Posted By Posting
Oct 20, 2010
adelines mom
Neocate Jr. or Elecare?
Update at our house .... still waiting patiently for the caracream to arrive. Have been seriously thinking about switching Adeline's formula again. She has been on the Nestle Good Start Protect Plus 2B for about two months or so, i think, and reflux has gotten worse. Think it may be a mix of a lot of things. Trying to do my homework on Neocate Jr. and Elecare. I tried Vital Jr. once and she knocked the bottle out of my hand and also the same response to Peptamin Jr. Think the vanilla flavor is too much. Have not tried the Pediasure vanilla but think she would do the same thing. Like the fact that both Neocate Jr. and Elecare come unflavored and without DHA. She is used to that. Have a meeting with her pediatrican on Friday morning to try to get a game plan. We see her GI doctor next Wednesday. We had her allergies tested with skin prick around 1 year and no allergies. Know it is pretty inconclusive at that age. The doctor had recommended a scope to rule out EE and we simply can not do the procedure with her blocked nostril. Thinking the formula and the food I am feeding .... and the prilosec that isn't working .... and two year old molars about to come in.... and some cental apnea .... and her chromosonal deletion ..... and sensory issues are really affecting her and her sleep! Ha! We don't have much going on in our house, do we? Would love your thoughts on both of these forumlas! Thank you.
Oct 20, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
This is a little side tracked but, what chromosome deletion does she have? My sister had a DD with a RARE chromosome deletion, always looking for someone with the same one...she is #19 in the world.

Here is a great resource for formula info:

http://www.articles.complexchild.com/june2008/00047.html

http://www.articles.complexchild.com/july2008/00050.html

Did they say why they won't do the scope because of the blocked nostril, just wondering as the scope goes down the throat.

Oct 21, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
I think both formulas are great. We have used unflavored Neocate thoughout my son's life. He STILL drinks it (has EE).
Oct 21, 2010
adelines mom
these articles were great! thank you. adeline has a small deletion on the long arm of her 4th chromosome. reflux, low tone, developmental delays, feeding issues are very common. we got the diagnosis at one year. finally helped to explain a lot that was going on with her. my caracream just arrived by fed ex. wanted to hug the driver. called the neocate toll free number and they are sending me a free sample of the plain neocate jr. think i will probably try that first. it states on the ingredients of both the neocate and elecare that they have corn syrup solids in them. have always read to stay away from corn with a refluxer. just curious. always appreciate your responses! lindy
Oct 21, 2010
adelines mom
they were afraid to put her under with the one nostril. had the scope scheduled twice and she got sick both times right before and we cancelled. thought that was a sign from up above. still have not ruled it out, but our pedi gi did not want to do it.
Oct 22, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
My sister's DD has a deletion of the arm of the 10th chromosome. She has not ever met any parents with the same DX. :-(

She is delayed in many areas, doesn't speak (shes 9) and has O.T. issues for low tone and walking. She didn't walk until after 3 but walked with a hind walker before that. She had oral feeding issues when she was little due to texture issues. She also has cognitive delays which seen to get worse (the gap gets bigger between her peers and her) each year.

She also has seizures and they have not localized why yet. But upon MRI whole sections of her brain are not developed.

It took them to about age 3 to get their DX.

Oct 23, 2010
adelines mom
genetics ..... boy have we had to take a crash course over the last 29 months. i was so grateful to get adeline's diagnosis at one year. we knew something was up. the testing now is amazing and think so many families are finally getting answers. unique, rareshare and the cdo site have been so helpful for me. have been able to meet two other mothers for coffee whose children have a deletion on the fourth. each child is so different, but it was wonderful to physcially be able to talk to them. adeline has still not said her first word and think it will probably be around 3 before she takes those first steps. we are busy with sensory ot, pt, speech, etc. i am exhausted but she is making some improvements. give your sister a hug for me!!! lindy
Oct 23, 2010
jgsbennett
Ginger Bennett
Mom to Stanton - 2 year old with GERD, DGE and MPI
ourcarpetstains.blogspot.com
We are on Elecare and it comes unflavored. Smells awful....but Stanton doesn't seem to mind. At first he wouldn't take it and gagged and acted all dramatic about....so I did the gradual switch. Added 1 oz of the Elecare to his existing formula and each week went up 1/2 oz until eventually we were totally on Elecare. Hope this helps!
Check with your
doctor first!