Posted By Posting
Sep 22, 2010
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
...we're back w a new refluxer
Hi everyone I havent been on here for a long time. I have a 3 yr old named Seamus who had silent reflux for the first two years of his life..I was on this forum all the time and I thank the other mamas for helping me out so much then. Now I have Quinn, a 10 week old boy. He has been showing some signs of reflux and I am full of questions. I cant help but compare him to Seamus..It is WAY less severe..He doesnt scream all day and night, which I am thrilled about. Reasons why I think he has reflux are: spitting up/gagging if laying flat, fussiness after nursing, waking up after 15 minutes of sleep..He also does some of the loud swallowing and grimacing during rest. He doesn't scream out in pain or arch the way Seamus did. I find that he is happier sleeping on his belly, or propped way up on pillows.( I know about SIDS risks but we are trying to remain sane and just get some rest..We are cosleeping so I am really aware of Quinn)He is pretty happy when he is awake but I have founb that recently he has spent most time sleeping in the front carrier in day or on my body, at an angle, at night. He doesnt like the Tucker sling and wedge. He wakes up and tries to bring his knees to his chest or shift around and the straight-jacket disturbs him. I am considering the "nap Nanny"..Any luck w that?Quinn's pediatrician suggested Zantac, but warned us that it can make the reflux worse, or make them more irritable. Has any one experienced that from Zantac? I am a little bit hesitant to put him on Zantac. I am interested in perhaps doing an elimination diet. Tomorrow we are going to an herbalist/nutritionist. I wonder if the reflux could be diet related. He has had little outbursts of reflux over the course of the last 4 weeks. I noticed his reflux after eating alot of dairy when he was 2 weeks old.I eliminated that from my diet. This outburst has been rather long though. I am considering an elimination diet. My pedi wants him to try Zantac before referring him to the pedi GI. Any thoughts? Thanks
Sep 22, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Welcome back.... Sorry to hear you are on round number 2. Interesting that your doc said Zantac can make reflux worse or more irritable. I had not heard that. Zantac tends to work very well for "happy refluxers" yours. Generally happy... doesnt refuse to eat.. Plus it is easier to get them off of Zantac than PPIs. I'd try it and see if it works.

I had mixed emotions about my nap nappy. The concept was good but it has design flaws in my opinion. The sides are not deep enough and there are no shoulder straps. My son rolled over in it, flipped himself over onto the ground when then the nap nanny was on top of him since he was still strapped in by the lap strap, he managed to wiggle his way out of it and came crawling to my room.. at 3 am... with no gate at the top of the strairs... I think it is fine daytime naps but I stopped using it at night after that. Now that said, he was a little Houdi from birth and that was not the first nor the last time he was caused my heart to stop with his antics.

What I liked better was the Fisher Price Soothing Motions Glider. Same angle, deeper side, better lap strap and a smooth flat side to side motion. He slept in that thing till he was over a year old. A real life save and I think they cost the same.

Sep 23, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
HEY!!!! Welcome back (though I'm sorry, too, that you have to return...) And congratulations on the arrival of Quinn! What does Seamus think about him? :)

We didn't find Zantac making reflux worse, exactly -- it did what it was supposed to do for the pain -- but it did seem to result in more spitting up. I suspected that Lorenzo was just more comfortable and so was able to take in more during each nursing session, as he did seem to go from nursing every 15-30 minutes for 5 minutes to every hour or so for 15, as I recall.

I'm so sorry you are facing the disrupted sleep thing again... We are still living in that nightmare, and I have a TON of information that might interest you if the sleep troubles persist.

DO you have a good resource for starting an elimination diet? I think it's a great idea -- even if Quinn isn't allergic, it seems that so many refluxers have such sensitive digestive systems and many foods can exacerbate the trouble. Just my two cents, as a fellow breastfeeding mama, I would try to approach it in a way that feels as sustainable as possible to you. In other words, unless the potential benefits outweigh the risks, I would eliminate just one thing at a time, rather than the total elimination and then adding things back in.

I'm interested in what the herbalist/nutritionist has to say -- keep us posted. Again -- so sorry you have to be back here, but thrilled to see you and Seamus' smiling face (though I bet he looks pretty different by now :). ((HUGS))

Sep 23, 2010
dcd
Hello! Congrats on your newest addition but sorry to hear you're having trouble with reflux again. Like the other two ladies, I would give Zantac a shot and see how he does. I haven't heard of those warnings from your doctor either. My Kylie was on Zantac from 2 weeks old and it seemed to help with her discomfort as a newborn. The body can build up a tolerance to it and it became less effective for her as she grew (even though we adjusted the dose along with her weight gains.) I think trying the elimination diet is also a great idea. I would start with dairy, as milk protein is so often a big part of the problem with reflux. It took us a few months to realize that the milk in Kylie's formula was causing a lot of her pain and restless sleep. I agree that even if your son is not truly allergic, he may be sensitive to or "intolerant" of certain things and perhaps some dietary changes will make all the difference. Keep us posted and good luck!
Sep 23, 2010
dcd
I'm sorry - I just re-read your post and see that you've already eliminated dairy. Another thought is to try eliminating corn (in all forms - corn syrup, corn starch, etc.) After having Kylie allergy tested we discovered she is not only allergic to milk but also corn. We had to switch her formula to Similac Alimentum which is the only formula with tapioca solids vs. corn syrup solids (this has made a big difference.) After doing some reading I've discovered that a corn allergy is not terribly uncommon in young children, and if a baby is sensitive to one thing there's an increased chance she will be sensitive to others. That's the case with our little one. Just a thought to consider.
Sep 28, 2010
meredithy
dear dcd
Hi I have a question. How did you test your child for the corn allergy?? I have been on the elimination diet while breastfeeding and all I am eating is corn! It could be part of the problem!! Thanks for the idea!! I have already eliminated dairy, soy, wheat, eggs and nuts!
Sep 28, 2010
dcd
Hi Meredithy,

We suspected Kylie's reflux-like symptoms (disturbed sleep, constant vomiting, fussy feeding/pain with bottles, rash under her eye, nighttime cough and congestion) were not caused by straightforward reflux because she never responded to even high-dose PPI meds.

We put her on the Nutramigen formula which has hydrolized milk proteins. We noticed initial, temporary improvement but then she regressed.

After doing some reading I suspected A) the milk might not be broken down enough and she might need a totally elemental formula (i.e. Neocate) and/or B) she is also allergic to the corn syrup solids in the formula. So I requested a referral from her pediatrician to see an allergist, where they did the allergy testing using a scratch test.

It turns out I was right on both counts. She is allergic to corn, so we switched her to Alimentum Ready-to-Feed, which has both hydrolized milk and does not contain corn. She initially did great but then regressed again, so we had to switch to Neocate, which has made such a difference so far.

I think I saw in another post that you did a trial of the Neocate. How did your son do on that? B/c if food allergies are part of the problem, he should be much improved on the Neocate since it is amino acid based. Unless DGE is the main issue (?) or unless he is sensitive to the DHA/ARA additives (I never thought about the DHA thing until someone made a post on this board...I guess it's a possibility.)

Sep 28, 2010
dcd
Hi Meredithy,

We suspected Kylie's reflux-like symptoms (disturbed sleep, constant vomiting, fussy feeding/pain with bottles, rash under her eye, nighttime cough and congestion) were not caused by straightforward reflux because she never responded to even high-dose PPI meds.

We put her on the Nutramigen formula which has hydrolized milk proteins. We noticed initial, temporary improvement but then she regressed.

After doing some reading I suspected A) the milk might not be broken down enough and she might need a totally elemental formula (i.e. Neocate) and/or B) she is also allergic to the corn syrup solids in the formula. So I requested a referral from her pediatrician to see an allergist, where they did the allergy testing using a scratch test.

It turns out I was right on both counts. She is allergic to corn, so we switched her to Alimentum Ready-to-Feed, which has both hydrolized milk and does not contain corn. She initially did great but then regressed again, so we had to switch to Neocate, which has made such a difference so far.

I think I saw in another post that you did a trial of the Neocate. How did your son do on that? B/c if food allergies are part of the problem, he should be much improved on the Neocate since it is amino acid based. Unless DGE is the main issue (?) or unless he is sensitive to the DHA/ARA additives (I never thought about the DHA thing until someone made a post on this board...I guess it's a possibility.)

Sep 29, 2010
meredithy
Neocate and allergy
dcd- Wow I had asked about an allergy test and the ped said he was too young to be tested or have an allergy. My son coughs and sneezes ALL of the time. His face breaks out and the throwing up can be worse some days than others! Trying to take out corn from my diet will be difficult but I will try it for a few weeks! Thanks. I will also ask my ped for the allergist referal! The neocate trial was only for 24 hours. about 12 hours into the trial, my son had his first choking episode. I don't know if that was related but I stopped the Neocate after 23 hours when he still continued to throw up! I also stopped because it smelled SOOO bad and with all of the throwing up my house smelled and he also smelled! ha!!! I should try it again! What are there flavor packets that Neocate makes?? I want to stop breastfeeding because I am losing my mind!!! But I know it is best for him. I am in a real difficult situation and to top it off I am having a very difficult time pumping due to no let down I think because of stress. I also saw that post on DHA and I take a suppliment every night!! UGH! I think I just have to make one change at a time!! Thanks so much for your help!! I will check back into ask more question with the formulas!
Sep 30, 2010
dcd
I agree - just try to take it one day and one change at a time. I know it's hard. Particularly when changing things up, don't try to do too much at once or else if (when!) he improves you won't know which factor was causing the problems.

I have no idea why your pedi told you your son is too young to have or be tested for allergies. Especially because milk and soy protein allergies in particular are not uncommon in babies. In fact the vast majority of babies that have these allergies outgrow them by the time they turn 1 year old (fingers crossed!) - so it is absolutely a possibility that your little one is struggling with this now.

You are under a tremendous amount of stress already and trying to breastfeed while following such a restrictive elimination diet is so hard! Maybe you could try the Neocate again and pump over the course of the trial. I know you said you're having letdown issues but if your son improves on the Neocate that should help with the stress. Then you can decide if you want to stick to the elimination diet/breastfeeding or just go with the Neocate. I know that it can take up to 8 weeks to eliminate the allergens from your system, so maybe you could just use the Neocate and pump to get you through that time, and then go back to breastfeeding.

Neocate makes cherry vanilla, lime, and grapefruit flavoring packets. I think they do help with the taste, but your son may be young enough that he doesn't mind the taste and in that case consider yourself lucky! The older babies often have a really hard time with the switch.

According to Neocate, if the child's issues are due to multiple food protein allergies their throwing up/colicky/digestive symptoms will improve/subside after three days on the formula. So if you decide to do another trial I would give it at least that long. Rashes and other symptoms of that nature will improve in 14 days.

Oct 01, 2010
kenneyhl
My son Levi is 13 weeks old. We figured out he has reflux @ 2 weeks. We have tried 4 different formuls (Currently Neocate) and he is taking Pepcid, Prevacid, Mylanta, Grip Water
my son is 3 moths old and has severe GERD and MSPI so im right there with you!! two things that really saved my insanity (im a single mom so im alone in this battle) was a moby wrap and a Fisher Price Newborn Rock & Play Sleeper. I wear my baby alot. He seems to fall right asleep when i put him in it. And the Rock and play sleeper seat is a GOD SEND!!! Its a seat that sits at a 45 degree angle i think and it has saftey straps. Its a certified bassinet so i dont worry about my son sleeping in it all night! and it also rocks a little so when he wakes up in the night and starts to kick, he basically rocks himself to sleep. Its so portable i take it everywhere with me!!! the only thing that stinks is it has a weight limit of 25 pounds.
Oct 01, 2010
kenneyhl
My son Levi is 13 weeks old. We figured out he has reflux @ 2 weeks. We have tried 4 different formuls (Currently Neocate) and he is taking Pepcid, Prevacid, Mylanta, Grip Water
and the reason that Zantac can make some babies worse it because the liquid form has a high alcohol content. You can ask the pharmacist to make a liquid out of the capsules and that reduces the ammount of alcohol in it
Check with your
doctor first!