Posted By Posting
Oct 12, 2010
wilscat
New to the site
Hi my name is Catherine and Nate, my four month old son, has had blood in his spit-up since birth. The family doctor had initially put him on Zantac for reflux, .1 ml once a day, and told me to keep him on Gentlese. We relocated to MI and scheduled a follow-up appointment with a pediatrician. The new pediatrician stated that there was blood in his stool and had us switch to Alimentum and increase the dosage to .8ml 3x a day. The spit up changed from white cottage cheese looking burp-up with blood to clear or formula burp-up with blood. The improvements were that the volume of spit-up were reduced and there were days without blood spit up but he now had diarrhea. The doctor also had us do a stool test and they took blood. On the non hypoallergenic formula there was blood in his stool, by switching to Alimentum the blood was gone from the stool immediately. The blood tests came back negative for allergy. They had us see a gastroenterologist. He had us switch to Neocate and add rice cereal in the bottle. The gastroenterologist stated that on Neocate we would see improvements almost immediately. We didn't. On Neocate he had increased gas, increased spit-up, blood in his burp-up, increased fussiness. When the gastroenterologist finally returned our phone call, he said to keep Nate elevated and watch for red blood and if by month five he hasn't improved, bring him back. The only positives in this situation is that Nate does not appear to have any pain associated with the blood/spit-up and other than the blood in the spit up, he's completely healthy and happy. This situation is wearing me down and taking a serious toll on my relationship with my boyfriend. Without good feedback from the gastroenterologist and the pediatrician, we are doing a lot of guessing and google-ing of potential problems and possible solutions. We both want to make sure we are taking care of our son but neither of us are doctors and it's causing a lot of fighting over the "proper" way to care for our son. I'm sure there are a few members that have been in my shoes, so any feedback is welcomed and needed.
Oct 15, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I haven't dealt with the issue you describe, but I have certainly dealt with the stress and exhaustion that can come from trying to figure out what is happening to my baby. The past three and a half years have been more stressful on my relationship than any other time. My best advice is to work hard at just acknowledging that you are both doing what you know best to do to do right by your baby -- that you both have the right intentions. Try to hear each other out without reacting right away and try to take even a few minutes each day to just connect with each other in a way that has nothing to do with being parents (easier said than done sometimes, I know). It's really hard to be facing uncertainty about your child's health issues -- hard for everyone involved...
Oct 17, 2010
jgsbennett
Ginger Bennett
Mom to Stanton - 2 year old with GERD, DGE and MPI
ourcarpetstains.blogspot.com
Oh Catherine......I can hear and completely relate to the cry of your heart. So many people told me that becoming a mother would be the most difficult thing ever - boy was that the understatement of the century! Having a child who is chronically sick with no answers, is beyond draining. Time is really the best healer so I encourage you all to stick it out through these awful days. It's more than "not easy"....it's toiling day after day. But - doing little things for each other really becomes a mental choice. My sticky note above the bathroom sink simply saying "I miss you" is sometimes the only interaction my husband and I have in a day - but it is creating a connection. I encourage you to find what works for you. Now - about your son.....I must strongly advice you to start the battle! My son is 27 months old and I look back on all those weeks we waited something out. If you are comfortable waiting - then ignore my next soap box....but, since you asked, I think you don't really like waiting. Blood is not something to wait on, in my world. You are Nate's voice. Be clear, factual and loud with the doctors until they hear you and do something. Please feel free to contact me anytime! (jgsbennett@gmail.com)
Oct 18, 2010
dcd
I agree wholeheartedly with Lorenzomama and Ginger. Having a sick baby is very, very difficult on a marriage, especially when you're both new to parenthood to begin with, and especially because our little ones can tell us themselves what's going on. It's a lot of guessing and second-guessing and although you both just want to help your baby get well, you often disagree about how to get there. I will echo their advice about making a conscious choice to stick it through together and to nurture that choice every day with whatever works for you. You both need a teammate in this. I will also encourage you, like Ginger said, to "start the battle." Know that you're not alone, and good luck to you!
Check with your
doctor first!