Posted By Posting
Aug 15, 2011
shybabies
Momma to Caedmon reflux diagnosed at 5 months still trying to figure this out
unsure about 7month old and reflux
Okay I am going to try to keep this short, but to still give enough background. MY DS was a very happy infant and starting around 3 months started to get very fussy finally around 5 months I took him to the doctor wondering if he might have a food sensitivity or reflux. His symptoms were back arching, crying when he was laid down, sometime detaching while eating and crying, and a lot of spitting up hours after eating. The spit up would mostly be clear liquid with a bit of chunky milk. Also his sleep was getting worse and worse. The Dr immediately dismissed anything food related, but did diagnose him as having reflux and started him on zantax (ritadine). THe next day he was the happiest he has been in a LONG time, but by the second day he got very sick (bad virus from his sister) and it was hard to to really tell what the response from the medication was versus effects of him being sick. Now we are at 7 months old and I still am unsure about what is going on with him. He never has become the happy baby that he was for the first three months and I feel like that is who he really is underneath whatever is going on. At my sons 6 month appt I had asked about the reflux and his meds and they said just keep him on it until he outgrows it. Well he is sleeping horribly so we are trying to wean him to see if it is actually a side effect, but now on day two of no meds he was up for over 3 hours last night (getting worse not better). We have not received any guidance on foods even though he is on homemade solid baby food and overall I just feel overwhelmed and confused and I want to do anymore. At 7 months old he also does spit up still, but it is not as often and is more curds than liquid now. Any guidance would be appreciated. (I also am suspecting after reading this board that my older DD may have had undiagnosed silent reflux, but with different symptoms than DS)
Aug 15, 2011
dcd
Sorry to hear about your little guy.

My advice is to get him on a PPI immediately (like Prevacid, Prilosec, Zegerid...) PPIs are considered the gold standard in treating reflux because they stop the acid before it starts. H2 Blockers, like Zantac, only work to neutralize the acid after it's already occurred. The body usually develops a tolerance to the H2 Blocker and it will stop working. (I've never known anyone who has had success with Zantac only long term.)

When discussing the PPI with your doctor, make sure you ask about dosing and administration. i.e., Make sure he prescribes a high enough dose, keeping in mind babies metabolize PPIs faster than adults -- and make sure you know how to administer the med: unless you're using Zegerid or a PPI you compound yourself at home using Buffer Babies or Caracream, you will need to give the med on an empty stomach, 30 mins to 1 hour before a meal.

Give the PPI a week or two to take full effect (you should start seeing improvement in a few days).

If he's still having problems after a few weeks, consider the possibility of a milk-soy protein intolerance (MSPI), which is quite common in babies, especially reflux babies. MSPI and reflux often go hand in hand, and the symptoms mimick each other.

Good luck, keep us posted!

Aug 15, 2011
dcd
ps. Some resources:

www.marci-kids.com to learn about the various reflux meds and how they work

www.neocate.com (everything under the Parents tab) to learn about MSPI

If you do end up going down the MSPI road, we can help you with more info here. But, again, I'd start by getting the reflux/acid under control with a PPI.

Aug 16, 2011
shybabies
Momma to Caedmon reflux diagnosed at 5 months still trying to figure this out
So this is going to sound dumb, but how do you know when you should go from an H2 blocker to a PPI? DS is very clingy and still fussy, but I struggle to know what is him just being a normal fussy baby to being in pain from reflux.
Aug 16, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
H2 Blockers have a poor success rate with babies. Typically you see a good improvement and in a week or so, you are back where you started. It is very weight sensitive and they build up a tolerance to it very fast. I am with DCD, I would tell you doctor that you would like to do a 2 week trial of Zegerid powder packs. If you do not see a dramatic improvement I would start down the road of MSPI. Go into it knowing 1. it can take up to 14 days to see results 2. Contintue to give the Zantac for the first 7 days of starting the Zegerid but 4 hours apart from the Zegerid dose 3. Your little one will likely have more gas for 10 days as his body adjusts to the new meds. Stick with it for 14 days though and then reaccess.
Aug 16, 2011
dcd
I agree with Vigilantmom. I'm not a doctor, but if it were me (and it has been me in the past!), I wouldn't even waste your time with Zantac. The H2 Blockers are ok for "breakthrough reflux", i.e. reflux that occurs between doses of the PPI, but they aren't going to do anything to get the reflux under control on their own. They are just not strong enough and the body develops a tolerance to them very quickly. Most doctors start with Zantac because lots of babies, especially young infants, outgrow their reflux in a matter of a few weeks or a month or two. Your baby is 7 months old now and he hasn't outgrown the reflux. The Zantac is clearly not cutting it. Just my two cents.

As to your question, you said yourself - you feel that he is a happy baby underneath the discomfort. You keep thinking about how he was before the reflux issues started. Which means you know something is just not right. (My baby's reflux discomfort started at 3 months too. She always spit up, but the poor sleep, fussing feedings, etc. all started around 3 months.)

If it were just "normal" baby stuff, you'd know. You're his mom. Trust your instincts. I know it's hard. I know you second-guess yourself and others may question you. But you are his mom. YOU KNOW.

I really encourage you to trial a PPI. Let us know how it goes.

Check with your
doctor first!