|First off, make sure they sedate or have them do G.A. for the switch. Some hospitals will actually yank the old tube and then put in the MicKey, mean isn't it!! Jedd's was a straight insertion so we never had a long tube. |
Ok meds, yes you can do meds straight into the button. We used a slip tip BD brand syringe and it fit. NONE Of the other syringes we used would fit. It has to be a slip tip and be that brand. There may be another brand out there that will fit, but that's what our HHC carried.
Oh and the oral slip tips from pharmacies will not fit.
I just gave them med then flushed the MicKey. We used about 3CCs of water, some Moms will use 10.
As far as giving a feed straight through the button, you can and I have...LOL I used to tube with a 10Cc syringe of baby food into his tube during the day. I had to push really really hard but, for the first time in his life, he started to GAIN weight!!! The local feeding clinic thought I was nuts, other Moms thought I was normal!! It enabled me to boost his food and the food was thicker so we saw much less vomiting.
If Jedd was about to fall asleep an I knew I needed to bolus him, I would just attach the extension and then tape it up and out of the way just far enough for me to be able to still get to it.
I would attach it, then give the line some slack, and then tape it to his belly and then tape it towards the back. It used to hang out some but Jedd never bothered with it.
If I didn't need to feed him during nap, I never had the extension on.
As far as pulling out the button, Jedd only did that once. He liked sleeping with just his pull up on and he yanked it out at nap and we didn't catch it until we woke him up. We rushed him to the ER since I could not for the life of me get a new on it. I even tried to stick something inside the MicKey to make it stiff and I could not find anything that would fit.
The ER had NO idea what to do with us, the resident that is...he kept telling me we were going to need to go to the OR to get a new one placed. I kept telling him NO we would not. By that time they had a foley (half the size of his G tube though) placed in the stoma to keep it open some.
I kept telling him that we needed to stretch him stoma and then get the new tube back in. He kept telling me I was wrong....how dare he tell me that...LMBO!!
He ended up calling the surgeon on call *on a sunday afternoon no less* who told him exactly what I told him. He looked as if the on call surgeon had skinned him alive too. I didn't spare the laughs at him.....LOL I just had to laugh and grin at him.
They sent us home, no feeds allowed, which would have been fine IMHO and we had an early morning apt with the surgeon's NP.
She used a wooden hospital Q tip and inserted it inside the MicKey and the we lubed Jedd's site up really well and the tube really well and with straight steady direct pressure, about 20 seconds and LOTS of Jedd screaming later, IN the tube went with a POP!! NO damage at all, worked like a charm.
The extension tubing works great. Make sure you get some "Secure Lok Right Angle Bolus" extensions. They have NO med port and if you get it in a 24 inches, they work GREAT for night feeds. There won't be any accidental feeding of the bed with those suckers. they are awesome.
We didn't see any kinking with them once I learned how to tape it well. I used to attach the extension, then give it slack and tape it once to Jedd's belly. Then, I gave it some more slack and then taped it to his upper thigh and ran it out the end of his footed jammies.
Of course, you have to feed the extension through the PJs first or it won't work. I just used scissors to cut a very small hole at both ankles so that I could do this. The hole never "ran" in the wash and you can't even tell there is a hole there. I made them as small as possible.
When Jedd was tube feeding we used footed Pjs exclusively to help. 2 pieces were out for us, it was just too much of a risk that Jedd would yank it out.
Once I mastered taping with enough slack, I never had *no flow* alarms from the pump for kinks.