Posted By Posting
Jan 04, 2011
1sttimemom
New here
Hi everyone!! My name is Katherine, I only have one child... and boy has it been a roller coaster ride with him. Charles was born on July 26, 2010. From the day he was born he has had very noisy breathing, it almost sounds like static on the tv. When we asked about it in the hospital they said "all babies do that he will grow out of it". Little did I know at that time that would be something I would hear very often over the next few months. His pcp (we use our family doctor instead of a ped.) said that she did not feel that his breathing was normal. So for the first week we were in the office every other day to get something checked, when he was 11 days old we were rushed to the hospital by ambulance because he started aspirating his food. They did all kinds of tests in the er and ended up admitting him. He stayed over night, then was sent home the next day with possible reflux, and an unknown breathing condition (helpful right?). We were also sent home with Zantac and an inhaler in case of trouble breathing. So we waited for almost 2 months to see a gi doctor who basically said there is nothing wrong with him, but to satisfy us and his pcp she would put him on Prevacid (sp?) instead of the Zantac. She also orderd an upper gi scan and a milk study along with a ph probe test. When it came time for the ph probe they told us we had to stop his medications a week prior to the test, at which time he had already begun to loose weight (we had been doing daily weight checks for about 2 weeks, and having a visit with his pcp twice a week since he was born). We were all (his father, pcp, and myself) very hesitant to stop the medication with how little he was eating already, but we decided he needed the test so we were going to try it. Well he ended up in the er due to dehydration and losing weight, so the test was canceled. They ended up telling us that they could do a impedance probe test instead, which would give more information about what was going on and he would not have to stop his medication (can someone explain why they didn't do this one to begin with). We did that and to our surprise (sarcastic obviously) he has extremely bad acid reflux. He has now been on every diffrent combination of acid reflux medication (ok I don't know about every combination). He is on Zantac and Nexium both twice a day. We just had our third hospital stay because of him losing weight. They did an endoscopy and found out he is also extremely allergic to something (the thought is milk and or soy) and is now on a hypoallergenic formula. We also waited for 3 and a half months to see the pulmonologist, who just said all of his breathing issues were do to his acid reflux and until that was under control the breathing would not get better and there was nothing they could do to help us. I really don't see much improvement with all of the things that are being done, but at least now his pc and his gi doctor (a different one then we had in the beginning) are on the same page. Well thanks for letting me get that out, and thank you if you have read this entire thing.
Jan 05, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
So sorry you are having such a terrible time! A couple of questions first... 1. How long has he been on Hypoallegenic formula and what kind is it. 2. What time of day do you administer the Zantac and what time of day to you administer the Nexium. Are you giving it to him on an empty stomach?
Jan 05, 2011
1sttimemom
Thanks. He is getting Elecare right now, but they are talking about switching it again. He started on that about a week ago. He gets his Zantac and Nexium at the same time (we have tried to space it out through out the day and he did not handle that well at all). He gets them both at 8 am (right before the first bottle) and 8 pm (right before laying down for bed). They are given on an empty stomach.
Jan 06, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You absolutely can not give Nexium and Zantac at the same time. They are canceling one another out. They have to be seperated by at least 2 hours or neither one of them can enter into his system. Give the Nexium before the morning bottle and the last bottle of the day. Give the Zantac at the late morning and afternoon bottle. You should only have to give nexium and zantac both for a 2 weeks while the Nexium on boards.

If it were me I would leave him on Elecare for at least 2 more weeks. A one week trial is not long enough to know if it is helping or not.

Consider contacting Dr. Phillips or David at Reflux Solutions lab and ordering Buffer Babies to mix with Nexium to ensure the Nexium is safely being deliver into his system. Give that a full two weeks to see the results.

Jan 06, 2011
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
PS.. I know this is a super long post but is a packed full of really good information. It is a culmination of a bunch of posts tied into one. I keep meaning to put something similar together here but I havent got to it yet. Education is the key to success here. Learn all that you can and be vigilant. - Karen http://www.infantreflux.org/forum/forum_posts.asp?TID=853
Jan 06, 2011
1sttimemom
Thank you for all of that information. Charles was on just the Nexium at the time of the impedance probe, and had been for a few weeks. After the doctors got the results form that is when they told us he needed two medications, that is when he went back on the Zantac. I do have to wonder why they told us to give both at the same time, also when he was in the hospital the nurses said they always give them at the same time. You would think they would know. We are going to try spacing them out again and see how that goes. I have already read a bunch from the link you sent to me. I appreciate all of the information you have shared with me. Thanks again-- Katherine
Check with your
doctor first!