Posted By Posting
Mar 15, 2011
charandhenrysmom
New to Prevacid
So this is my first post. At this point I've been reading old posts and trying to soak up as much information as possible. My son is 4.5 months old. When he was born he weighed 9 pounds 6 ounces. He was always wanting food. I tried breastfeeding, but he was just too hungry. We started formula in the hospital and continued to try breastfeeding for the 8 weeks I was home on maternity leave. He did fairly well, and I continued until he was about 3 months old. At about 2.5 months, he was spitting up way too much and needed the breastmilk to be mixed with AR formula. So, we did. He had some of the symptoms, like spitting up, screaming, and pulling up his legs. But for the most part he was a happpy baby. The doctor decided to try pepcid twice a day. We went back to the doctor when he was about 3.5 months because he was sick. He had a double ear infection and RSV. At that point he had lost 1.5 pounds. I started to freak out. This is my second child and my daughter was ALWAYS off the charts, and always a great eater. My doctor told me not to worry about it now, that we wanted to get him healthy. After he was healthy we would begin worrying about his weight again. We went in last week for our 4 month check up (he was 4.5 months by the time we got in). He has gained some of the weight back, but is no where near he should be being born at well over 9 pounds. At most feedings it is a struggle to get him to take 5 ounces, and any feeding is no less than 30 minutes long. The doctor switched him to Prevacid twice a day. She also wants us to use all AR formula (rather than mixing it with regular). So, here are my questions. When I picked up the Prevacid, it was a liquid. Everything I've read online says that it is best to dissolve it at home. I'm not sure I understand the difference and would love some input. Also, we are onto all AR and are no longer mixing it. He seems HORRIBLY constipated. Any suggestions? Last thing...at this doctors appointment he was diagnosed with pectus excavatum (his chest is caved in rather than out). Does anyone have any experience with these two conditions co-occuring? Thanks so much in advance for listening and the advice.
Mar 15, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Welcome! And so sorry you are going through this. A couple of quick things for now and I will be back later. Others will chime in too.

Go to www.marci-kids.com. Soak up all the information. Tons of great information.

Give prevacid on an empty stomach and feed 30 minutes later. This is a must!!

What is his dosage?

Ear infections are really common for reflux babies and can do a real number on their systems. Antibiotics are brutal. Keep and eye on them and if he gets a couple of more, insist on tubes. The acid can be really hard on the ears.

Liquid Prevacid... Depending on who is making it and how they are doing it, it could be totally fine. Some of the pharmacies are switching over to using cocobase/caracream to make their liquid compound. If so, you are good. Ask your pharmacy what percentage of sodium bicarbonate they use to make it and make sure they are not flavoring it. If they dont make it right, it will be ineffective after a week.. in which case you are better off making your own.

AR formula does not work when your child is on acid reducers. It actually needs the acid in the stomach for the thickeners to activate. You are better off to use a gentler and easier to digest formula. Simlac Sensitive Lactose free is a good one as is Nestle Good Start..... if your baby does not have a milk or soy sensitivity or allergy. DCD has a great post about the differences in formula. Search for it. If you need to thicken it, try Beach Nut oatmeal. Rice can be very constipating.

To deal with the constipation, I liked using pear necture 1oz (not pear juice) or Mylanta Cherry Supreme... aluminum free. Both are very effective. The Mylanta gives you the added benifit of acid reduction. Constipation and reflux are often seen together... immaturity of the GI track. You may find that the constipation gets worse at first on the Prevacid as it can block magnesium absorbtion.. another reason why I like the Mylanta.... You will also see more gas for the first week. Completely normal.

Mar 16, 2011
charandhenrysmom
Thank you so much for the helpful information. I have checked out www.marci-kids.com and I am LOVING all the information. I did not know about giving the prevacid on an empty stomach. I didn't last night, but I read this before I gave it to him so this morning we did. I just got off the phone with the pharmacist and they said the mix the prevacid with an 8.4% sodium bicarbonate base. When I asked about cocobase/caracream she did not seem to know what I was talking about. She said that they use the recipe that comes out of St. Louis Children’s Hospital. Does that mean they are mixing it the right way or the wrong way? He is taking 2 ml twice a day. That makes so much sense about the AR formula. I never would have thought of it since the pediatrician said to keep using it, but logically, it make sense that it wouldn’t work. I’ll probably stick with it for a few more days, just until we are in a good routine with the prevacid and so we aren’t changing too many things at the same time. We have been using pear juice for constipation with mixed results. I may give the pear nectar a shot to see if it helps. I’ve searched for the Mylanta and unfortunately can’t find it because of the recall. Hopefully they will have it out soon!! Last night was a horrible night (we were up most of it with him screaming and crying) so hopefully tonight will be better. I really appreciate all of the feedback and help. I finally feel like I’m not going crazy and that there is a light at the end of the tunnel!
Mar 18, 2011
mangogal
Mom to two refluxers. DS 4.5 years, on prevacid since 5 weeks. Trial wean this summer...fail. Intolerant of dairy and soy DD born Nov 2010. Currently on zegerid. Had stomach malrotation & surgery at 9 months. Avoiding dairy/soy with her while BFing.
I used the compounded prevacid with my older son. It always wore off the effectiveness after a few weeks. I eventually switched to solutabs and mixed them with water. With my baby, I asked to be put on solu tabs from the beginning. What dose are you on? I don't know anything about the formula as I BF. My kids are dairy/soy intolerant. maybe you need to try a hypoallergenic formula??? Or something with out lactose as that can be a trigger.
Mar 18, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
If you are going to go with a pharmacy compounded version then you are looking for 8.4% or high sodium bicarbonate and it MUST be left unflavored. Sounds like that is what your pharmacy is doing. Give it a shot... if things go down hill after 2 weeks you will know that it lost its effectiveness and then I would suggest you make your own compound with the supplies from Marci-Kids from their retail site www.refluxsolutions.com or ask to be changed to Zegrid presciption powder packs.
Mar 18, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I forgot to add that it should be at a concentraion of 2mg/ml. Which mean if you were to give 15 mg, then then liquid concentraion would be 7.5 ml. Does that make sense? If they are using the recipe from St. Louise, that is very likely what it is, but I would ask. What dosage are you giving and how many times a day?
Mar 18, 2011
charandhenrysmom
It is 8.4% sodium bicarbonate. So, we are on the right track there.

It says that the concentration is 3 mg/ml. So, would that be less concentrated?

We are giving him 2 ml two times a day. I'm sticking with the Enfamil AR formula now, only as to not change too many things at once. I'm going to give him through the weekend on the prevacid, and then I'm going to switch to a different formula.

I cannot tell you all how much I appreciate the advice you have provided me with thus far. I did not know anything about the empty stomach. I am hesitant to say this, but I feel like I'm already seeing improvement. Today he took three 6 ounce bottles! That's more than he's taken in months. And, it didn't take him 2 hours to finish the bottle either!

Thank you all for all of your help and support. I only wish I'd found you sooner!

Mar 18, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The preferred it to have it 2mg/ml so there is enough sodium bicarbonate in there to protect the PPI. Now that said, you might be just fine. I would follow the rules about the empty stomach though. If your concentration was 2mg/ml then you wouldnt have to worry about the empty stomach issue. When you are up for a refill, ask them to change the concentration for you. I will look for the info on the concentration for you and repost.

So happy to hear you are seeing improvements already. That is an AMAZING feeling, isnt it?? Crossing my fingers that the luck of the Irish stays with you!

Mar 18, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
This is from Dr. P at MARCI-Kids...

1.Make sure that your pharmacist does not put any kind of flavoring agent in the compound.

2.Make sure that the concentration is between 2 mg/mL and 4 mg/mL. This means that for every milliliter of suspension, you are giving between 2 and 4 milligrams of drug.

3.Ask that your pharmacist make the compound with 16.8% sodium bicarbonate if the total volume of each dose is less than 7 mL. If the total volume of each dose is greater than 7 mL, ask that your pharmacist make the compound with at least 8.4% sodium bicarbonate. We also do not recommend that you give less than 3.5 mL of a PPI suspension at any concentration. This is because doses smaller than 3.5 mL do not provide enough buffer to adequately protect the drug from being destroyed by the acid that is present in the stomach.

It is important that the pharmacy does not add flavoring to the compound as it will almost certainly cause it to lose its stability much more quickly.

Check with your
doctor first!