Posted By Posting
Aug 16, 2011
dcd
Vigilantmom - Question about Zegerid Powder Packs
Hi!

Can you tell me more about the Zegerid powder packs you use for Ryan?

We've been using the Prevacid capsules and Buffer Babies with Kylie, but I'm kind of tired of ordering the compound by mail and mixing it up every few weeks and I'd like to start decreasing her dose and I've heard that Zegerid is the most effective PPI for many...

How do the powder packs work? Is it a pain to mix them up with every administration? They don't have to be refrigerated do they? I can see how being able to keep them at room temp would be a big plus for travel. (No more cooler for the BB :/)

Ryan was on Prevacid before you switched him to Zegerid, right? Was that a smooth transition? Any issues initially?

I'm going to put a call in to the pedi to see what he thinks, but I'd appreciate your insight. Kylie's 18 mos now and doing so well. I know it will be a gradual process but I'm thinking Zegerid might be a good first step to weaning her off the PPI.

Thanks! How is Ryan?

Aug 16, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
HI!! I did not do the powder packets. My insurance coverage for it was terrible at the time and I had a pain in the rear GI that I did not want to hassle with anymore. I did the Zegrid OTC with caracream instead. MUCH easier. All I did was open 14 capsules, add 100ml of water and one small packet of caracream. That was it because the zegerid capsules are a powder inside. Nothing to crush or disolve in therasol and it was very cheap because it didnt take much caracream since Zegerid already has some caracream in it. It made a 30 day supply. That said I would totally call your insurance carrier about the powder packets. Coverage on it may have improved in the last year. It is in a powder from, you add water and administer it. Comes in 20mg packets. I will say though that the nice thing about making a bigger batch is that during the wean down you can lessen the amount you give until you are down to none if that makes sense. The powder packets would be great for travel though. Maybe you could have some on hand for when you travel??

Ryan is doing well. I weaned him off in June. I had him down to 3.75 ml (8mg) for a long time and then stepped down to Pepcid AC EZ Chews until I ran out of those and couldnt find anymore. Then I took a leap of faith. It was rough for about 10 days as he his body got use to having acid in it again but ever since he has done really well. We Made IT!!! Never thought I would get there. : )

Aug 17, 2011
dcd
Wow! Big cheers for you and Ryan! It was a long road, but you got there! I'm very happy he's doing so well off the PPI. Gives me hope!

I talked to my pedi and he's totally fine with Kylie switching to Zegerid, but I think I would need to do the Caracream & Zegerid vs. the powder packs. He didn't know the powder packs were commercially available. I'm going to double check with my insurance to make sure they don't cover them, but I doubt they do.

If they don't, I may trial Zegerid and Caracream. Can you tell me more about why you switched from Prevacid to Zegerid? Was that transition at all difficult? I'm assuming the switch wouldn't be an issue, since her body is already used to the Prevacid.

I wouldn't rock the boat, except I've heard Zegerid is more effective for lots of people, which could mean we'd be able to give her less med overall. Is Zegerid more effective than Prevacid, in your experience?

Finally, I know Prevacid has been around and used in babies for years, while Zegerid is relatively new. I think I read somewhere a while ago that Prevacid is approved for use in babies whereas Zegerid is only approved for 2 yrs and up. Do you know anything about that?

Thanks for your insight and again, very happy for you and Ryan.

Aug 17, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The only reason I changed was because it was cheaper and faster to mix up. We didn't skip a beat in changing over. Remember that Zegerid is nothing more than priolosec mix with sodium bicarbonate. With BB you were mixing Prevacid with sodium bicarbonate. Same thing. MARCI-Kids "invented" Zegerid and sold the rights to Merck but kept the rights for the caracream. I believe that Zegerid is the one officially sanctioned for infants vs prevacid but its all just legalities. Zegerid is definitely more effective than Prevacid for a lot of people. That is because of the sodium bicarb...but remember that you are already adding bicarb to the prevacid. Does that make sense?? If you think that you would like to see if Kylie be weaned you could try Pepcid AC EZ Chews, not to be confused with Pepcid complete. Its an H2 blocker vs a PPI.

Thanks for the well wishes. You will be here very soon!!!

Aug 18, 2011
dcd
Thanks Karen! Very helpful info. I think we'll use up the rest of our BB and then switch over to Zegerid/Caracream. Just seems easier and maybe we'll be able to start weaning her down. I can't wait till she's completely off this stuff!
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