Posted By Posting
Nov 05, 2010
kavyamom
Neocate/Elecare - did you see an improvement in sleep?
For those of you with kids who had issues with sleep and night time congestion and then switched to Neocate or Elecare, did you see a positive difference in the sleep pattern after making the switch?

Kavya (23 months old) is completely refusing to drink her Nutramigen for almost 2 months now (the only way she will have it is with oatmeal) and so introducing the Neocate is going to be hard but if it has made a big difference in night time congestion and helped your child sleep better, then I might want to try it.

Nov 05, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Out of curiosity, does she have ear issues??
Nov 06, 2010
dcd
Definitely. Before the ear infections and teething and asthma kicked in anyway. My thought is that it is def worth trying with Kavya. Especially as sensitive as she is, I wouldn't be surprised if *something* in the Nutramigen was not agreeing with her. Kylie needed the Neocate. Her sleep was so restless before it. It's still unpredictable, but b/c of other variables. The Neocate made an amazing difference. Am I remembering right? - wasn't Kavya tested for allergies and was not positive for milk or something? I'm trying to remember why you haven't tried it before. If that is why...the tests can be false negative. Wouldn't it be great if that's the case and just switching to elemental would make all the difference for her? At this point, what do you have to lose. I say give it a try. Fingers crossed for you.
Nov 06, 2010
dcd
I was also just thinking, have you requested a sleep study yet? That was going to be our next step. It seems to me that, given Kavya's age and the fact that she is still having such a hard time w/sleep she might be a good candidate for one? Plus, you have to start getting some sleep yourself. I'm sure it's majorly affecting the health of the whole family..
Nov 07, 2010
kavyamom
She doesn't have any ear issues now...has gotten some ear infections in the past when she had colds but not too many.

DCD, Kavya actually has been tested for allergies (just the blood test) and it was positive for milk (moderate I was told). The docs never told me about Neocate at the time though and I never found this information until recently. It is going to be really hard to switch to Neocate now though since she doesn't drink any formula at this point (I have tried different cups, flavors, etc). The only way she will have formula is mixed in with oatmeal. I tried to mix the oatmeal with 3/4 Nutramigen and 1/4 Neocate and she flat out refused it. She detects even the smallest change in taste and texture.

Nov 07, 2010
kavyamom
Also, she has had some good nights on the Nutramigen and even when we were giving her yogurt, so that is why I never thought that she might need to go completely elemental. The good nights are of course very few but there is teething, new foods that don't suit her, illness, etc. that seem to always disturb her sleep. Anyway, if I can get her to take the Neocate in some way, I agree it is worth a try. Also, we have recently started Buffer Babies. I see an improvement in her daytime nap with the BB. Was hoping to see if it would make a difference with the night sleep as well but of course now she is teething again :-(
Nov 07, 2010
dcd
I would def keep at it. I know she can't tolerate many foods so she needs formula. Will she eat eventually if she gets hungry enough? I now know that Kylie has been allergic to milk basically since birth b/c she was spitting up buckets from day one. It didn't start affecting her sleep till 3.5 mos and even then we had the occasional good night. I think she slept through twice (after 3.5 mos but before switching to elemental.) Most nights before Neocate were TERRIBLE but every now and then she'd sleep better than usual. I thought it was almost impossible she needed Neocate since fewer than 200 babies in Tx do (according to the state bill that mandates insurance cover it). But after seeing only minimal improvement on Nutramigen & both forms of Alimentum we tried it and the difference has been amazing. Maybe Kavya's good nights have been flukes like Kylie's. I hope shell start drinking it soon so you can see. For us, I was certain Kylie would never drink it, she's so picky. We ended up going cold turkey instead of the gradual approach and after a few feedings (she skipped one bottle) she got the message and started drinking it. Also, make sure to check all your brands and labels during the trial too ensure there are no traces of milk in anything else she's getting (oatmeal, teething tablets, etc.) Kylie reacts to the tiniest traces of milk. I didn't read the ingredients of some teething tablets closely enough and gave her two. She spit up/puked like 6 timed that day. :(
Nov 07, 2010
dcd
One other thought...i wonder if kavya started refusing the nutramigen b/c she figured out it was what is giving her stomachaches. I think even the little ones at some point realize what is causing them discomfort. Over the months, Kylie got more and more difficult with her bottles to the point that she was often refusing to drink them toward the end. But we never had this issue with her solid foods, cereal, or water. I would be interested to see what happens... If you can somehow get kavya to drink the neocate she will soon realize it doesn't hurt her stomach like the other stuff, and i bet her intake would increase. Anyway, just a thought.
Nov 15, 2010
kavyamom
Thanks, DCD. We have all been sick with a terrible cold and hence the delay in responding to your post. We had tried going to Neocate cold turkey (with oatmeal) but after one bite she flat out refused it. So, we are doing the gradual approach but it going very slow. Also, she likes having the nutramigen with oatmeal so I don't think the nutramigen is giving her a stomachache immediately at least. But it is possible that because of her milk allergy the nutramigen is making her reflux worse. The buffer babies is helping a little with the daytime nap but not much with the night sleep. She is still very congested at night.
Nov 15, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
An incorrect formula can definately present itself as reflux and at the least make reflux worse. It will also lead to major congestion. Stick with the change for a good 2 weeks. Also it takes Buffer Babies a full 10 days to see improvement. Tough thing for you will be if you see improvements in a week you wont know if it was the BB or the formula change....
Nov 15, 2010
kavyamom
Actually she has been on BB for almost 4 weeks now. I do see improvement with the daytime nap and also she is not reacting as badly to new foods as before. However, the night sleep is still bad.
Check with your
doctor first!