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Mar 31, 2011
beckahjo67
Beckah
I'm new here
Hi everyone, I'm not sure where to start. I feel like I'm going crazy. I just want my little guy to be better. I took our son Joseph who will be five-months on March 4 to the doctor because daycare called and said he had a fever. Well, when we got there he had no viral symptoms but I explained to the doctor that he coughs and gags in his sleep at night. Then, we took him for his four-month check-up and the doctor put him on soy formula after seeing mucas in his stool. ( he was very cooperatvie and pooped during his check-up). Well, we started him on soy on a friday, by saturday he was coughing much more and it continued to get worse until I finally took him to the doctor monday. I forgot to mention that at the first visit the doctor put him on baby zantac which did nothing. So, at the monday visit the doctor put him on preavid 15 mg. once a day and said if the cough did not get better to bring him back in in a week. Well, the cough got much better, pretty much went away, but then came back after about a week. At daycare they had been telling me he was not eating well, but he would eat pretty well at home. Then my husband switched to playtex ventaire bottles and he ate great at home and great at daycare for the week that the cough was gone. The cough is getting better again, Thank God, but he is not eating much at all for myself or daycare. He seems very happy for the most part, just the cough, and not wanting to eat. I remember when he was about a month-old he would just cry out during his sleep for no reason, (scream) we thought he was having bad dreams, but now looking back, I wonder if that is part of the reflux also. He also would rather be held while we are standing more so than sitting down. I would appreciate any advice anyone can share with me. I feel like crying most of the time. It is all I can do to get through the day at work. Sorry for babbling. p.s. They have not done any actual testing, just going by what the doctor thinks. Beckah
Apr 01, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Sounds like you might have a milk soy protein intollerance and reflux going on at the same time. Prevacid takes 14 days to on board in their system. It must be given on an empty stomach with a feeding 30 minutes later. The dosage should be split into two dosings a day... morning and night.

I would look to a hypoallergenic formula like alementum. Know that it takes 2 full weeks for bother some soy and milk protiens to rid their system.

Read all you can. A great place to start it www.marci-kids.com for reflux info. Lots of stuff in the reading room too. Check the reading room for symtoms of MSPI too.

Apr 02, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
With the coughing and gagging I would also be suspicious of the possibility of some micro-aspiration (aspirating small amounts of fluid -- not enough to cause the onset of pneumonia, but enough to trigger the reflex to prevent it and possibly to inflame the respiratory membranes).

For what it's worth, my son did the same thing, as well as some more intense aspirations, and what we have finally discovered is that he was having a sensory overload response to the presence of fluid in his esophagus. Instead of the fluid just coming up and going back down, it would come up, he would take a big breath in (which is a normal response of the body to prepare for fight/flight response, trying to get more oxygen to the blood), and aspirate whatever was there. When we began to work with an occupational therapist on his sensory processing issues, he improved immensely (though it still becomes a problem when he is under stress/anxious), as his body stopped having such an extreme reaction to sensory input. Unfortunately, most physicians are not well versed in sensory processing issues, and it can be very hard to find information on how to identify it and deal with it. If you'd like more information, let me know and I'll post some links and book titles for you.

The desire to be held while you are standing, more so than when you are sitting, could also have to do with sensory needs. Movement, especially a slight to vigorous bouncing movement, is usually very soothing to the vestibular system, and that system is in the midst of developing in some important way in the early months. We found that using one of those big yoga balls to sit on while holding our son helped to give us a chance to sit, while also giving him the bouncing motion he needed.

Apr 04, 2011
beckahjo67
Beckah
Thank you
Thank you so much for the information. We seem to be doing much better this week. I will check about the formula. I myself was wondering about the soy allergy also. Yes, I would love to read some more on this if you are able to send me links. Thanks again so much for getting back to me. I really get stressed out about this sometimes.
Apr 07, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Here is a link about Sensory Processing Disorder, which is helpful not just for those whose children have SPD, but any parent, since everyone has sensory processing challenges sometimes. Of particular interest to you may be in the section titled "Helping Baby Sleep" where you can find a symptom checklist for infants and toddlers. Not everything on the list is a sign of SPD, but it can be useful in noticing patterns of behavior which may suggest a significant challenge.

www.sensory-processing-disorder.com

There is also an outstanding book about Sensory Processing Disorder called "The Out of Sync Child" by Karol Scott Kranowitz. There are actually quite a few excellent books about SPD, but this one is generally considered sort of the parents encyclopedia of SPD.

And finally, I recommend the following book to any parent whose child has experienced medical issues, as it is the only one I am aware of which actually acknowledges the potential for long term effects of medical challenges and traumatic experiences on the very young, as well as providing outstanding guidance to assist in mitigating the effects of traumatic events and experiences. The book is called "Trauma Through A Child's Eyes -- Awakening the Ordinary Miracle of Healing."

Apr 07, 2011
beckahjo67
Beckah
THANK YOU!
Thanks so much for all the information! :) Blessings. :)
Apr 12, 2011
beckahjo67
Beckah
Back again
Well, here we go again. Just when everything was going great, Joseph does not want to eat again. I am about in tears. I can barley get through the day at work. He will not take more than 5 oz. from me at a feeding and usually it is more like 3 0z. I don't understand, this past Saturday he ate almost 40 oz. and then Sunday he just did not want to eat anymore. Is this normal with this? We are seeing the doctor today at 4:30. Please pray for us, Beckah.
Check with your
doctor first!