Posted By Posting
Dec 13, 2010
tinytanner
Allergies to Food
Did anyone elses child with MSPI have allergies to other foods that were introduced. I think mine has now reacted to Oat Cereal and Prunes. Both items gave him back his little eczema rash on his check (always the same spot) and his diapers have been really runny and mucusy. He also has a cold right now but I don't think his cold is causing eczema. (Forgive my terrible spelling!) I am just wondering if I really should ask for an allergy test since I am a little worried about a wheat allergy and I know theres wheat in everything. I don't want to wait to find out until he's a bit older and I give him toast and he gets a really bad reaction!
Dec 13, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
What is stopping you from doing allergy testing with a pediatric allergist. Its and easy process and seems to be in order.
Dec 14, 2010
dcd
Yes.

My daughter was miserable with milk allergy until we switched her to Neocate. Two rounds of skin prick allergy testing (very quick & easy test) showed she is allergic to many foods and environmentals. Doctors said that the tests are not 100% accurate though (you use the results as more of a guide) and the only way to know for sure is to do controlled food trials.

That's what we're doing now. For us the process is very frustrating because it hasn't gone so well. She's fine with green beans, carrots, rice cereal, apples, Happy Baby apple puffs, and avocado. Sweet potatoes seemed ok at first but then she started reacting after a couple days. Pork and chicken did not go well.

My daughter's reactions seem to be mostly non-IGE allergies (more intolerances, I guess) with delayed, GI-type symptoms.

For example, on Saturday we gave her chicken for the first time at lunch. She ate it fine. That afternoon, she spit up twice, but it was very small amounts and just a clear liquid - like saliva. She rarely spits up any more so this is unusual but not unheard of. We think she might have a tooth coming it so we hoped it was just the result of producing/swallowing more saliva. She slept fine Saturday night.

Sunday morning she projectile spit up - again clear, and a very small amount. But I got a knot in my stomach because she never projectiles any more...she's maybe done it twice since we took her off milk 3 months ago. We gave her chicken again at lunch. That night, her sleep was so disturbed she was fitful every hour. Crying in her sleep, thrashing around...just like the "good old days." Sigh.

We didn't give her chicken yesterday and she was back to sleeping normally last night. I still have so much to learn about food allergies/intolerances, but a good resource is the Kids with Food Allergies website/support forums. Talking to moms on there, I've learned that delayed reactions are not uncommon, and that with some kids, like mine, the only symptom may be the night waking and pain.

I still don't really understand why the food wouldn't start bothering her until after two exposures and a day later. And I don't understand why she would seem fine all day but it's like a light switch kicks on at night. But it's pretty clear when the food doesn't agree with her.

If you have concerns I would do the testing because it can give you some insight. I would definitely try to find a good allergist (I've learned they can be hard to come by - I still don't have a good one!) that can help you come up with a plan, b/c this stuff is complicated!

Dec 14, 2010
dcd
ps. I should also mention that we had to kind of get to a "baseline" before we started trialing foods. She has been stable on Neocate and rice cereal only and her reflux seems to be controlled with Prevacid. She got tubes in her ears and has not had any more ear infections since. So when we introduce new things (always single-ingredient, home prepared versions) we know they are probably responsible for any reactions. Plus, by now I've gotten pretty good at distinguishing the "nighttime stomach pain cry" from any other cries.
Dec 14, 2010
tinytanner
Well, I guess nothing is stopping us from doing the testing other then our Pedi and the Pedi GI never mentioned it. He goes in for a well visit this friday and I am going to talk to the dr about the testing since we seem to be starting to have a problem again. I haven't given him any prunes since Saterday and his faced cleared up but his diapers are still very mucusy. That could be due to his cold but he has also been spitting up two three times a day recently but just lots of clear spit like liquid. I know it's due to his cold also cause it's not connected to a feeding and sometimes it'll have snot like mucus in it. Poor thing. Sick twice already and it's only Dec. I think we will be starting a probiotic if we get meds again. I better make some notes for that appt.
Dec 18, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
My son, now almost 5, has the traditional food allergies to dairy, egg, & peanuts. These were found by scratch tests/and RAST blood tests. He used to projectile vomit his formula as a baby. Over time, we found he is also delayed allergic to many many other foods. He has an eosinophilic condition that causes white blood cells to line his esophagus in reaction to foods. While considered rare, it is something to consider with unrelenting reflux, plus many food allergies/intolerances. As far as symptoms, he had everything from rashes on his face or butt, spitting up, crying way more than a baby should, to sleep disturbances. The ONLY way to check for this disorder is an endoscope with biopsy. The child has to be eating the problem foods (not the deadly allergy foods obviously) and has to be treated with an appropriate reflux medication for something like 8 weeks beforehand. Just for the record, my son is only on Neocate Jr. plus apples/sweet potatoes.
Check with your
doctor first!