Posted By Posting
Jul 24, 2011
dgorman56
Olivia born 5/4/11, diagnosed with severe reflux @ 6 weeks
in need of some advice and support re GERD
MY LO was diagnosed with severe reflux (I believe its severe silent reflux, since she was never a spitter) @ 6 weeks after not being able to get her to eat for 6 and 8.5 hours! We BF and spend about 30 minutes fighting to get her to latch on and eat... I have the pacifier in one hand and when she pulls off and screams I pop the paci in and start over... She is on .4mL of Zantac 3x day and 2.5mL of Prevacid 2x day. We've been on the meds for 6 weeks now and has shown no progress. We have been going to weekly Dr appts for weight checks and recently started gaining, most likely because Im forcing her to eat every time I BF her. Her dr is satisfied with the weight gain and is telling me to just keep at it! My H and I are having a difficult time with this because it takes a huge emotional toll on us, me especially, since Im the one having to feed her. We've tried the bottle and going to OT to try and get her to take the bottle, as Im going back to work in 2 weeks... She fusses and cries and only takes 1 oz in 30 minutes. We have an appt with a GI specialist August 29, her pedi said it will be hard to get them to move the appt up if she is gaining weight... What should we be doing/asking for?? We are both scared this is something more than just GERD, considering the meds have had little effect on her... I feel like I have no voice at the dr office and she just wants us to deal with this... I dont think this is good for our bonding or lack there of, becuase she associates me with hurting everytime I go to feed her! It shouldnt be like this, I shouldnt have to fight and force my child to eat! Im so frustrated!
Jul 25, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
((HUGS)) and congratulations on your beautiful little girl! So many of us have been in the place you describe -- absolutely worn out and sad and frustrated by what GERD does to our children, how we feel when we talk with physicians, and the fears about the future. To start with, I will tell you that I exclusively BF my son (and ended up unable to go back to work because he would feed any other way) and I very clearly recall feeling like 'he must believe that I am trying to poison him,' and genuinely worrying about what that would do to our bond. And it didn't help that I was exhausted all the time. I hope it will help you to hear that, quite to the contrary of my worries, the bond we share is probably even stronger than it would have been because we have been through so much together, because I have observed him so closely for so long and have become attuned to him in ways that would never have been possible had I not been so concerned about his health and had we not had to spend so much time nursing.

I'm glad to hear that her weight has improved, but don't let anyone tell you that as long as her weight is okay there's nothing to be concerned with regarding reflux. GERD can cause all sorts of issues, and it needs to be taken seriously whether a child gains weight or not. Has she had any diagnostic testing done yet, or was the diagnosis based on observations and her weight? Is it possible that there might be any allergies at play as well? How is your milk supply?

Hang in there -- I can honestly say that there were many times over the years when I wasn't sure I was going to survive with my sanity intact. That's what we are here for -- to help you remember that you are not crazy, that you are not alone and that things WILL get better, eventually...

Jul 25, 2011
dgorman56
Olivia born 5/4/11, diagnosed with severe reflux @ 6 weeks
"I'm glad to hear that her weight has improved, but don't let anyone tell you that as long as her weight is okay there's nothing to be concerned with regarding reflux. GERD can cause all sorts of issues, and it needs to be taken seriously whether a child gains weight or not. Has she had any diagnostic testing done yet, or was the diagnosis based on observations and her weight? Is it possible that there might be any allergies at play as well? How is your milk supply? " believe me, Im still concerned about her weight, even though she show progress last week! At 6 weeks, we were hospitalized and a GI test was done to show the severe reflux - dr said its one of the worst cases he's seen in an infant! Ive asked the pedi about allergies and she said she'd be surprised if that was the issue, since she's not showing any outward signs of allergies... I think my milk supply is great! When I pump at night, 2 hours after a feeding on the same breast, I get about 2 oz. Before this issue, when I was going to BF support groups, she would average a little less than 3 oz on the pre and post weight. She is on zantac 75mg/5m, .4mL 3x day and Prevacid 3mg/mL, 2.5mL, 2x day, is this enough? I just feel like its done nothing in the 6 weeks we've been on it...
Jul 25, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Are you spacing the Zantac and Prevacid by a minimum of 4 hours from each other. Are you giving the prevacid on an empty stomach and feeding 30 minutes later. Have you asked to move to Zegrid instead of Prevacid and Zantac?
Check with your
doctor first!