Posted By Posting
Jan 22, 2011
lilbunnygirl
Prevacid OTC - how to?
My daughter was diagnosed with Reflux at 1 month and put on Zantac. It worked beautifully. She still spit up, but didn't seem to be in pain, slept well, was a wonderful happy baby. She slept on her tummy as it seemed to be the most comfortable for her. Around 5 months, she was taking such a tiny dosage still (the amount she'd been prescribed at 1 month) and didn't seem to spit up much at all anymore, so I thought maybe she'd outgrown it and took her off the Zantac with my doctor's blessing. 2 weeks later, her sleep started to not be as good as it was, but I didn't put 2 and 2 together, she was also teething, etc... Then at Thanksgiving she started to scream when I'd lay her down at night. I'd nurse her to sleep, lay her down in bed on her tummy and she'd start to scream. I'd pick her up, rock/bounce her (in an upright position) and eventually she'd start to settle down and fall asleep again. Lay her down, the screaming would start again. It would go on all night. She'd want to nurse sometimes through the night but would get to a point where she'd start, then arch her back and scream instead. She has never slept on her tummy again since Thanksgiving night, I have to lay her on her side. STILL, I didn't get that it was reflux. She had a runny nose and a cough that I attributed to teething then to a cold that everyone in my house had. But those things passed, the teeth came through and she still had a runny nose. She only coughed at night. Her voice started to sound hoarse. Then she started spitting up again and it smelled like puke, not like milk. Then I FINALLY got it and put her back on the Zantac It did exactly nothing. She still wakes every hour or two. From 8 pm to 6 am she is clearly in pain, spilling up, gassy, coughing, cryingm arching her back...she wants to "walk" a lot, like be held up in a walking position so she can walk, I think it must help her tummy sometimes. But some nights (like that night) she just screams and cries and nothing helps. I have the head of her bed elevated but she rolls around so much it doesn't help. I want to try Prevacid, it has been a miracle drug for so many of my friends whose babies had reflux. My doctor will not prescribe it, he says it is not approved for babies under the age of 1. He said stick with the Zantac of take Reglan, which NO I will not do. I am trying to see if I can find a local doctor who will prescribe it, but I'm being told by local friends it's hard, even the pediatric gastroenterologist here in town won't prescribe it according to one friend. So what do I do? I hav been reading online about somehow using Prevacid OTC with something called Buffer Babies...how do I do that? Or what would you suggest trying if I can't get help from a doctor? My poor baby is suffering, as is my 3 year old because he has to deal with the screaming all night as well as a short-tempered exhausted mommy who has not slept for more than 2 hours since Thanksgiving. Please help me!
Jan 22, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
How strange that your doc will not prescibe Prevacid. Where do you live. I totally support your quest to find a new doc. You need to find someone that will listen to you and be your partner.

You are definately fighting reflux and I support decision to try to avoid the reglan.

Bufferbabies/caracream allows you to take over the counter Prevacid. Priolosec or Zegrid and make it into a liquid version for kids. It was amazingly well. I highly recommend it. You can order it from www.refluxsolutions.org. I use the Caracream Z version. I mix it with Zegrid. Its the most effective and least expensive. If you want to talk to me about it. click on the contact a volunteer. Jen will give you my phone number.

Jan 22, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Sorry.. it is www.refluxsolutions.com not org. Side note... Zegrid was the first FDA approved PPI for babies under the age of 1 if that makes you feel better.
Jan 22, 2011
lilbunnygirl
Thank you! Can you walk me through the process, like in the most simple of terms. As in 1. Order Buffer Babies/Caracream/Chocobase whatever 2. Go to the store and buy Prevacid (are there different strengths/types? Is Zegrid available OTC as well?) 3. Do what then? Do I crush the pills? Is the BB a liquid that I mix the crushed pill with? What dosage should I give her & how often. She's 8 months & almost 19 lbs (her weight gain was great and has slowed A LOT since it got bad at Thanksgiving, she has only gained 9 ounces in nearly 2 months) Is Zegrid available by prescription as well (like if it's approved for babies under 1, maybe I could ask my doctor to prescribe it?) Or is it only OTC? Can I buy it at WalMart? Are there different strengths and kinds? If so, which one do I get? I live in Panama City, FL. I have been told that even the pediatric gastroenterologist here in town will not prescribe Prevacid to the under 1s. My friend is checking to see if her daughter was 1 yet or not when her pediatrician prescribed it, if not, I am going to try to make an appointment with that doctor on monday. I am so desperate to help my baby! Every day that she suffers I get more angry that I can't get her help. I already sent the email request to have a volunteer contact me by phone! Thanks so much for your response, I appreciate it.
Jan 22, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You bet. 1. Go to www.refluxsolutions.com 2. Click on Caracream. 3. Click on Caracream Z 3. Click on Order Some Today. 4. click here to download the Caracream Z Order Form. Fill it out and fax it. 5. Go to Walmart and buy Zegrid OTC. 6. When the caracream comes there will be step by step directions but basically you will cut open 14 capsule, add 100 ml of water and one packet of caracream. Shake it up. Give 7 ml of the solution once in the morning and 7 at night. Easy as that.
Jan 22, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
As far as getting a script for Zegrid... depends on your doc and how up to date they are with their training. They are all different.
Jan 23, 2011
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
Have they tried increasing the dosage of the zantac as she grows?
Jan 23, 2011
lilbunnygirl
Yes, like I say she was off the Zantac for 2 months and when she started it again it was at a much higher dosage commensurate with her current weight. Still doesn't help.
Jan 23, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Hi! I was just reading my post again.... I made an error. You will likely do 3.5 ml in the morning and 3.5 ml at night for a total of three. The reflux solutions lab aka MARCI-Kids will tell you what the dosage should be based on weight and age. What I listed was based on Ryans weight and age when we first started on the caracream. I found that with in 6 weeks I was able to cut that way back... in half in fact... because it was so much more effective than the PPI alone. Every child is different. David and Dr Phillips contact info is on the refluxsolutions site. They are both extremely helpful.
Jan 24, 2011
dcd
I also find it strange that your doc won't prescribe Prevacid. My daughter's pediatrician and pediatric GI are both on board with Prevacid and Buffer Babies for my refluxer.
Jan 24, 2011
lilbunnygirl
I know people find it odd, you're lucky to have a pediatrician who is current with the latest info on reflux. In my area I have found a lot of people whose doctors will not prescribe the Prevacid for under 1s and David at Reflux Solutions says he hears stories like mine every day, so it's not just me! I ordered CaraCream-Z today and mailed my check, so now I just have to wait. In the meantime, a friend is mailing me some Prevacid solutabs to try to being her some relief until the CaraCream arrives. Last night was so bad, I was crying along with her and promising her that mommy is going to make her tummy feel better one way or another this week.
Jan 25, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You poor dear! While you wait for the Caracream Z you can try aluminum free Mylanta Cherry Supreme. It is very safe and can really help especially at night. Your pharmacist or David Stock can tell you the proper dose. Sometimes it can be hard to find but if you dont find it on the store shelf, just ask the pharmacist to order it in. Only takes a day and is less than 5 bucks. I hesitate to tell you this because I am not a doc but if you are super desperate you can actually mix a little liquid childrens benadryl with Malox 10 minutes before a feeding...and by little I mean no more than 1 ml Benadryl and 1 ml Malox. I had to do that a few times for Ryan for canker sores on this throat. It has a numbing effective and lessens any inflamation in the throat. My old ped was never a fan of that by the pediatric ER put him on a several times. Please ask your doc first though, ok. Check with your doctor first!
Jan 26, 2011
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
When my son's GI doc switched him to Prilosec, he said to stay on the zantac for a few days until the prilosec kicked in. he thinks all the PPI's are about the same in effectiveness, check out consumer reports on them.
Jan 27, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I am not a GI doc just a mom that used a lot of trial and error and knows a lot of other people who have done the same. I firmly believe that not all PPIs are the same. Every person is different and their body responds differently. What is a wonder drug for one person wont do anything for someone else. Ryan was on 30 MG a day of Prevacid and it was doing nothing for him. I added Caracream to it, essentually turning it in to Zegrid, and he did a complete turn around in 10 days. I was able to drop him down to 15 mg and the talk of the feeding tube ended. My sister battled Reflux for years. She did Nexium, Priolosec and Prevacid. Nothing worked. Zegrid ended her issues in 5 days. My dad on the other hand only found relief with Prilosec. My friend can only find relief with Protonic. From a pure medical/chemistry stand point, they should be the same but they are not.
Check with your
doctor first!