Posted By Posting
Dec 07, 2010
ethansmommy
Is it really reflux? Advice Needed!
Hello All...I'm new here.... my 15mo DS has recently been seen my a pediatric GI specialist b/c he is refusing all solids. He has NEVER eaten solids, we started around 6 months offering and he refused and would gag on them so we stopped. At 9 months we tried again with offering and he still refused/gagged. We have been seeing a ST for feeding therapy and have gotten no where. He still gags and refuses any type of food, juice, etc. (He is EBF and will drink water) He rarely spits up and is generally a happy baby and always has been. The GI doc is recommending a Upper GI endoscopy with esophogeal biopsies and pancreatic stimulus tests to r/o reflux, allergies and enzyme deficiencies (sp). I'm really hesitant to do this invasive procedure when there could be other not so invasive ones to do. Any advice or suggestions? Does this really sound like reflux or a food aversion? It's very frustrating and we aren't getting anywhere or any answers. Do you think I should see if we can treat for reflux, see if there is improvement or not and go from there? I just don't know and I don't want to put my DS through it if it is going to come up negative and/or traumatize him. HELP!! Thanks!
Dec 07, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
With that kind of gagging... yes I would start digging into this with some testing. The upper GI is really on big deal. Sounds scarey and invasive, but it is not. It wont tramatize him. I would be surprised if you will find reflux but you might find something else. Have you seen an ENT. My niece had a killer gag reflux too. They took her adenoids out and the problem was solved. I assume the Speach Ther. is doing oral sensory stuff with him??
Dec 07, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
My son wasn't able to eat solids and was EBF until he was 2 years old, and I assumed that it had to do with his reflux, but we have recently discovered that his feeding issues (as well as numerous other issues he has dealt with) were/are related to Sensory Processing Disorder. Basically, he was reacting to the textures, tastes and temperatures of foods as though they were an assault on his system -- essentially creating a fight or flight response to food.

Here is a link to a website with more information about SPD. Take a look at the "Helping Baby Sleep" section for the Infant/Toddler Symptom checklist to see if anything rings a bell. If so, I'd be happy to discuss what I've learned/our experience with you. www.sensory-processing-disorder.com

Dec 08, 2010
ethansmommy
Yes, we are working on oral sensory with the ST mostly taste aversion stuff. DS really doesn't seem to have a problem with different textures, he loves having his teeth brushed and will put practically anything that isn't food in his mouth to chew on (including diff temperatures). We have not seen an ENT but I'm thinking I want to ask my primary care to refer us before we do any procedures like the endoscopy. I checked out the Sensory Processing website and DS seems to have very few of the signs except in the Oral Input section. I just don't know what route to take next with him cause I don't want to subject him to several different tests and not get any answers from them.
Dec 08, 2010
ethansmommy
I meant only has a few signs from the Oral Input section**
Dec 08, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Is he having any issues aside from the gagging on/refusing solids -- like weight loss, poor weight gain, immune system problems, etc?
Dec 09, 2010
ethansmommy
No problems, maybe slow weight gain and he is in a low percentile, but he has been since birth. (He was 6lbs 6oz at birth and is 18lbs now) He's meeting all the age appropriate milestones, nursing ALL the time and soiling diapers regularly. He doesn't STTN but he wakes up to nurse and falls right back asleep after eating. He has rarely been sick up until this cold weather season has hit us....he's had croup 2x in the past month. I don't know if you would consider that immune system problems considering he goes to daycare 3x a week.
Dec 09, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
It certainly does not sound like reflux to me. I would go see an ENT to to make sure it is not a tonsil/adenoid issue.
Jan 18, 2011
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
I wonder if you could just try giving him some maalox twice a day for a couple days just to see if he would eat better? This would see if it was reflux causing him not to eat. Have you seen an allergist?
Check with your
doctor first!