Posted By Posting
Nov 16, 2010
kru
Two schools of thought: Ride it out or Testing?
We have seen two different Pediatric Gastroenterologists... one seems to want to wait for our daughter (diagnosed with reflux at 2 weeks, on Prevacid and Zantac and Probiotics) to "grow out of it" without doing an endoscopy, modified barium swallow or UGI and the second doctor wants to start with a barium swallow and UGI and possibly schedule an endoscopy later. The question is that she is gaining weight - because I am feeding her mostly all in her sleep and am very diligent about ensuring she takes the required number of ounces daily (which I hardly ever am able to squeeze down). I think the opinion of the "grow out of it doctor" is that regardless of the diagnosis our daughter is going to have to develop over time to overcome the issue. She is on the reflux medications, dairy-free breastmilk, so there may not be much more we can do for her. The second doctor seems to want to follow protocol by ordering the MBS/UGI. My husband an I are unsure about how useful these tests are because when we asked the doctor if she is aspirating or having swallowing issues, what the solution would be and this doctor told us "she would have to grow out of it". We are completely confused about what to do next. We are seeing a feeding specialist in another 2 weeks and have an endoscopy scheduled for next Monday. Does anyone have any advice about whether these infants will one day just "grow out of it"? Also, what is the endoscopy going to tell us? Is it just used to check for allergy cells? If so, will it tell us which allergy?
Nov 17, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
In my humble opinion, there are good arguments for both approaches if a child is not in crisis. My own experience was one of mostly waiting for my son to grow out of it, and basically giving over my life to helping him cope and thrive in the meantime. In his case, he didn't grow out of it, and as he passed all the ages when doctors said he would grow out of it and he still hadn't, we finally started to pursue testing (which led us to discover that he had some underlying neurological issues that may have been making the reflux appear more severe than it actually was).

I am a little concerned about the answer you received from the one doctor about what would happen if she is aspirating or has swallowing issues, because that is not only NOT the the only available option, there is much more than just treatment of the those issues alone at play when a child aspirates and/or has swallowing issues.

Nov 17, 2010
kenneyhl
My son Levi is 13 weeks old. We figured out he has reflux @ 2 weeks. We have tried 4 different formuls (Currently Neocate) and he is taking Pepcid, Prevacid, Mylanta, Grip Water
my son was gaining weight the whole time but was projectile vomitting. I had a barium swallow done and a endoscopy done and he was diagnosed with MSPI & gerd. I would go with doing the tests
Nov 17, 2010
jlh9s
lorenzomama - Maybe you've already posted this somewhere but I would love to find more about breastfeeding a refluxer as you suggested in your bio. Also, how has craniosacral worked for you?
Nov 19, 2010
bellysmom
Going through with the endo and UGI are a good idea because they can show things that we can't see and could create a solution. My daughters tests showed she had bleeding ulcers and she at one wasnt going to tell me that. The benefits outweigh the risks. It will not tell you which allergy but depending on the irritation or erosion you will see what her diet is doing or not doing to her. As for the aspiration you need to see a lung dr(pulmonologist) Also a feeding study will show if she is aspirating or pooling or even has the potential to aspirate. This can be fixed with thickened feeds. isabella is still on thickened feeds but still gets tube feeds also. Any questions email me at mikeleeland@comcast.net. Have been down your road it will get better. It may as simple as a formula change
Nov 26, 2010
ange
breastfeeding a refluxer
jlh9s - I am new to this forum and haven't had a chance to introduce myself, but read your post about breastfeeding a baby with reflux and wanted to say that it is possible! My son (now 2.5) was born with GERD and I exclusively bf him for the first 6 months (well ok, he also took prevacid!). Wanted to let you know about a yahoo forum I found really helpful and supportive it is called: breastfeedingreflux on yahoo forums. I wish I had found this forum 2 years ago though! I am excited to send a proper intro and search the posts for info too! I will try to write more soon, I also have lots of questions for parents of older still refluxing toddlers, food aversions, and malnutrition.....*sigh*. (Wish I was still BFing him maybe it would make up for the fact that he won't eat...)
Check with your
doctor first!