Posted By Posting
Sep 14, 2010
dcd
Blueleopard and others - EE?
Can you please tell me about your experience with EE? I am a little overwhelmed by all the allergy stuff we just discovered with Kylie, and am reading there is a link between allergies and EE.

How common is this condition? I feel like if she had it she'd be a lot sicker, but maybe not? What were your child's symptoms?

Right now I am inclined to make the dietary and environmental changes and see where that gets us first, but maybe I should just go ahead and get the endoscopy done to rule out EE? What do you all think?

Sep 14, 2010
dcd
Also, the endo is the correct test for diagnosing EE right? Can you tell me a little bit about your experience with this test? Kylie will be 7 months next Saturday. She's very wiggly. How did your kid(s) respond to the sedative?
Sep 14, 2010
kavyamom
Kavya had the endoscopy a month ago. Yes, it is the correct test for diagnosing EE (make sure they do biopsies). However, we so much suspected that Kavya had EE but the biopsies were all normal.

I am pasting this from one of my earlier posts (you may have already read it): The endo was actually a very quick test. The hardest part was the recovery from anesthesia for Kavya but I know a lot of babies don't have this issue. She was crying and screaming for 4 to 5 hours after the procedure with a lot of gas and discomfort (I think it was the dye in the Versed and maybe some other anesthesia ingredients that didn't suit her). Anyway, but she was completely back to normal the next day and nobody would ever know she had a scope down her throat and general anesth. the previous day. I think it was a worthwhile test since we found out she doesn't have ulcers and her stomach lining is fine. I am still not sure about the accuracy of the EE and allergy diagnosis from this test though.

Sep 14, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Jedd's scope was quite possibly the easiest test we had done on him...I hate saying on him....sigh.

Quick easy painless. He was about 7 months old and was around 1 month post op heart surgery so some things we had to do, others won't have to do. We basically, checked into surgery, did vitals and such. They spent extra time with us and made sure to have a very experiences anesthesiologist do the sedation.

He had an I.V. placed because he needed ABX due to his new patch on his heart. We also had to stay in the PACU for much much longer until we were allowed home. They kept a really close eye on him while we were there.

In our hospital, we are not allowed to go back when the children are sedated......we "kiss and go" as they call it.

If you think anxiety will be an issue you can ask for a dose of Versed. It will make them pretty willing to do anything...LOL Jedd acted pretty "drunk" while on it for his last O.R. trip. He really needed it by then. Just checking vitals was a chore, he was screaming, yelling, kicking....everything to get them away from him and we hadn't even gone to the hall to send him away.

Versed was THE BEST decision on his last trip.

The whole procedure took around 15 mins. Jedd is always screaming in the PACU......every.single.time. They just knew to come and get me ASAP. I could calm him down pretty fast which is in the nurses best interest.

Sep 15, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
My son has had numerous scopes. His first one (around 10 mths. of age was negative for EE). He either wasn't eating all the trigger foods or it hadn't fully manifested itself yet. There is also a link between flairs to the environment, as well as trigger foods causing EE. Some symptoms - fussy, swallowing issues, "reflux", choking on food/drink or even out of the blue, bellyaches, vomiting, nausea, throat pain. Eric was dx'd around age 2. He consistantly lost more and more foods. He is currently drinking Neocate Jr. plus can have apples and sweet potatoes. Some kids only have to restrict one or a handful of kids. Yes, the only test for EE is an endoscope with biopsies. Hope this helps. El
Sep 15, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Opps, at the end I meant a handful of foods!!!
Check with your
doctor first!