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Sep 11, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
Weaning Zegerid?
I am wondering what is the best way to wean down Zegerid ?

My DD is currently on 3 times a day dosing. She is 10 months old and gets 8 mg 3 times a day. She had a stomach defect and had to have surgery. The doctors don't want her on such a high dose anymore. I am nervous to mess with anything though! I can stay at 2x/day dosing til over a year and then they want me to wean down and see if she still needs it. Or they will repeat the endoscopy.

I've read that 7 mg is the lowest you can do to get enough buffer. Do I just cut out the mid day dose all together? Any advice appreciated!

Sep 11, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
wanted to add that I use the zegerid powder packets, if that makes a difference.
Sep 11, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Did they say why they wanted her weaned off? If you do want to step down you can replace the afternoon dose with an H2 blocker like Zantac for Pepcid AC EZ Chews. (not to be confused with Pepcid Complete) for 60 days and then do away with the afternoon dosing all together. When I weaned Ryan I started with lowering the morning dose to its minimum and kept the night dose at its full amount. Then I did away with the morning dose all together. Then I tackled the evening dose 1/2 ml at a time. Slow and steady. Ryan was 3 before I took himoff completely. I wanted him to be able to tell me if he was having issues. Good luck! And good luck with surgery. I hope it is quick and takes care of the reflux issues.
Sep 11, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
Thanks for the advice again! DD had surgery the end of July for her malrotated stomach. It was essentially refluxing up into her esophagus and there were areas of breakdown in her stomach from it rubbing together. Ouch! The doctors don't think she will need as high of a dose now. her endoscopy did show a floppy LES though. I am having a hard time changing things up though. She is doing well right now and I hate to rock the boat. She is teething and I know that always make hsi reflux flare. I didn't get my older son off prevacid til just this summer and he is 4. Taking things slow is more my comfort zone. So I will stick with that plan and see how things go.
Sep 12, 2011
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I wouldn't rock the boat. I'd wait. JMHO and we've had problems with Jedd in the past. But, at that age, I would have never thought of weaning. But he had issues as we like to say. ;-)

Sep 13, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
Anyone have a chart of Marci Kids dosing? I see the website is down for updating & changes. I think her doctors just don't like seeing her on a high dose of zegerid. Her pedi agreed to it while we were waiting for surgery. The GI doctor said it was ok but would prefer to get her dosage down. And then after a year old, wean it slowly and if it goes poorly to repeat endoscopy. The surgeon was shocked to see her on that dose and recommended weaning now. But he didn't know her whole history and the family history of my son having reflux and on meds for 4 years. I don't think my kids follow the normal course of reflux.

I might just leave her on this dose til I see the pedi at 12 months. I often give her mylanta cherry before naps as she has such troubles getting to sleep (burping, arching) and this seems to settle her. So I dont' think she has outgrown it yet.

Check with your
doctor first!