Posted By Posting
Oct 10, 2011
reenie2007
Hello Im new here, and desperate for help!! :(
Hello Im a mum of 2, and 6 year old and a 4 month old who has acid reflux. She was diagnosed 3 weeks after birth and has been on medication since gavisgon infant 4 times a day and .8mls ranitadine 3 times a day. The first few weeks were the worse she screamed practically every day even when she was sleeping, didnt eat and eventually after trying all colic treatments reccomened by health visitor i took her to A&E where she was sent straight to the pediactric unit and it was like taking home a different baby!! now as shes growing her does is being increased so she doesnt get worse. but night times are begining to become a nightmare again, i dread going to sleep! a few weeks ago she was nearly sleepinh 12 hours! and now she goes down at about half 7 - 8pm and wakes up at 2,3,5 and 6am.. some times she dont really wake up but just cries in her sleep and the dummy will settle her but last night she was awakr from 3am to 5am, I feel so drained and emotional i know it not her fault but all the doctors keep telling me that she will grow out of it! im cant cope with the lack of sleep, looking after a 6 year old and trying to keep the baby happy during the day, shes so clingy, which is also my fault as in the 1st few weeks i couldnt put her down coz she would just scream! please help with any advice! im desperate :(
Oct 10, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Ranitadine is very weight sensitive. You likely need the dose increased. If that does not do the trick I would change to a PPI. I dont know many people that have had long term positive results from H2 blockers like ranitadine.
Oct 11, 2011
dcd
Second what VigilantMom said. Talk to your doctor, but H2 Blockers like Zantac (Ranitadine) are very weight sensitive, plus the body can quickly develop a tolerance to them and they will stop working. PPIs (like Prevacid, Prilosec, Zegerid, etc.) are considered the gold standard in treating reflux b/c they stop the acid before it starts (H2 Blockers only work to neutralize the acid once it's already there).

Get her on a PPI, and make sure she is on a high enough dose (talk to your doctor - babies metabolize PPIs much faster than older kids/adults). And make absolutely sure you are administering it correctly - on an empty stomach, one hour before a meal. If you can't get the timing right, get it compounded from a compounding pharmacy (but know that compounds are only stable for a couple weeks at a time) or compound it at home yourself using Buffer Babies or Caracream through Marci-Kids. (www.refluxsolutions.com)

Once you get her on the PPI, and once you're sure you're dosing/administering correctly, give it a little time (a week or so). If she's still having problems consider the possibility of a milk-soy protein intolerance (MSPI). MSPI is not uncommon in infants, and it often goes hand-in-hand with reflux. The two conditions mimick and complicate each other so it can often be difficult to tell which issue is causing the problem. We can help you with that too - but start with the PPI.

Oct 11, 2011
reenie2007
Thanks for your advice, I had no idea there was other medication availble i was under the impression we had exshausted all the options! She was put on to neutranegen (sp??) milk to see if she had an intolerance to normal formula milk, but since coming back on to normal milk she had no reaction so its definatly reflux. it sounds all very complicated with this different medication but i will find out about it, she has a hospital appointment in nov and hopefully they will see that she needs more than what shes getting. thanks for all your help!
Check with your
doctor first!