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Sep 09, 2010
svantell
just GERD or underlying milk allergy?
Hi, all. Im new to the forum, and looked already for a thread on this subject and came up empty. My 7 week old was recently diagnosed with GERD and put on .8 mg of zantac twice a day (he's 11 lbs). He has so many symptoms, the doctor saids its quite severe. The major problem we're having is his struggle to eat. He loves the idea of eating, he tries all the time, but about halfway through the bottle he groans and kicks his legs and spits. Even after we've stopped and gotten an explosive burp out. He does the classic arching of the back, he spits up on his back, he often has a hoarse voice, and he wakes up out of nowhere to let out a cry of pain then falls back asleep. My question though is, could he have an underlying milk allergy? His brother was allergic to cows milk when he turned 1. He always has mucousy diarrhea and vomits out his nose occasionally. We tried soy formula and he had pure water coming out of his bottom, poor baby. Any advice is appreciated. Thank in advance!
Sep 09, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you tested your theory by trying Nutramagin or Alimentum?
Sep 09, 2010
svantell
No, I haven't yet. It seems like we've tried so many different formulas lately....I was going to wait a little bit and let his tummy settle down then I'll probably try the Alimentum. In a way, I hope that's not the solution because that stuff is so expensive!!
Sep 10, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Sounds like you are dealing with a MSPI allergy and reflux. The MSPI could be the cause of the reflux. I would call your ped to see if they have samples of Nutramgin. Give that 2 weeks and see what that does for him. The sooner you get him on it the better as you will have less chance of him refusing it due to the taste. Just my opinion though.
Sep 10, 2010
dcd
Totally agree. The sooner the better. My daughter has reflux complicated by milk protein allergy. We didn't put all the pieces together till she was 6 months old and it took two weeks for her to get used to the Nutramigen. She'll be 7 months next Saturday and she still doesn't really like it but will drink it grudgingly.
Sep 10, 2010
svantell
Thanks for the advice. What do you think about Nestle Good Start Gentle formula? It has only the whey protein (already broken down a bit) and no casein. I wonder if this would work. I've heard that Nutramagin and Alimentum smell horrible and taste awful.
Sep 11, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Yes they both taste horrid. The younger you start them the better for them to take it orally. I know someone from the school I taught at whose daughter took Alimentum for 2 full years orally without batting an eye lash!!!! EEWWWW!!!!!!
Sep 11, 2010
dcd
You could try the good start for 2 wks and if you don't see improvement move on to nutramigen or alimentum. But the good start will only work if your son is having problems with only the casein part of the milk protein. I think most babies with mspi have trouble with both the casein and the whey. We tried good start and it didn't work for us. I would say give it a shot if you want to make sure, but probably do so soon b/c if he does need the nutramigen/alimentum the longer you wait to give it to him the harder it will be for him to adjust to the taste.
Sep 13, 2010
svantell
Thanks, ladies. I put him on Alimentum yesterday afternoon, he slept in 4 hour increments last night rather then 2.5! I suppose that's a sign that he's doing well on it, but now he has diarrhea again (his poop had firmed up a little once we put him on the zantaz) and he's super gassy. I wonder if it's just because of the formula change? But the formula change is to a hypoallergenic, so.....I don't get it!! Btw, this stuff smells like garbage! I wonder if Nutramigen smells bettter...
Sep 13, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Nutramagin doesn't smell any better...LOL

As far as Alimentum, green soft to runnish poos are normal for that formula. It wouldn't bother me. Jedd's were always like that and I've heard many Moms say the same thing about that particular formula.

Sep 13, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
If he still struggles, at least try a formula like Neocate for a while. I know you've tried a lot of formulas, but my son couldn't handle milk or soy or even really broken down versions. He is very allergic. Neocate was the one. El
Sep 13, 2010
svantell
so is there any scientific way to find out if he's allergic, or is it just a guessing game?
Sep 14, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Not sure if they would do this to a baby as young as yours, but the most accurate test for a true food allergy is the scratch test. They literally scratch/prick a tiny area (on the back or arm usually) and put a small amt. of the offender there, wait 10 minutes & check to see if the area grew to look like a mosiquito bite. If so, they would be positively allergic. Blood tests (RAST) are also done, but not as accurate. Finally, keep in mind, that a child can have some really serious issues with a particular food but test negative to it. This would mean that it is not an IgE (immediate) allergy, but more of a delayed reaction. I have an 11 yr. old daughter who tests negative to dairy, but CANNOT handle more than small amts. baked in without stomachaches, nausea/vomiting. All in all, it is very important to make sure they are not IgE allergic to a food, because you wouldn't want to continue giving it to them in any form. My son got a little better on Nutramagin, but he really needed Neocate because he couldn't handle any dairy/soy. Ask an allergist's office about the scratch test. Is your other son still allergic to dairy? Good Luck, El
Sep 14, 2010
svantell
Im not sure; I haven't tried giving him milk lately. He can eat ice cream and yogurt ok, so maybe not. We're headed to the pedi's today, so hopefully baby will be feeling better soon!
Sep 14, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Please read DCD's most recent post "Finally Some Answers"
Sep 16, 2010
svantell
Hi, ladies. Thanks for all the great advice! (And thanks Vigilantmom for the recommendation on DCD's post!). Things are going alot better for my son. We visited the pedi yesterday and it turns out baby not only has GERD and MSPI, but also is teething!! Poor thing. His doctor switched us to alimentum rtf and it has made a TREMENDOUS difference. Baby actually likes to drink bottle now, yay! Still have some issues with crying out of nowhere and being super fussy, but such an improvement from where we were a few days ago. He only has a couple bowel movements a day as compared to before where he pooped diarrhea almost every time he ate. The pedi also doubled baby's zantac dose, though I'm not sure it's doing any good. He is also sending us to a stomach specialist. I asked if he'd send us to an allergist, but he said that allergy test are too unpredictable at this age. Ok, whatever you say, buddy. I'm so glad I found you guys and this website! I impress myself at how much I've learned about GERD and MSPI :) Never hurts to be an informed mom...thanks again!
Sep 16, 2010
dcd
I'm glad your baby is doing better! Based on the fact that he's doing well on the Alimentum RTF, I would guess he has a milk protein allergy and a corn allergy (like my daughter). Alimentum RTF is the only formula that doesn't have corn in it.
Sep 17, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I am so glad the formulas switch is working. It will take a couple of weeks to get all the milk protein out of his body. That is when, hopefully, you will see the gas and fussyness go away. And as an added bonus, the reflux may go away too!!! I have my fingers crossed for you! Keep in touch!
Sep 24, 2010
svantell
Hello again, all! I keep referencing back to this website...I'm so glad I found you all! We took baby to the pedi gi and she thought maybe he would do even better on Elecare rather than the Alimentum because he's been spitting up still. I gave him one bottle of it yesterday and he hated it. Only drank half the bottle and was scrunching his legs up and sputtering and choking. It was like the old days all over again! So I said forget it. I'll try again tomorrow. Well, he reacted the same way! Plus, now he's super cranky again and eating every 2 hours (do babies eat more when their stomach's hurt? You know, as a way to soothe?). So, I think he's allergic to corn, also. Thank you DCD for opening my eyes to that possibility! Back to Alimentum it is!
Sep 24, 2010
dcd
I think if the Alimentum is suiting him don't mess with a good thing. But keep in mind (my doctor had to remind me of this too) - the corn in the Elecare shouldn't be bothering him. Elecare is completely elemental (broken down), so the corn, just like the milk, should not be causing a reaction.

I am just glad to hear your little one is much improved! Enjoy!

Check with your
doctor first!