Posted By Posting
Sep 20, 2010
dcd
Blueleopard (and others): Question about Milk Allergy Formula Stuff
I will post this on the kidswithfoodallergies board too, but -

Blueleopard, you said your son did ok on Nutramigen but really needed to be on the Neocate. Can you please tell me more about that? What do you mean by ok? How did you know he really needed elemental? What changes did you see on hypoallergenic, and then what further changes did you see on elemental?

To me, Kylie seems to be doing well on Alimentum RTF. The biggest change is in the way she eats. It's amazing that in a matter of one day she started sucking down entire bottles, 5-8 oz at a time, when before it would take her an hour and many, many breaks to take 4-6 oz. She doesn't cry with her bottles anymore, arch her back, do the repetitive arm twitching thing, or let the milk leak out of her mouth. But, she is still spitting up. We are light years away from where we started with that, but she definitely still spits up A LOT more than that average baby. Less at a time, but still very often. I also hear her refluxing and swallowing a lot.

In terms of sleep, she was doing much better, but then she started teething (or what we think is teething...first baby so it's all new to us...) on Friday. She's been so hard to get down at bedtime and has been waking up every few hours crying like she's in pain and batting at her ears.

So, it's hard for us to tell how she's really doing with her reflux/allergies at night since we have the teething thing going on.

Of course if she can tolerate the Alimentum RTF that's better for us than the Neocate. But the doctor's office did get us a bunch of Neocate samples and seems to think we should give it a try to see how she does on it. I'm reluctant to make ANOTHER change right now if she's doing ok. Especially since she's only been on the Alimentum for a week and I know getting her to drink the Neocate will be such a challenge. But if she will feel even better on the Neocate it's worth it...

How do I know if she needs it? Yes she is still spitting up a lot but maybe that's just because she still has a weak esophagal spinchter. We're sticking with the Prevacid for now so I'm hoping it's not acidic. And she was sleeping better, but only for a few days before the teething set in. I wonder if her stomach is also still bothering her at night?

How did you know that you really needed to make the switch from hypoallergenic formula to elemental?

Sep 20, 2010
dcd
BTW - no idea why that one part posted in bold! It's supposed to be a separate paragraph?
Sep 20, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Are you sure she doesnt have an ear infection?
Sep 21, 2010
dcd
That's actually the one thing I am sure of. I know she doesn't have an ear infection because we took her to the doctor last Wednesday so they could check her lungs (as recommended by the allergist). The pedi found a minor ear infection in her left ear. We didn't even know since she hadn't been acting any differently. So anyway she's been on antibiotics since last Wednesday. Pedi said the infection couldn't have spread or gotten worse.

Last night she didn't do the batting at her ear thing or act like she was teething, but she also didn't sleep great. Really not sure what's going on. Does the pain from teething come and go? How long does it take on average to cut a tooth? I felt her gums and couldn't find a hard spot so maybe it's not teething after all.

Our dog just moved away this morning, so I guess I need to give it some time to see if that helps her allergies/sleeping. Another thought is maybe the Zyrtec is contributing to her night waking? The allergist seemed to think the Zyrtec would make her drowsy and HELP her sleep, which is why we give it to her at night - but one of the listed side effects that came with the prescription is trouble sleeping. Anyone have kids on Zyrtec? Anyone have any sleep issues with Zyrtec?

She's still sucking down her bottles (knock on wood), so I'm just trying to figure out if the disturbed sleep is related to the formula (does she need to be on Neocate?), or her other allergies, or something else entirely.

Sep 21, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
you're trying everything and you need to give it all some time, but with my son he had allergies and severe reflux...the Elecare made things better (less sinus congestion, skin cleared up)..but it didn 't fix the puking...prevacid protected him, but the puking just went away with time and maturity. I'm NOT telling you not to try everything, i certainly did, but sometimes there's no answer...
Sep 21, 2010
kavyamom
Does she have a low grade fever? At least with Kavya whenever she is teething, she has a fever of about 99.1 to 99.5. Not sure if all children have a low grade fever though during teething. Also, she will drool more and her reflux always would get a lot worse during teething. We use Hylands teething tablets at bedtime that helps a little during teething (it has a trace amount of lactose though). When it is really bad we have used Tylenol.
Sep 21, 2010
dcd
Thanks, I guess I need to check her temperature. She doesn't feel warm to me so I didn't think of it.

Zack'smom - before the Elecare, did the allergies/reflux cause disturbed sleep in your son? If so, did this improve after the Elecare? If it did not improve after the Elecare, to what did you attribute the disturbed sleep? And were you able to help with that piece at all, or did it just take time?

Sep 21, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Fluid in the ears is different from an infection. She may not have an infection but the fluid would still bother her at night. This may not have anything to do with her issues right now.. just something to keep in mind.

Another thought is that she has had more sleepless nights than restful nights in her life time. It is going to take awhile for her to train her body to sleep well every night. Sleep is a habit driven skill. Give it time. Have a solid bedtime routine and stick to it. Even healthy normal babies with out reflux have sleeping issues that they have to be trained through.

Ryan is on Zyrtec. I give it at night as well. He does not have any sleeping issues.... but that is him and every child is different.

Teething is a long processes. They can work their way up and back down again. Some days are better than others. Its not fun for anyone. There is no time frame but subsequent teeth tend to come faster and easier than the early ones.

Trying to remember you are in a marathon, not a sprint race. I know you want to fix every issues right now and have the "Gerber baby" but slow and steady wins the race. Try really hard not to make a lot of changes or change things too quickly. Rule of thumb, one thing every 2 weeks. Focus on your successes and build on them with time. Try not to out think yourself.

Sep 21, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
the Elecare definitely helped the congestion which I think really helped him sleep...he has always beena pretty decent sleeper, but he would wake up several times a night (he wasn't really "awake") and cry out...then fall back asleep...elecare helped him be more rested I think...stop that constant nasal draining...
Check with your
doctor first!