Posted By Posting
Jan 13, 2011
ljoy_22
looking for input: is this as good as it gets?
Hi, I am posting for the first time since my son was born. He has reflux and started on Zantac at 2 months and after about a week of being on 1 mL, I saw a drastic improvement in his eating habits, fussing, and sleeping. Just before 3 months, he started getting symptoms again. I asked to get his dose increased since he had a growth spurt and he is now on 2 mL of Zantac. Some days, things are great. He will go to sleep when I lay him down, he fusses very little, and he eats well (although often, he usually eats every 1-2 hours during the day). Other days are another story. He fusses when I'm not holding him constantly. He thrashes or screams immediately after I lay him down to sleep and continues until I pick him up. He wakes up 10 minutes after I lay him down if he does manage to get to sleep when I'm holding him. He breastfeeds poorly (lots of on and off and starting/ stopping). Is this is as good as it gets with a baby with reflux? Or should I try to figure out more what upsets him/ what else can be done? He hasn't been to a pediatric GI at all yet and we definitely haven't tried everything. I did do a dairy elimination diet before we went on Zantac at all to see if it helped, but found that it didn't. Chocolate is a MAJOR problem (causes non-stop crying 48 hours after I eat it). Other than that I haven't done a total elimination diet because it's so hard to pinpoint what, if anything is the problem and I'm not sure if I'm just expecting too much? A week ago, we saw a doctor other than his regular doctor and she did give us a referral for a GI specialist, should we decide to go that route. She also had concerns with his breathing (said it sounds tight/ wheezy), but she said an ENT would probably say that's just how babies sound this early on. She was also concerned with his BM's since he will go as long as a week without one. (Have been having more lately, but still usually a couple days between). So, I am interested in any and all input that might be helpful! I have some ideas (and have tried them) from when my daughter (now 2 1/2) had reflux. She was a much more difficult baby, though and I had an awful time with finding a doctor who would even take her issues seriously. She was not put on Zantac until she was 5 months old and then it never completely helped her. We were also not referred to see a GI specialist until she was almost 2 and her issues were improving, so we never did get to the "bottom" of her issues. She was a horrible sleeper at night and kept me up multiple times a night for hours until she was 2. My son is a drastically better sleeper, but compared to my friend's non-reflux babies, he is still pretty challenging. I don't know what, if anything, to do next and am just trying to make life the best it can be with a baby with reflux. Thanks much in advance!!!
Jan 14, 2011
dcd
No, I don't think this is as good as it gets. I think you still have several options to try...

First, Zantac is an H2Blocker and in many cases the body will develop a tolerance to it and it will stop working. I would definitely look into a PPI (Proton Pump Inhibitor) like Prevacid for your baby. PPIs are considered "the gold standard" in treatment for reflux. Do your research and make sure that you give him a high enough dosage and that you time the administration correctly (on an empty stomach, 1 hr. before a meal - and you can't give a PPI and an H2Blocker within a few hours of each other or they will cancel out).

Second, I definitely think you should pursue an appointment with a pediatric GI. A specialist will know what to look for and should be able to give you feedback that a regular pediatrition may not. Often pediatritions don't know much about infant reflux so they just conclude "he'll grow out of it" and do nothing...meanwhile your baby and your entire family suffer.

Good luck!!

Jan 15, 2011
bellysmom
need to find GI ASAP
Hi and sorry to hear your troubles. This is a roller coaster that you must get ready for the ride. You said you have been through i before with your daughter. Is there anything similiar with your son as opposed to your daughter instead of different. Also breathing issues can be caused by aspiration of breastmilk meds etc. You need a pulmonologist and not an ENT. There are some other things screaming loudly at me as i read your post. BMS are way too infrequent. May want to look into emptying issues as this causes infrequent bms and may be why he is so uncomfortable. He is full of poopie. Also this may be why he latches and unlatches often. If he is intolerant to soy dairy etc he may in turn not latch on because little ones learn fast what causes pain. May want to look into a formula trial May take a while but may help. Feel free to get back to me I have a six year old and have been through both sides of breastfed and formula and major issues. My breastfed baby is now 12 but have been there. Can email me at mikeleeland@comcast.net Also where r u people have lots of resources here as i have been on for a short time and people are here to help.
Jan 18, 2011
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
Just wanted to second the opinion that he could have problems with dairy or soy. You said you already tried dairy, so I would try soy protein next. Turns out my youngest son had problems with soy, but not dairy. I would also see an allergist, as he may have asthma worsening the reflux. I have one son with asthma and reflux, and one with just reflux.
Feb 03, 2011
joy
Dd (7) w/ SPD (sensory processing disorder), hypotonia, GERD, since birth. Previous PT, OT, Early Intervention, special ed, feeding clinic, feeding therapy from 2-3. Reflux meds since 2. Overcame severe feeding challenges, dysphagia, oral aversions, anxiety disorder. Weaned from reflux meds @ 6 1/2 yrs. A true miracle!! Ds (4) Prevacid 30mg, split am/pm; upcoming endoscopy. Ds (9 mos.), nursing, pureed foods, Zantac 1.2 mL 2x/day.
It's been a couple of years since I've been on Pager but I saw your post and just wanted to give you some encouragement. No, this isn't as good as it gets, it can get a whole lot better. It may take some hard work and it may not be quick, but in the end it is very much worth it. Seeing GI is probably a good idea. The right medicine & dose is important too. My second child cried for an entire year on Zantac, outgrowing his dose about every 4-5 weeks, then we finally got him on Prevacid and he was happy for the first time ever and started eating. I was so glad when his pain was controlled enough for him to be happy and play like babies should do. With my first child, it took a long time to resolve to a manageable level- 6 1/2 years before she was off meds, but doing well now. I know it's hard in the moment and it can feel like it will be forever, but there's hope.
Check with your
doctor first!