Posted By Posting
Dec 18, 2010
Still not getting anywhere - please help!!!
We have been at this now for 4+ months and we have not gotten anywhere!!! Audrey still will not take her bottle while awake and has even been giving up sleep feeding now (possibly due to a cold she has had the past 2 weeks). We have been working all weekend to keep her hydrated with a syringe. I am at the end of my rope. I don't think her pain is under control and our Pediatric GI just wants to switch up the PPIs and possibly add Cerefate and then try anti-depressant therapy... we are completely bewildered. She still tries from time to time to take a little from a bottle or to eat a little solids but always gets turned off right away because she must be associating with pain. I feel like we are days away from IV fluids and feeding tubes and just don't know where to go from here. We have seen so many doctors and therapists and had an endoscopy and are no closer to an answer while my little daughter is losing weight and probably developing a life-long aversion to eating because we are always putting medicine in her mouth or trying to feed her. What can we do next??? We are just so confused and lost :(
Dec 19, 2010
so sorry to hear your struggles. My heart goes out to audrey. I don't know your whole story but as i read this the first thing that comes to mind is that she is pain due to a possible bowel backup. It sounds like you are on the way to the er with a very dehydrated little one. this may actually be what you needto have someone hear your desperation. Your gi doesnt seem to attuned to what is going on. They can take an xray and see if she has a lot of "poopie" This can actually lead to something called intasuception(not sure on the spelling) This is something u don't want. Audrey is telling you loud and clear somethin needs to change. They can rule out some things right off te bat and at least get her some well needed hydration.
Dec 19, 2010
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you tried Buffer Babies/Caracream from Reflux Solutions lab, aka Marci-kids? At this point, what do you have to loose to try it if you have not done so already?

On the dehydration... I did the syringe thing one too many times. It is not worth it. Take her into the ER and get her IV fluids... and if this continues consider an NG tube till you can figure this out. The syringe feeds are a slippery slope and really enforces the feeding adversions not to mention it can do a real number on your own mental health.

Remind me of the part of the country you live...

Check with your
doctor first!