Posted By Posting
Oct 14, 2010
mrsdtek
What should a Dr. be doing for a reflux infant?
I am new to this. My baby girl was diagnosed with GERD on Monday (10/11/10) and has horrible constipation. I was wondering if there are certain tests that should be done? I have asked my doctor about finding a reason for the GERD and he just dismissed the question and said we need to treat it...which is fine with me if the tretatment would work. This is what has been done switch from Similac Advanced to Similac Sensitive to Enfamil AR (told me tonight to switch to Enfamil Gentlease), Prune Juice (for constipation 1/2oz every other bottle and she got horrible diarrhea), Probiotics(current), Axid (1.5ml 2Xday...not working yet). Is it normal that he seems focused on fixing her constipation. first? Asked if she is being damaged from acid and he said not as long as she is on the Axid...so I'm a little concerned...if it is not working with her screaming can it be helping? And I asked about testing for allergies and he said that she dosen't need the tests because she dosen't have an allergy because there is no blood or mucus in her stool....does that make sense I am so confused as to what should be done and what should be a priority! Sorry the post is so long
Oct 14, 2010
mrsdtek
add on
AND...when I went to MARCI it said that her dosage could be higher and more frequent. When I asked to Dr if it would be possible to increase her dosage and the amount of times a day he said they never would have an infant take it more than twice a day and that and the minimum dosage at her weight range was all she could have....just confused! Marci seemed to have some good scientific info in there and he totally dismissed it :-(
Oct 14, 2010
adelines mom
i would stay away from the prune juice! made adeline's reflux worse. also read somewhere to try karo syrup too and that was aweful. we had good luck with axid twice a day early on with adeline. we did the enfamil ar the first week and she got blood in her stools. we switched to similac alimentum and had good luck with that for a long time. probiotics are great too!!! we have had wonderful luck with miralax. it is a miracle drug for constipation. we got on board early with a good pediatric gi. i have been doing epsom salt baths, mainly for calming her at night. ran out of it and missed four nights and she stopped up. had to give her a suppository. it says on the box it is a natural laxative. go figure. hang in there and if you are not happy with your doctor and feel like you are on the same page it is OKAY to find someone else!
Oct 15, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
When they are constipated, the reflux is worse, eatting is worse and they are uncomfortable . I too would stear clear of the prune juice or give less. I like aluminum free Mylanta Cherry Supreme instead.

Prilosec, Prevacid and Zegrid are all PPIs that are over the counter. You dont need a script for them any more. You can mix them with the Caracream from Marci Kids to make your own liquid PPI and dose accordingly. Their order site is refluxsolutions.com.

Get a Ped you like, trust and have a partnership. This is a long rollercoaster ride. You want a good partner in the seat next to you.

Oct 15, 2010
dcd
My advice, if you feel like your doctor is not listening to you, being dismissive, and not explaining his treatment recommendations (and the logic behind them) thoroughly, move on to someone else! It's important to trust and understand your doctor and feel like he is on your side.

My daughter is several allergic to milk protein and corn, confirmed at 7 months with allergy testing using a scratch test. The allergist prescribed Neocate formula which has made all the difference for her. She quit crying with feedings and completely stopped puking/spitting up. She is sleeping now too. She could not tolerate any over-the-counter formula because they were not broken down enough, including Enfamil Gentlease, Enfamil Nutramigen, Similac Alimentum, and Similac Alimentum Ready-to-Feed. And by the way, she NEVER had blood or mucous in her stool either. Her symptoms all looked like reflux, which is why it took us so long to find out what the real root problem was.

Good luck to you!

Oct 19, 2010
mrsdtek
I had an allergy test done on her Monday and they only tested for milk, soy and eggs....crap! The doctor was not really familiar with GERD allergies but was totally cooperative and did the test at my request and I totally forgot CORN!!! Lord sleep deprivation is harsh! I guess I am grasping at straws hoping I can find a reason!
Check with your
doctor first!