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Jul 23, 2011
courtny
7 week old - reflux interrupts sleep
Since my newborn son developed reflux 3 weeks ago, sleeping has become the bane of our existence. He will fall asleep on my husband or me but whenever we put him down it lasts no more than 20 minutes. His reflux or gas wakes him up. He's sleeping in his car seat b/c he's a squirmer. Any recommends for the sleeping issue? We also recently saw a GI doc who is going to take him off the reflux meds my son's pediatrician prescribed. The specialist says new studies don't indicate the meds actually help infants. My son is gaining weight so the reflux is mostly a comfort issue, for now. Thoughts?
Jul 23, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
In my experience (I've been on this forum for four years) sleep is the bane of most refluxers existence. Are you putting him down on a surface with an elevated head? The carseat may make things worse because it tends to put pressure on the abdomen.

What medication is he on now? As far as it being a "comfort" issue because he is gaining weight, that may not be the case. Even non-acidic reflux has the potential to cause babies to aspirate, have obstructive and central sleep apnea, develop frequent ear infections, and develop sensory processing issues among others. I'm not saying that any of that is the case for you son, but it would not, in my opinion, be wise to assume that if he is gaining weight, there is no problem. (In the interest of full disclosure, my son gained weight very well because he was a comfort nurser, but he aspirated, had sleep apnea, sensory processing disorder, frequent ear infections, a weakened immune system and, eventually, PTSD, as a result of reflux. I can't tell you how many times we were told not to worry as long as he was gaining weight....)

Jul 23, 2011
courtny
My son rolls off his crib wedge. He was first in a moses basket. He would wiggle around and end up on his side with his face in the side lining. When his reflux started I put a crib wedge in his pack n play. Now he wiggles off the wedge and ends up sleeping flat at the bottom of the pack n play .. sideways. Not sure where else to put him to sleep? Pediatrician recommended the car seat. He started on Zantac and is now on Pepcid. His regular peditrician is also having us do 2ml's of Mylanta with each bottle to lessen the burn. We did see a specialist two weeks ago - his peds GI wants to now take him off all reflux medicine. Matthew is still on the meds b/c we were first dealing with his milk/soy allergy and switching formula. You mention breastfeeding a reflux baby in your bio. I've heard it's better for them? I'm still pumping .. and am considering taking dairy/soy out of my diet and trying again. Thankfully Matthew doesn't have projectile spit up that often but the reflux often wakes him up and he is unsettled by it. He definitely has good days and bad days. Sorry to hear about all you've gone through with your son. Is he better now that he's older?
Jul 23, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The Tucker Sling will keep him in his place on the elevated mattress.

I am shocked your GI is taking him off the Reflux meds. I would be putting him on something stronger like a PPI such as prevacid or Zegerid. I think I would consider a 2nd opinion.

Jul 24, 2011
courtny
I agree and am looking for a second opinion. Was hoping marci-kids could point me to a med friendly GI in our area. It takes forever to get an appointment with one, and then I would be guessing as to who is supportive of reflux meds. Found advice on creating a u-shape with towels under his pack n play sheet. Going to try that first before spending a lot of money on something he might not like.
Jul 24, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I would really encourage you to step and advocate for your LO against stopping meds at this point -- the idea of a physician recommending that you not continue meds, but not recommending any diagnostic testing sounds ludicrous to me.

One thing that is worth being aware of is that both reflux discomfort and sleep apnea can result in extremely restless sleep. IMHO, that in conjunction with the frequent wakings and ANY uncomfortable spitting up is cause for further investigation and medication as needed. It took over a year of me observing signs of apnea in conjunction with reflux in my son to get a physician to take my concerns seriously. Trust your intuition -- if it tells you that there are unanswered questions, don't be afraid to be persistent and unwavering with doctors and don't be afraid to seek alternative opinions.

As far as breastfeeding goes -- it is believed to be better for refluxers generally, and I feel certain that it is better for overall health, but it is certainly more difficult and complicated when allergies and reflux are at play. I encourage you to go to the La Leche League Mother to Mother forums (at www.llli.org) for advice and support if you want to return to breastfeeding and/or if you continue to pump. There is a forum for Allergies and Breastfeeding, as well as one for Chronic Health Issues with children -- the ladies there are amazing in their knowledge and support. Again, I don't mean to suggest that your little one has sleep apnea, but I do also know that nursing is an excellent way to help babies who have obstructive sleep apnea -- the sucking motion assists in keeping the airway open, and they tend to sleep more lightly (which may seem like a curse, except in light of the alternative.

My son is doing much better in many ways now -- thanks for asking. He still has all the issues he ever had (although he hasn't aspirated in over a year!), but they are much less severe than ever in the past. It took a very long time to put all the pieces of the puzzle together, and there were times when I felt I would lose my mind in the effort and with the frustration and worry, but the other parents here, and the women at the La Leche League forums did so much to help sustain me and guide me. Keep reaching out for support and information -- you are your LO's best advocate, and you need to be your own advocate as well. Don't forget to care for yourself so that you have the reserves to care for your baby.

Jul 24, 2011
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Until you buy something to keep him on a wedge you can do what the nurses did in the PICU for my son. Let's see if I can explain this well...LOL

Take a large adult bath towel. Roll it long ways. Then you can form it into a "U" to make a cocoon to lay the little one in. Then swaddle the baby and place them in the cocoon.

We used to make sure Jedd's feet were over the bottom of the "U" and his bum was up against the inside of the bottom of the "U" and he would do well.

Using anything else and he would slide down since we had him elevated soo high in his bassinet.

Once he moved to the crib he slid down. But once old enough to realize it helped him, he stayed up on it. He's not flat in a toddler bed at 4 and a half.

The PICU nurses used this with him since he was reflulxing noticably while fully sedated, elevated, and on an ND tube. SAD SAD SAD.

I walked in to chat with them and sit with him and they told me and my hubby, he has GERD doesn't he? Yeah, not a happy time.

Check with your
doctor first!