Posted By Posting
Jan 24, 2011
mctwins
Austin
11 months old, won't eat...please help
My 11 month old Noah has been a roller coast of eating since 3 months....We dream fed him for a while and he was growing. Now he's getting older and doesn't nap as much. He'll let me put the bottle in his mouth, but he won't suck. Or he won't let me put the bottle in. He won't eat from a spoon at all. Over the last few months he's losing weight and dropping in percentile. I do not know what to do. He's on zegerid (tried prevacid and prilosec), and he takes Erythromyacin for suspected delayed emptying. We tried periactin but that just made him hungry and upset and not eating. I don't know what to do. Like at all. I feel like I torture him so much by even giving him his meds. He just cries and gaggs. Does anybody have any thoughts? He sees a feeding specialist but they just suggested I only offer the bottle every 3 hours no matter what. Well....he just stopped eating all together then. Any ideas? I mean anything.
Jan 24, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
What is his dosage of Zegrid? Is he seeing a specialist. What have you been able to rule out thus far such as alleriges? Has he been scoped?
Jan 24, 2011
mctwins
Austin
~26 mg of zegerid. Its hard to know exactly because its hard to administer. He is on elecare and gets single grain rice from beechnut. So...his diet is pretty hypoallergenic. He has been on alimentum, neocate, and now elecare. He hasn't had allergy testing but I have not seen a difference even when he was on only elemental formula and nothing else. He has seen two pedi GI doctors and a feeding team. No good answers. They have said though...that things they find with a scope (hiatal hernia for example) they won't treat, so why do it.
Jan 24, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You are using a great PPI and a great formula. I dont know that there is anything you can change there. I guess if it were me I would insist on a scope. You need to know a cause.. and to be sure there is not something structually wrong. I would also consult with an ENT to insure it is not an adenoid/tonsil issue. Reflux did a real number on my son's adenoids and ears. Even after I got the reflux under control the adenoids stayed enlarged. I am hoping he is going to grow into them but likely they will have to go so he can swallow more comfortably. You might be dealing with the same thing. Ear tubes were short of a miracle for him but the scar tissue will always be there because I didnt do it sooner thanks to the acid getting into his ears. Big regret for me. You have nothing to loose of the scope and an ENT referal. You are going to be looking at a feeding tube if you cant get this turned around.
Jan 25, 2011
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
In addition to Karen's thoughts, two things off the top of my head:

Does he play with food (anything at all) if it is in front of him? Is he willing to put his hands on it and feel it and move his hands around, bringing them to his face at all? If so, then some find it helpful and many feeding therapists suggest, that a child be offered many opportunities throughout the day to just play with food, to squish it and move it around and, hopefully, even if by accident, get it into their mouths in order to gradually reduce fears around it (which, of course, would only work if it doesn't currently hurt to eat -- thus the importance of ruling out specific causes of pain or discomfort on a physical level, because you can't really get past fear or association with pain if you're still having it).

If he is unwilling or seems unable to play with food, then I would also suggest exploring Sensory Processing Disorder, which can cause children to react to food in their mouth as an experience of sensory overload, leading to aversion, gagging, choking and even aspiration. The best source of help with sensory processing issues is an Occupational Therapist who specializes in SPD. If you want more information about it, here is a link to a helpful website, and also one to a symptom checklist for infants and toddlers:

www.sensory-processing-disorder.com

www.sensory-processing-disorder.com/SPD-symptom-checklist-for-infants-and-toddlers.html

Jan 25, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You poor dear! While you wait for the Caracream Z you can try aluminum free Mylanta Cherry Supreme. It is very safe and can really help especially at night. Your pharmacist or David Stock can tell you the proper dose. Sometimes it can be hard to find but if you dont find it on the store shelf, just ask the pharmacist to order it in. Only takes a day and is less than 5 bucks. I hesitate to tell you this because I am not a doc but if you are super desperate you can actually mix a little liquid childrens benadryl with Malox 10 minutes before a feeding...and by little I mean no more than 1 ml Benadryl and 1 ml Malox. I had to do that a few times for Ryan for canker sores on this throat. It has a numbing effective and lessens any inflamation in the throat. My old ped was never a fan of that by the pediatric ER put him on a several times. Please ask your doc first though, ok.
Jan 25, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
oops.. put this in the wrong post... but I guess it could work for you too...
Check with your
doctor first!