Posted By Posting
Dec 20, 2010
momof2girls
looking 4 input
I'm sorta new here... after reading many of the posts my heart goes out to many of the children and their parents in worse situations than my daughter... but I'm hoping to get some input...ideas...suggestions... anything??!! She was born a healthy 7.6 and exclusively bottle fed. After coming home, she began what so many others on this site have talked about... gagging, throwing up (out of nose too), refusing to eat, curling up in pain, weight loss, the smell of stomach bile in her mouth constantly etc. Took her to the ped. but was made to feel like CrAzY parents. By her 1 month checkup she had dropped to the 13th percentile and was prescribed Zantac 2x a day. Her formula was also changed from Similac Advance to soy (stopped her up and I didn't have any reason to believe she was lactose intolerant) to Alimentum (surprisingly made her vomit more violently), back to Similac Advance, then to Similac RS (has rice starch added), then back to Similac Advance. We noticed little to no improvement on Zantac or with formula changes. In fact, she does best on plain ol' Similac Advance. We promptly changed Peds. after being made to feel CrAzY one to many times!! The new ped. WAS concerned about her weight loss, dehydration, and refusal to eat so she increased her Zantac and wanted to try it for 1 week...keep her on Similac Advance..then access and make a game plan. Within a few days, my daughter was only eating about 9 ounces in 24 hours (she usually was eating about 12)!!! She was admitted to Vanderbilt Children's Hospital in Nashville were several tests were given and the following issues were ruled out: protein allergy, abnormal swallowing, abnormal palette, abnormal latching on, abnormal sucking, thyroid issues, anemia, kidney issues, liver issues, unbalanced electrolytes. During our hospital stay, she was eating well from the Similac Advance newborn nursettes with latex style nipples. Upon discharge, Prevacid was added. At her 2 month checkup she was 14th percentile but symptoms seemed to be better (specifically no more vomiting or curling in pain)... still will eat about 12-14 ounces. So...there's my story and here's my questions: Can someone tell me the difference between Prevacid and Zantac?? I've read on here that your body can get used to Zantac and it will become not as effective??? Our ped. told us that it is ideal to give her the meds and wait 20-30 mins. before feeding to make the medicine most effective. It's rare I want to miss the opportunity that she might eat and actually hold her off that long. By doing this, am I decreasing the effectiveness of her meds??? What other meds besides Prevacid and Zantac are out there for young infants??? (I've seen post about caracream, gripe water etc. and don't know what all of that is?????) At any one feeding, we're lucky if my daughter will take 2 ounces. Generally, she only eats 1 ounce every 2-3 hours. Refuses to eat more.... The most she eats in any one day is 16 ounces but that was only once (felt like throwing a victory party!!). She usually eats between 12-14 ounces a day between 10-12 feedings. Can anyone...in all your reflux experience, think of a reason her stomach could only hold a max. of 2 ounces per feeding??? Is there a way I can increase her stomach capacity even though she is refusing to eat more? Are there any tests that can be given to see why she cannot eat more??? Any and all suggestion are welcome and thank you in advance... Amanda
Dec 20, 2010
dcd
Has anyone talked to you about delayed gastric emptying?
Dec 20, 2010
momof2girls
No. Not at all.... what is it??? While at Vanderbilt, I did mention, "Could her stomach be very slow to empty?", but was dismissed quickly.
Dec 20, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Caracream is essentially flavored baking soda.. kind of. You mix it with Prevacid, Zegrid or Priolosec. It protects the meds and turns it from a delayed release drug to an immediate release drug. You can give it anytime... with out regard to a feeding because the sodium bicarbonate protects it. It the THE silver bullet that made my son do a complete 180 degree turn. Their education site -www.marci-kids.com is down right now but their order site is up. It is www.refluxsolutions.com. Try it... it certainly cant hurt. Once you get the pain taken care of you can start slowly increase the amount of the feeds and sceduling them further apart. It will be a slow process as her stomach has shrunk. Think about your own stomache after you have had the flu for a couple of days. It doesnt take much to feel full. Your daughter has had small amounts since birth so it will take awhile to stretch it out.
Dec 20, 2010
bellysmom
i agree with dcd about having a "milk scan" done to look for delayed emptying. Some other tests are having a ph probe, swallow study And upper gi. Sorry for your struggles. You have learned fast though that as parents we must be warriors and put up the good fight for our baies. I have been doing it for six years and remember to always listen to your gut.
Dec 20, 2010
momof2girls
I just got off the phone with her ped. who said she's just not sure what else to do??? I have an appt. on Weds. I plan on mentioning the milk scan and other suggestions listed here.... Does anyone know what the treatments are for delayed emptying?????
Dec 20, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
If she has DGE they will likely start with erythomycin and if that does not work then they will try Reglan. Ryan had DGE too but I chose not to treat it with medication. I went the route of Caracream and Miralax to keep her bowels moving (Mylanta Cherry Supreme before he was old enough for Miralax) That combo worked great for him. Once the pain was controled with the Caracream and the bowels were moving I could slowely increase his intake a half an ounce at a time. Time too care of the DGE issue. Do you have Early Intervention on board with you or any type of feeding therapist? 1 to 2 oz at a time and 12 to 14 oz a day isnt going to cut it for long.

There is another mom on this board from the Nashville area. I am drawing a blank right now on who it is though. Hopefully they will chime in with a pediatrician recommendation.

Dec 21, 2010
patesmom
The difference between Zantac and Prevacid is Zantac reduces acid in the stomach while Prevacid stops it from forming. Prevacid was a very good medicine for us, it will take a week or so to get in the blood stream good. The stomach will then need to heal and in a few weeks, I was able to tell a difference. My son also only took very few ounces a day. One day he only took 3 oz. This is very frustrating. I've had to force feed him with a syringe with me crying more than he was. Remember your baby's stomach is only as big as her fist. My son's GERD had to be healed before he begin eating more. It was a very long process, a couple of years to be honest. He is still not a big eater. I took him to a feeding psychologist, she is the one who told me that it hurt him so bad to eat that in his head he knew this and he would only eat a little to knock his hunger pain out. As time went on and his GERD healed, he learned that it would not hurt him to eat. You are not crazy. I have been there and GERD makes you think you are crazy, but it is real and it is horrible to see your child like this. I hope the Prevacid will start working soon. A swallow study would show if your baby's gastrointestinal tract is working right - from the time the milk goes into her mouth until is comes out the other end. A Pediatric Gastroenterolgist is also very beneficial if you are not seeing one already. Good luck!
Check with your
doctor first!