Posted By Posting
Dec 26, 2010
steviesmom
New Here Bad Prevacid Reaction Too
My daughter is 3 months old and was diagnosed with acid reflux following a ER visit for spitting up blood. She received a Barium Swallow. No results on why she may have spit up blood, but was diagnosed with reflux. The ped. started her on zantac. Trying to get her to take it was a battle in its self even flavored. I never knew how much she actually swallowed. I started putting it in her bottles. She spits up with every bottle, but the two with the zantac were even worse. She would projectile vomit and even though they told me not to change her formula from enfamil gentlease I did to Similac Alimentum. The only thing that improved from the swap was her mood. I could actually sit her down in the swing for like ten to twenty minutes with no crying. The spit up seemed better for a couple of days, but started back. I called the ped AGAIN about the spit up with the Zantac. (Note even when I did not put the zantac in the bottle she would projectile vomit worse). I felt like the Zantac made her worse. She will spit up and cry in pain or I can hear her repeatedly swallowing and making these horrible faces. The ped brought her in to make sure there was nothing else going on: ear infection ect. Nothing was going on so he put her on Prevacid solutabs 15mg once a day. We give this to her at night. Thirty minutes after receiving the med she starts screaming and drawing up in pain. She has some colic but this is far worse and lasting like 5 hours. She would wake up every 45 minutes crying and I could not get her to stop when usually I can comfort her. Let me also add that I have one of the rare comfort eaters. She still eats every two hours while awake and eats 4 to 5 ounces at a time. So it has been very hard for me because all I hear is well she is gaining weight it must not be that bad. She is in the 90 to 95 percentile. I know some wish their kids would eat, but mine eats so much I think it may make it worse. Back to the prevacid. So I have not given her prevacid or zantac. Right now she is on nothing and is the same as when she was. I know I did not give the prevacid time to work, but she would scream with it and did not scream when I did not give it to her. I have been giving her colic calm some and it seems to help sometimes maybe I think. I really do not know anymore. The ped also suggested to put cereal in every bottle. Did this a few times she still spit up the same constant in between bottles. So I stopped because I did not want to make her constipated. Calling the doc tomorrow. Anyone else have any of these problems? Any suggestions on what to ask the ped?
Dec 27, 2010
dcd
The Prevacid solutabs have milk in them. I am wondering if your daughter might have a milk allergy, based on the fact that she has improved on the Alimentum (and the spitting up blood). MSPI is not that uncommon in babies and the symptoms look a lot like reflux - some kids (like my daughter) have both. There is very little milk in the solutabs, but very sensitive kids will react to even that small amount. Have you considered trying Neocate? It made a WORLD of difference for my daughter. You may also ask your pedi if he/she is familiar with the Marci-Kids PPI dosing guidelines and their Buffer Babies or Caracream products. (Marci-Kids = Midwest Acid Reflux Childrens Institute at the University of Missouri...www.marci-kids.com, www.refluxsolutions.com.) We use Buffer Babies to administer the Prevacid to my daughter - we buy the Prevacid capsules OTC, then break them open and mix the beads with the Buffer Babies compound. This allows us to give her the Prevacid without regard to mealtimes, which is a huge help. (Did your pedi tell you that PPIs need to be administered 30 mins to 1 hr before a meal, and that H2 Blockers, like Zantac, can cancel out the PPI if the two are given too closely together?)

My opinion - I would forget about Zantac. The body can develop a tolerate to H2 Blockers and they will stop working. I have never known anyone who's had success with Zantac long-term. If you are dealing with reflux, PPIs are the gold standard in treatment, thought it make take a little tweaking to get the dosing/timing worked out. (Marci-Kids and many doctors say that babies metabolize PPIs much faster than adults and prescribe two or even three times the recommended dose - some parents have not had success in getting the reflux under control until they put their baby on the higher dose. There are some moms on here that could tell you more about their experience with that.)

But I would also look into the possibility of a milk allergy more. With my daughter we thought we were dealing with reflux only for 7 months...we kept treating it in different ways but nothing ever helped. When we finally discovered the milk allergy and switched her to Neocate (after trying seven different OTC formulas), she was a new baby. It was really amazing and I wish we would've known sooner. (We saw minimal improvement on Nutramigen and Alimentum, more improvement on Alimentum Ready-to-Feed, and a 100% improvement on Neocate.)

Supposedly, most babies with MSPI can tolerate Alimentum or Nutramigen. But the very sensitive babies need an elemental formula like Neocate or Elecare that is completely broken down. Something to keep in mind. Good luck to you and keep us updated. I hope your little girl starts feeling better soon.

ps. Has she spit up blood any more since your trip to the ER? I would keep pushing for an explanation or more tests if so.

Dec 27, 2010
steviesmom
Thanks for all the info. I found out here about the solutabs having milk in them. I do not know if she has a true milk allergy. She was on Enfamil Gentlease until Thanksgiving night. I changed that night because I just could not take her spitting up and screaming and was praying that the alimentum would help, but it did not help the spit up at all. So I am just not sure about the milk allergy. She had eczema for a while and I thought milk allergy, but the ped said it was not. I called the ped today and of course with the holidays he is out of town until Thurs., but they are going to get the ball rolling on a ped GI appointment. I guess it takes awhile to get an appointment. I am going to ask about the Neocate, Buffer Babies and Caracream. She only spit up blood that one time. Of course I worry everytime she wakes up crying I am going to look at her in the bed and she will be covered in blood though. Thank you again so much for responding. I feel like I am sooo crazy sometimes. I have read on here that it may take awhile to find the right treatment for your baby.. .. I can not wait for that day for some relief for my baby.
Dec 28, 2010
dcd
Sometimes the only thing that will help with the actual spit up is time. Some babies just have immature systems. In the meantime, you do all you can to minimize any pain. So I would judge the results based more on how comfortable she seems vs. how often she spits up. Since switching to the Alimentum have you seen an improvement in the crying and night waking? Does she seem more comfortable, less fidgety, more capable of resting/being set down? If so, if it were me, I would take that as a cue that she has issues digesting milk, whether it's a true allergy or not.

If you HAVE seen improvement on Alimentum but things are still bad, I would encourage you to do a trial of Neocate or Elecare. (Neocate will send you a free sample can and some allergists, GIs, and pedis also stock samples. You might call and ask the GI office to which you are being referred - they may let you have some samples to try while you're waiting to get in for the appointment.) With my daughter we saw improvement with both Nutramigen and Alimentum, but with Neocate it was a complete turnaround.

If you HAVE NOT seen an improvement in her general comfort on Alimentum, or if you try Neocate and there is no difference, I would focus on reflux as the source of her pain and work with your GI to get the acid under control. Remember that even when you do get the acid under control she may still spit up. PPIs take the acid out of the spit up so that it does not cause pain or damage the esophagus - they don't stop the spit up. That may just take some time.

Dec 28, 2010
jlh9s
We were one of those rare families that had better luck with the Prevacid Solutabs (15 mg) administered once a day rather than the higher and multiple doses of Buffer Babies Prevacid. Can't explain why, but since we have been doing so well on Solutabs, we aren't changing anything. We previously were on a H2 blocker (Pepcid) which helped only marginally.

We have seen gradually increasing improvement, too, the longer we are on the Solutabs. It's now been about a month and our good days are very good, and our bad days tend to be more cranky and lots of spit-ups, but not as much refusal to eat, which is very comforting. I know you said that your little one seems to be over-eating, which I've read can be a consequence of them trying to soothe the irritation from the acid. She is also sleeping a lot better too.

Our baby is only 3.5 months old, so we haven't yet hit the "peak" of the reflux. Still we are feeling better on the current medication that we can ride this out.
Dec 28, 2010
steviesmom
Thank you both for the helpful information. We go to the GI in two weeks.
Check with your
doctor first!