we literally couldn't take him anywhere without him developing an infection of one kind or another. We never did any blood work (we assumed it was due to a combination of the reflux and sleep apnea/profound sleep deprivation) so I have no idea how that looked during that time. I do know that reflux can create a state of chronic inflammation throughout the digestive and, for some, respiratory, systems (and the reflux does not, contrary to popular belief, have to be acidic to do so). I don't know if that would contribute to neutropenia or not.

Oct 19, 2011
bellymom
Isabella 10/04 Severe reflux, nissen fundo, g-tube, mito disease, epilepsy, DGE, asthma, aspiration, allergic to milk and soy
has anyone suggested to use thick-it as opposed to rice cereal. Im sure she had a double whammy because prevacid causes lots of gas as does the rice cereal along with severe constipation in some kids. We are on thickened liquids still now at 7 because of aspiration. the thick it is equivalent to fruit sugar. It is nicer than cereal because the thickness can be so versitile. In other words you can go from one extreme to the other easily. We were on rice ceral in bottles/sippy cups until we discovered thickit. the rice cereal also changes the taste i think a lot more than compared to thickit
Check with your
doctor first!