Posted By Posting
Dec 17, 2010
kenneyhl
My son Levi is 13 weeks old. We figured out he has reflux @ 2 weeks. We have tried 4 different formuls (Currently Neocate) and he is taking Pepcid, Prevacid, Mylanta, Grip Water
good news, bad news
Good new is my baby got his first tooth!!!! Bad news in he is allergic to eggs and ammoxacilin, was hospitalized for RSV and we found out he has a PFO & a heart arrythimia (along with everything else). Topping it all off, he has been officially diagnosed with DiGeorge Syndrome. Ugh.. my poor baby cant catch a break!!!
Dec 19, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
(((HUGS))) How in the world did they miss the heart issues all this time!!!!!

I think I might know another family who has a child with that syndrome if they are still visiting another board I'm on. Do you want me to try to find them for you?

Dec 19, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
(((HUGS))) How in the world did they miss the heart issues all this time!!!!!

I think I might know another family who has a child with that syndrome if they are still visiting another board I'm on. Do you want me to try to find them for you?

Dec 20, 2010
dcd
Heather, I'm sorry. I know you wish you could take all this on for him. You are doing a great job of staying on top of everything. The tooth is so exciting! Even all the challenges can't take away from how proud we feel over our little ones' "firsts"!
Check with your
doctor first!