Posted By Posting
Oct 10, 2011
noona
Baby with reflux won't eat
I feel like I' starting to go crazy! My daughter is 9 months old and has had reflux since birth. It seems to be getting under control now, not sure whether it is the meds or because I'm dairy free (fully breastfeeding). The problem is that my daughter won't eat. We have been trying to wean her for the past 3 months. She refuses anything we give her on a spoon so we are doing baby led weaning and although she does put food in her mouth and chews it, she swallows virtually nothing and most gets spat out. We are being referred to a feeding clinic but this could take 2 months and I'm feeling like I need some more support. Has anyone else experienced this with their baby? Her weight has gone form 75th centile to between 4th and 9th. I'm finding this very hard to deal with. At the advice of the dietician we are getting her super hungry before offering her food, but this seems to be making no difference. She is now waking up twice in the night for more milk feeds (6 in total in a day). She won't take the dairy free formula, so I feel pretty tired still doing 6 breastfeeds a day. Not sure how I'm going to get back to work in 2.5 months time. Would love to hear from anyone who has had a similar experience and to hear whether things did get better or not. Thanks.
Oct 10, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you tried giving her the formula from a sippy cup or straw vs a bottle? Have you gotten the OK to try pediasure in a cup?

I sort of disagree with the "wait till she is starving" before offering food approach. If you wait till then she is going to be crabby, frustrated and less willing to explore.

The first few weeks of offering food can be frustating. I would approach it more in a play perspective. Let her touch it, smear it, play with it, etc. Do silly things to intise her to open up. There are sooo few calories in Stage 1 baby food anyway. It more about the learning and interest with that stage of food. She should still get her main nutrients and calories from her BF or formula.

Oct 10, 2011
noona
Thanks for that. Yes I have tried my breastmilk in a sippy cup, but she takes it into her mouth then spits it out. Haven't tried the 'dairy free' formula yet - thought I would get her going on the breastmilk which she is used to and then add a little formula and gradually increase it. We've tried giving her food after a feed, after a very small feed and when she is starving but it doesn't seem to affect how much she eats. Food is pretty much all about play at the moment - I don't think she associates it with hunger yet. We do let her play with the food, throw it on the floor etc. Still no luck and we have been trying for 3 months now!
Oct 11, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Sounds like time to call in reinforcements. Every state offers a free service called Early Intervention.. or something close to that. In Iowa it is called Early Access. Here is our site so you can get a feel for it. Google it for your state. http://www.earlyaccessiowa.org/

It is a free service for kids under the age of 3. They have nutristionalist, feeding thereapists, OT, Speach, PT, etc. They have all sorts of tricks up their sleeves to encourage a child to eat. They will come to your home and to the daycare if your child goes there. They were a real help to me. It was "nice" to have a professional see my son complete freak out the second he was put in a high chair or had food placed in front of him. I needed that objective professional 3rd party to corroborate my story. : ) It took both of us to help him get over his fear of eating... but that is another story for another day. The point is, they are good, free and easier to get into than a feeding clinic.

Oct 11, 2011
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
With a weight drop like that, I would think the clinic should see you ASAP. Where are you looking to be seen? I would ask them to get you on the cancellation list.

I would most certainly think they should be bumping you to the top of the list as you don't have a feeding tube to help sustain her.....just saying. I would not have minded having someone like you bump in front of us!!!!

I also second getting in with Early Intervention. It is free and they did a great job with Jedd. They, along with a local feeding clinic on an out patient basis, were able to wean Jedd off of his feeding tube and to oral eating. We also working with a Nation wide known feeding clinic long distance too.

Oct 12, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I exclusively breastfed for two years because my son couldn't handle solids (and he nursed about every two hours around the clock at that age). In hindsight, I understand that his refusal/inability to eat was related to Sensory Processing Disorder, rather than his reflux. Here's a link to some information about SPD if you're interested: www.sensory-processing-disorder.com (if you go to "Helping Baby Sleep" and scroll down, you'll find a link to a symptoms checklist for infants and toddlers). May be worth a look...
Oct 12, 2011
noona
Thank you everyone for your postings here. Very useful information and good to hear that others have been through similar experiences and also breastfed for a along time. I have spent this week trying to get my head around the fact that I am going to be breastfeeding her for quite sometime. I have chased up the paediatric unit (we are in the UK so things are a bit different here as we rely on getting referrals through the NHS) and we are going to be seen by the feeding clinic at the start of November. So not long now. Really hard to meet with friends whose babies are eating really well and thriving. My daughter is getting thinner and thinner - although I need to be positive. She is happy and lively and the breastfeeding will be good for both of us.... The feeding tube sounds pretty scary and hard to imagine how she will not manage to pull it out, although at least she will be getting everything that she needs. I just need to get my head around this whole thing! The reflux symptoms were hard enough but I hung in there as everyone kept saying that by 6-8 months the symptoms would ease. I had no idea that there might be other problems following the reflux. It feels like I've just run and marathon and now need to do another one! Thanks everyone for all your advice.
Oct 13, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
I hope you can get some help with a feeding therapist. Most her nutrition needs to come from breastmilk/formula right now. My first had reflux and when I tried to wean him over a year old, he would cough, gag and refuse to take a sippy cup. I ended up needing to nurse him til over 2. He had a swallow study and everything was normal but needed some time to figure out straw cups and eventually he did great on them. My second, had feeding refusals with BFing and bottle starting at 2 months. Solid food was very slow going with her too. She would spit out things like puffs, cheerios, etc. til she was about 9.5 months. I hope things get easier for you guys.
Check with your
doctor first!