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Oct 25, 2010
jacksonsmom
Projectile Vomiting AGAIN!!
So we were doing pretty good, but for the past 5 days he has been back to projectile vomiting. I think it may be the Gerber Rice cereal since it has milk protein in it... UGH! So I am using beechnut. I was told to try Barley instead of rice and that will help with the projectile vomiting but Gerber is the only one I can find that makes it and it has milk base in it... anyone have any ideas?? Switched to the compound Prevacid and I am still trying to get ahold of David at Marci-Kids so I can make my own. I fill like I am against a wall... just as soon as I think things are getting better, then something else happens.
Oct 25, 2010
dcd
I can sympathize. My baby did a 180 for about two weeks when we switched her to Neocate. Life was great! She was eating without pain, she quit puking, she started sleeping, that rash went away, etc. Then she got an ear infection. Which refuses still to clear up - she's on her 4th antibiotic in a month and a half. The antibiotics rip her stomach to shreds and she refuses to eat. The appointment with the ENT can't come soon enough. She's also teething. She has one razor sharp tooth barely poking through, and who knows how many trying to do the same thing. Based on the fact that she's waking up like 5 times a night or more, I'm guessing a lot.

I know I'm whining. And we are in an amazingly better place than we were 2 months ago. I am grateful. But I'm just so tired. It feels like it's always something. I feel terrible for her. And literally like my husband and I are never going to sleep, ever again in our life.

I'm sorry you're feeling the same way. David is hard to reach but great when you do connect with him. He's always returned my calls, even if it takes him several days - if that helps to know. Also, you may want to go ahead and send in your order for the Buffer Babies, since you have to snail mail it. Just so it's already on its way when you finally talk to David. Hope your little one feels better soon. I don't know about the barley - does Earth's Best make one?

Oct 25, 2010
adelines mom
we have had terrible luck with barley. i kept giving adeline the earth's best vegetable turkey dinner and realized it had barley in it and think that was what was bothering her. had also tried some of the organic baby purees and the ones with barley bothered her too. i had seen mention of healthy times baby food somewhere on a site and i actually ordered some of the pureed fruits and veggies and rice and oatmeal cereal today to try something different.
Oct 25, 2010
meredithy
WHY
Why is it that you can have a few good days and then they take a turn for the worse and you feel like you are crumbling??? I can't believe how all of us never sleep and are just trying to keep our heads above water!! Why do the doctors not have answers??? I am finally going back to the GI docts Nov 9 with a list of things to do! I want it all checked out!! Any good sugesstions? dcd-You are not whining!! You are talking to the only people who "get it"!! I am in the trenches with you!! Vent! Lindy and jacksonsmom- You both help me get through my day! Thanks! My husband always laughs that I am on this site! I need the support! Cole choked again today! I guess the alimentum is the the answer either! UGH! I am having trouble bring back my breastmilk! Tomorrow is another day, Good thing or a bad thing? ha!
Oct 25, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Hey gals. Sorry you all are having such a terrible go of it. If you were to turn the clock back about 2 years you would find 5 other moms in your exact shoes, writing back and forth, trying anything and everything, ready to pull our hair out. One had a puker by the bucket fulls, one had a feeding tube, one had great days and terrible days and countless throat infections, mine would go through hunger strikes every 4 weeks and end up in the ER for fluids. None of us thought we would make it... but we have. This GERD thing is a rollercoaster ride. Just when you think you have it figured out and life is great, the bottom drops out and you are dropping to the bottom again. Sometimes the highs make the lows even harder. The smallest normal childhood illnesses or teething is enough to send the coaster flying. The good news is that the further you get on the ride, the highs and lows are closer together and not as significant, and the ride starts to slow and eventually you start coasting.

Each major physical milestone will find you more relief. Sitting up, crawling, solids and finally walking will make huge improvements in their reflux. Gravity and time is their best friend.

Be master detectives, chart everything, listen to your gut, try no more than one thing at a time and really give the changes an opportunity to work before you pull the plug on them. 2 weeks is always the rule of thumb. It takes that long for their little bodies to adjust. You can do this. Support each other and find support people where you are. Find a pediatrician you adore and you feel can partner with. Your ped is even more important than your GI. Do not neglect yourself and those around you or you will be dealing with whole other can of worms once you get the GERD figured out.

Oct 26, 2010
adelines mom
AMEN Karen!
Oct 26, 2010
dcd
This thread lifts my spirits. It helps to know I'm not alone, and also to hear, even though I've heard it a thousand times, that it WILL get better...someday.

I think the good days make the bad days harder - even though you wouldn't trade them! But when things are going well for your baby, it's like nothing else in the world matters or can get you down. But you are kind of living in fear of when the bottom will drop out, and when it does, it's devastating! During the times when EVERY DAY was bad, I think I kind of got used to just living in that zombie daze.

I definitely think the ear infections and teething are harder for Kylie than for a regular baby, because of her past issues. Obviously the antibiotics and drooling aggravates her reflux, but I also think she just has a hard time processing the pain, and she does a lot of associating. During the day, she is so busy and playing that the discomfort doesn't seem to bother her as much - as least she doesn't pay as much attention to it. But as soon as she tries to relax and sleep after a full day, she starts focusing on the pain and she can't settle down and rest even though she's sooo tired.

Also sometimes I think I'm going crazy because I'm never 100% sure what's going on with her. Is she acting like this because of the teeth? Or is the antibiotic not working again and her ear infection getting worse? Is the Tylenol giving her a stomach ache? And now that she's not actually throwing up, how much is her reflux actually bothering her? I can still hear her refluxing and swallowing sometimes, but don't know how bad it is. And what is with this cough?!?! Is this normal, or should I be worried about asthma, like the allergist warned me?? Why has she sort of choked/coughed with her bottles lately? Is that related to all the other stuff, or I am missing something - like a potential swallowing problem? Why isn't she eating? Are the antibiotics still upsetting her stomach, or are they just decreasing her appetite? Is she not sleeping because she's gotten used to waking up, or is she really having a lot of pain again??

AHHHHH! As the mother of a baby with special health history and needs, you always want to be on top of it to minimize or head off the pain as much as possible. But then, some things are just normal for babies. For me, I think I have no concept of what is/isn't normal and what is/isn't related to Kylie's unique issues, because she's always been like this! It's confusing. Sometimes I take a step back and look at our lives, the fact that we both work, NEVER sleep (that we haven't, for 8 months), and still maintain a "normal" routine and activities. It's pretty crazy that we just keep functioning as if there is nothing out of the ordinary. Mostly I'm amazed by my daughter. Despite all her problems, she is still so happy and a light to everyone around her.

Check with your
doctor first!