Posted By Posting
Mar 24, 2011
fostermama
Questions, questions
Hi, I posted a question yesterday (and thanks to bellysmom for replying!), but since have had some other questions come up that I'd love to hear other mom's thoughts on. I am a mom of 4 - 3 biological kids who all had some degree of reflux, and now a 14 week old foster son (who we are hoping to adopt). He doesn't actually spit up much, but he started gagging/choking and coughing about 6-7 weeks ago, which progressed into what the pediatrician called bronchiolitis, but I think that it was because of reflux. He isn't sick like a baby with bronchiolitis is. He has a few coughing episodes a day, and is very congested in his chest, but no runny nose, no fever, or other signs of illness. I really believe that he's refluxing and aspirating because when he has his coughing episodes, it starts with a gag, his eyes get all watery, his whole head turns bright red, and he coughs coughs coughs for a few seconds to a few minutes. Then he's done coughing for a while. He coughs/gags/chokes during feedings. His chest is still very congested, as it has been since the start of all of this. At the beginning, he was started on Zantac, which made a huge improvement for about a week. Then he started downhill again, so I took him back and his dose was adjusted for his weight, but it didn't help at all. So, he was started on Prevacid Solutabs and then Reglan. He ended up being admitted 2 weeks ago with a viral infection, but at that time his cough and symptoms were different. He got better for a couple of days, but then had another choking episode this weekend and is back to sounding horrible again. I took him to the pediatrician again on Tuesday and she ordered a chest xray and swallow study. The chest xray was clear, but when we followed up yesterday, she said again that she thinks it was a flair up of bronchiolitis. We're still waiting to have the swallow study scheduled. Is this experience similar to any of yours? Did you have to go through other diagnoses before settling on reflux? Does it sound like I'm off base? I'd hate to have him on all these meds (especially the Reglan) if he really doesn't need them. I'm hoping the swallow study will give us a definitive answer. My other question is about Buffer Babies. I tried to order some, but on the order form, there is no option for the solutabs when they ask what medication it will be used with. Can it not be used with the solutabs? I emailed David, but he's gone until the 27th, so I thought I'd see if anyone here knew the answer to that. Thanks for reading and for any suggestions you have. Sorry that was so long!
Mar 24, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I will answer quick on the caracream and will be back on the rest of the stuff. No caracream can not be used with solutabs. It is to be used the over the counter prevacid, priolosec or Zegrid. I like zegrid best.
Mar 24, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The coughing and gagging definately sounds like reflux. Go to www.marci-kids.com. On the right click on EER, and then on the left click on How Reflux Affects the Airway. Read that and then click on Effects of EER on the larynx or voicebox. There is a secton on Cough. My son was a coughing mess when his reflux was out of control. It disappeared when I got his meds right. If it were me, I would over the Caracream Z. You add that to Zegrid OTC and water to make a suspension. You can also get a script for a Zegrid suspenion but understand that it is exactly the same thing as doing it yourself. Dr. P from Marci-kids is the person who created Zegrid. Just depends on how good your insurance is and what they will cover.

If you can get the acid under control I would consider dumping the Reglan. That stuff scares me. If he needs it, he needs it, but it would be wonderful if you could find an alternative. If the choaking continues after the acid is under control I would ask for a pulmunologist consult.

Check with your
doctor first!