Posted By Posting
Nov 11, 2010
jcamp720
Anyone with a baby that has Laryngomalcia as well?
My 4month old has Laryngomalacia (noisy breathing due to floppy tissue around voicebox) along with Reflux. Very scary hearing all those sounds + all the throw up. Looking for some support or stories shared.... tough time right now :(
Nov 12, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
My son was not diagnosed with laryngomalacia, but he had very noisy breathing and apnea episodes (both awake and asleep), choking and aspiration episodes, as well as significant challenges transitioning to solids (which he wasn't able to really do until he was 2). It was very scary at times, especially since we were never really certain what was causing/affecting what. We now believe that he was dealing with Sensory Processing Disorder, and that it was the single most significant exacerbating issue -- causing him to react to his reflux, and to a host of other tactile sensations, in a way that resulted in many of his most worrisome symptoms.

Was your LO premature, or on a ventilator after birth? The more you can tell us about what you and your little one are going through, the more feedback, resources and experiences you'll find out here...

Nov 12, 2010
jcamp720
He wasnt born premature - but I had a schedule c-section that I think the doctor took him out too soon to be honest. He was due July 12th and she took him out June 30th. He began spitting up and eating so uncomfortable. We changed formulas from Similac Infant to Gerber Goodstart to Similac Soy. He has been on soy - seems to be a little more gentle but not much. He is colic at night from 5-7pm then passes out and sleeps good thru night (usually). During day he is very particular ... only really likes to be held in one way - facing the room.... like a Joey in a kangeroo sack. I think it helps him breathe a little easier because he is leaning forward. Doctor started him on Zantac for Acid Reflux - doesnt seem to be helping. Before she changed meds she referred me to a GI - We meet up Dec 1st. Hopefully we can get some answers. He spit up or vomits I should say in pretty large amounts 3-4 hours after his bottles. he cries when I try to burp him - and this is stll with 1.5ml of Zantac 2wice/day.
Nov 12, 2010
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
First of all, congratulations on your new little guy :) My best friend's little boy was born with laryngomalacia. She had a traumatic birth, but my understanding is that it is just an immaturity in his system, just as reflux is an immaturity in the system (for most but not all infants). Nothing you or your doctor did caused this, so don't let that worry you. Laryngomalacia is a very scary condition because it sounds very scary. For my bff, she eventually realized that it "sounds" much scarier than it is, but for a while she was terrified. Are you seeing an ENT specialist? Is this how the malacia was diagnosed? Was he scoped? My BFF's guy was scoped and he was also diagnosed with a deviated septum which contributes to the noise. The GI referral is important because he's a vomiter, so you definitely want to try to get that under control. In my personal experience with my daughter, (who was a projectile vomiter) zantac will not cut the mustard. He needs a good line of defence to protect his esophagus, and that is a PPI such as prevacid. Docs always start with zantac but as you have seen, it doesn't always help. Meds won't necessarily stop the vomiting, but they'll decrease the acid production, thus vomit won't be as acidic. With the malacia added to the reflux, and the risk of aspiration that can sometimes be associated with reflux, it's crucial that the reflux is managed because of his floppy airway. Why did you switch to soy? Was the milk-based formula a concern? Because if the concern is allergy or intolerance, the GI may recommend switching to a hypoallergenic formula for a 2 week trial because it is broken down much easier. If the formula moves through more quickly, less opportunity for it to come back up as well. This is what we were advised to do for the REFLUX, not for milk protein intolerance. Of course, my daughter had feeding difficulties by this time and would not drink enough, so we switched back. I can assure you that my bff's little guy is thriving and meeting all of his milestones, but colds and viruses are a bit more difficult for him, because of his floppy airway. He's still noisy, but healthy. He is being followed by an ENT. She jokes that his noisy breathing is comforting to her because she always knows he's breathing through the night. Hang in there because it will get better with the right support and the right medication. (((HUGS)))
Nov 15, 2010
jcamp720
He got a Scope done with the ENT to diagnose Reflux - I moved up the apt with GI for this WEdnesday - vomitting has been so bad this week. He is crying non stop - unconsolable for periods of the day and throwing up 3-4 hours after bottles. I dont kno what to do - it is so frustrating. He looks so uncomfortable. The Zantac is not doing anything. I pray this GI is a good one and changes his meds and tries to get this vomitting under control.
Check with your
doctor first!