Posted By Posting
Jan 14, 2011
Cranio Sacral Therapy - Lorenzomama???
Hi: I noticed you have posted on this topic in the past... Our daughter has dysphagia and reflux and I have told our doctors about her history in the past with blank stares resulting. I wanted to post it here and see if it makes any sense to you: Audrey was born 10 pounds one ounce and was very difficult to deliver. Our physician was able to rotate her and after spending a great deal of time pushing down on my abdomen, he was able to dislodge her shoulder from my pelvis and she was delivered without any further complications. She had a couple of choking episodes in the hospital the first couple of days because she had mucous throughout her digestive tract which was vacuumed out, and there were no problems after that. The next 10 days she was a dream baby, nursing and sleeping and growing without any problems. On day 10 she went to the children's hospital because of a possible infection in her sinus/tear duct and was given IV antibiotics and several tests for spreading infection, including a spinal tap. During the spinal tap she was crunched up into a ball and poked in the back several times with a needle. She screamed and arched uncontrollably during this test. So we spent 2 days in the hospital while she was kept on the IV antibiotics. After returning home, she soon became a different baby. She started pulling away and arching when it was time to nurse. Over the next several weeks her weight gain slowed and we began seeing doctors. She progressed down hill from that point in time and now only takes the bottle when she is sleeping. She has also started taking solids and is constantly arching and wiggling in her chair and is very uncomfortable. She has been trying to take thickened milk from a cup but coughs and chokes and gets raspy afterwards. My question is that is it reasonable that there may have been some disruption to her nerve structure or other physical injury that may have occurred during the delivery or later the spinal tap that may have disrupted her swallowing reflexes? I feel like I have proposed this theory to every doctor we have seen and no one wants to admit that this is a possibility... I am not looking to blame anyone for an injury I just want to get to the bottom of things to try to help my daughter so that we can start a treatment program that may actually help her. Nothing else has worked, not PPIs, not thickening, not elevating, not feeding therapy, nor any of the other medications, doctors, therapies, etc. Is cranio sacral therapy something that can help in a situation like this? If so, how do I find a specialist? Also, what is the treatment for dysphagia?? Are there specialists who treat dysphagia or is that treated by the pediatric gastroenterologist? THANKS!!!!!!!!!!!!!!!!!!!!!
Jan 17, 2011
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
The delivery you describe, as well as the later interventions, definitely lend themselves to disruptions to the nerve system and impingement of the flow of energy through her body that helps all the systems work smoothly. So Cranio-sacral therapy, Network Chiropractic Care and/or Chinese Medicine all have the potential to help her. We have used all three, having been blessed with finding outstanding practitioners of each. The Cranio-Sacral (we use biodynamic cranio-sacral) has helped a lot with Lorenzo's overall ability to relax in his body. The Network Chiropractic has helped with some of the nervous system troubles that have come up more recently -- which our practitioner believes (and I am inclined to agree) are likely the result of interference caused by the spinal tap he had when he was just a few days old. And the Chinese Medicine has been like a miracle for his immune system, his sensory processing challenges, and his overall well-being.

We ran into the same situation around physicians not wanting to talk about any possible impact of tests and interventions, presumably for fear of some kind of liability -- but all we wanted was to understand how to help our son now, we had no desire to finger point at anyone for causing problems. It was very frustrating. That is one of the things I appreciate about all the alternative practitioners Lorenzo sees -- none of them point a finger of judgment at western medicine, but they are all in alignment with my intuitive sense that a baby's body is profoundly affected by invasive procedures in ways that are simply not recognized by most traditional western practitioners.

Given the coughing, choking and raspy sounds after drinking thickened milk, I would also suggest that you consider seeing a pulmonologist, if you haven't already, as that can indicate aspiration. The approach we ultimately decided to take with regard to Lorenzo's health care is to seek the help of western medicine for crises and for diagnostics, and eastern/alternative medicine for treatment.

Somewhere I've got a link to a website to help people find alternative practitioners -- I'll try to find it and post it for you. ((HUGS)) to you -- it sounds like you and your LO have been through a lot...

Check with your
doctor first!