Posted By Posting
Oct 25, 2010
eosborne1977
reflux and ES
I have a 12 month old son who was diagnosed with both reflux and ES caused by food allergies. I am nursing my son and have begun the process of introducing foods. However during the last 3 months my son didn't gain any weight even though he was being given solid foods in addition to nursing. He has non-IGE responses to dairy, soy, and corn for sure, possibly others as well. I have tried sweet potatoes, yams, avacados, apples, white potatoes, chicken, beef, green beans, squash, bananas, pears, apples, and peas. He had allergy type reactions to green beans and peas and appears to have reflux type reactions to sweet potatoes, yams, bananas, apples, pears and beef but I am not sure. I am looking for recommendaitons of what food to make to feed him and what type of schedule. He needs to put on some body fat. He is down to the .87% for weight now. So far all store bought brands bother either the reflux or the food allergies. My son takes the compounded form of prevacid (lansoprazole). In addition if anyone has experience with feeding babies with reflux and ES I would appreciate any insight. Thank you, Erin
Oct 25, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You have to be very careful when doing food trials. Most EE/EOS kids do one new food at a time and then report back to the GI, even possibly do a scope each time, lots of them.

Are you working with a GI that knows their stuff when it comes to EOS disorders? If not, I'd get referred out to one ASAP.

Not that you can't breastfeed a little one with EOS but, you would have to completely eliminate everything from your diet, and I do mean everything, and only do one food at a time for about 2 weeks time span to see if you get an reactions.

I can put you in contact with TONS of EOS parents via Facebook if you have a FB page. They are a tight knit group and can point you in the right direction of which DRs are THE best for this area.

If you are just starting to give food outside of breastmilk, at that weight, I'd go with Elecare. Just about ALL of the EOS kids I know are on it.

Just let me know if you have that FB page so I can put you in touch with them. They are spread across the states and I can tell you, they are VERY organized.

Oct 25, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Just wanted to add that I know a Mother who's son was DX with just GERD for the longest time. He had lots of vomiting and just wasn't gaining weight. He was DX with EOS/EE about 9-12 months ago, put on Elecare and for the first time in his life, he's gaining weight and not vomiting. He's doing soo much better and hasn't had as many illnesses at all. It's been amazing to watch for sure!!!
Oct 26, 2010
eosborne1977
I tried elecare and neocate, both caused allergy reactions and increased the reflux. The two have lots of corn, which my son has problems with. I would like to get connected with the EOS parent on facebook. I'll create a facebook page today. I at this point could use the help. I follow a very, very strict diet, no dairy, soy, corn, legumes, nuts, peanuts, grains, or eggs. I eat only kosher meat. I eat nothing processed. My son has had reactions to all medications, formulas, vitamins, and probiotics with corn, soy, and dairy. My Ped GI was the person who diagnosed ES. I am not sure how experienced she is, but so far she has been helpful. I really appreciate the imput and would like to get connected with the other parents on Facebook. Thanks again, Erin
Oct 26, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Here is my email: onion95@gmail.com

You can give me your email and I can find you really fast.

The meat is probably causing an issue. Most of the kids I know can't do any meats, processed or not.

If he continues to have issues with lots of food and your breastmilk and his weight %tile continues to drop or stay at the low spot it is, they may want to do TPN.

Oct 26, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
How long did you do the formulas though, it can take 2 weeks sometimes a month to see an improvement. Have you had a scope done yet to count the EOS?
Check with your
doctor first!