Posted By Posting
Nov 09, 2010
jillianml
Nothing is working for our 6 wk reflux baby
Hi, I'm new to the site and I realize our case isn't as chronic as some. But here goes. I believe our son has colic (screams approx. 8 hrs/day at various times throughout the day on and off). About 75% of his feedings (formula fed) are painful...arching his back, throwing the head back, turning bright red, and crying/screaming. He cries when he spits up or burps about half of the time. We do not have the projectile vomitting. He IS putting on weight. About 16 days ago we started him on zantac, and 8 days ago the doc added pevacid (compounded at pharmacy). Neither seem to be helping. We've tried different formulas: this past Friday we switched to Enfamil nutamigen and were on Greber goodstart prior to that. As of now no difference. Also are using baby probiotics from whole foods. The doc has ordered a GI series to be done this Friday. I did read happiest baby, which is helping to soothe him. However he is usually soothed for 5 mins. andthe screaming starts again. Its so hard watching him like he is in pain. The screaming while extremely sleep deprived has been trying. Any advice on dealing with colic or acid reflux would be greatly appreciated. I'm not sure where to go from here. Feeling helpless. Thank you!
Nov 09, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
So sorry to hear you guys are going through this. It is hard. Give the Prevacid and the Nutramigen more time to work. It can take 2 weeks for both of them to do their thing. If see no improvements then try to change just one thing at a time otherwise you will not know what is working at what is not. Hang in there. Hopefully you will see improvement soon.
Nov 09, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
So sorry to hear you guys are going through this. It is hard. Give the Prevacid and the Nutramigen more time to work. It can take 2 weeks for both of them to do their thing. If see no improvements then try to change just one thing at a time otherwise you will not know what is working at what is not. Hang in there. Hopefully you will see improvement soon.
Nov 11, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
I wish I could tell you that there is a mriacle, but sometimes there isn't. Here's the good thing...your child will probably grow out of it soon...most do. The parents that are still here are dealing with very severe, chronic and rare cases. Here is what worked for me...sometimes. Make SURE you are giving the prevacid and Zantac correctly. with the right amount of time between doses and feedings. It's crucial!!! My son LIVED in his swing and car seat...both kept him more upright and he loved the light rocking. He slept MANY a night in them...who says they have to sleep in a crib. Keep them upright after meals as best you can...baby carriers are great for that. Whatever you do, don't force feed...I sooo wish I didnt'. I'm still dealing with the result of that three years later... good luck. i hope you aren't here for long!!!
Nov 11, 2010
jcamp720
:(
I feel you pain. Same story... my baby is now 4 months. It has been a bumpy road. We too went through 4-5 formulas and settled on Similac Soy- supposed to be more gentle than milk-based. with his stomache being so sensitive I guess I figured maybe it will help him digest easier. He has Reflux along with Larygomalacia (breathing condition) - Doc put him on Zantac at 3 months. Didnt help at all at first - in fact the throwing up got worse the first week. Then it got a little better. Still not good yet though. He is in pain when being burped and thoughout day throwing up hours after feedings. I know it is tough... espicially the colic episodes. We are going to a GI for the first time Dec 1st. Hopefully we will find out more info on how to help him. My mantra is ... this too shall pass... :(
Nov 12, 2010
jillianml
Thanks for the advice and words of encouragement. I really appreciate it : ) His GI test is this afternoon. Hoping it goes okay. Leaving for grandmas in 10 days so looking forward to some help. Good luck to your little guy jcamp. I hope it goes well with the GI doc.
Nov 12, 2010
acidaway
Alkaline foods?
Have you tried pureeing some fresh, raw green kale; watermelon; raspberries, cantaloupe or other food from the Most Alkaline and More Alkaline categories as is listed at the bottom of this post: http://www.reflux.org/reflux/webdsc01.nsf/vwID/VASV-8ARC38?OpenDocument
Nov 14, 2010
bellysmom
If u haven't tried yet- allow to sleep in car seat or swing. Place rolled small towels or baby blankets on each side and one rolled under feet to prevent sliding.
Nov 16, 2010
cms2005
What worked for me
These are things that helped my baby. I exclusively pump, so breastmilk in a bottle. Here is a list. * new bottles, I switched to Dr Brown bottles. * smaller more frequent feedings 3-4oz per feeding until this month uped it to 6 oz because she seemed to only go 1.5 hours between feedings instead of the 3 she was at when we started. She is 4 1/2 months * probiotic drops (BioGaia), 5 drops in 1st bottle of the morning per suggestion from Pediatrician. * Prevacid (1/2 of a 15 mg solutab, given with last bottle before bed, directions suggest desolving tab in water, but found just giving her tab and then offering bottle or pacifier worked better, she got more of the med) * a couple of visits to the chiropractor (kinesiology method) * raised head of baby's crib. * keep baby upright after feeding for 15-30 minutes. * changed my diet, avoided dairy products and caffeine. Hang in there, hope some of this will help you. I feel your frustration.
Check with your
doctor first!