Posted By Posting
Sep 09, 2010
dcd
Barrier Meds?
I'm just wondering why no one has ever recommended K try barrier meds:

"Barriers - One barrier medication coats the walls of the esophagus and prevents acid from touching the sensitive tissue. The other type forms a foam that floats on top of the stomach and prevents acid from splashing into the esophagus. These medicines pass through the body without being absorbed."

Are these contraindicated in pediatric patients or something?

Sep 09, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
We used Carafate for a bit...I guess that would count as one of those drugs. the hard part was getting Jedd to take it orally since he was 100% tube fed at the time. We have mixed results because of that. I've heard it works well though.
Sep 10, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
well, it is a good option if the child has severe GERD. Meds like these will most likely be Rxed if there are bleeding ulcers or moderate to severe damage in the esophagus or upper small intestine. there are even instances where carafate is used when there are bacterial infections.

Carafate is a very difficult medication to give! The timing the medication for young children especially young children on lots of different medications- it is hard to make sure it and the other medications taken will work properly. these drugs not only coat the problem areas but will not allow absorption of other meds either. You also have to time it around meals too.

Emily was on carafate on and off for about 8 or more months. It worked well for her but she was at one point on 9 different medications! I will not lie, it was one medication i was glad helped her so much but i think i danced a little when i could cross it off the list.

I will tell you this though, you can ask your pedi or GI about this medication but in our experience (as well as reading experiences of others) Carafate is really a med a that if your GI even suspects bleeding will offer it. It's not usually something a patient or patient caretaker will have to ask about.

I don't want you to think at all that i am down playing your situation but i was giving you a reason as to why it might not have been brought up by us or your dr. Active bleeding and severe pain are big factors in the Rx of the med. Also it is more likely to be Rxed if a child has had an Upper Endoscopy that has reveled ulcers or damage.

some otc alternatives to carafate are antacid barriers that include medications like gaviscon, mylanta, and maloxx. If you haven't tried those first I definitely ask about those. If you already use something like this then it might be carafate time. but as always ask your dr and your pharmacist to help you time out the meds if you do get dd on carafate!
Sep 13, 2010
dcd
Emibug - not at all. And thank you all for the information. This makes more sense now. We haven't had any testing done yet but have an upper GI scheduled for next week. I don't think the doctor suspects bleeding (and neither do I, really), but then he's only seen her once. Something is going on when she eats...she can only get down a few swallows at a time before she needs a break. And her sleep is very disturbed. I wonder if she could have an ulcer in her esophagus that is causing her pain with her bottles? It seems like something is hurting her when she eats, but the 30 mg Prevacid/Buffer Babies is not helping. I'm not sure what the UGI is going to tell us. I know it can identify abnormalities like whole and misformed organs, but what about things like ulcers or bleeding?
Sep 13, 2010
dcd
I meant, "like *holes* and misformed organs"
Sep 13, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh yes, Upper GIs show ulcers too (i am not sure if they can show bleeding ones usually a Upper Endoscopy is ordered if they see anything on the UGI) and can some times even show the cause of a problem with swallowing. A more advanced test for swallowing disorders is called a Barium Swallow Study, this is usually done with a speech therapist and a radiologist present together.

do you think she may have difficulties swallowing as well as pain from reflux?? often times if a child has some difficulties swallowing or sucking or any combo of that reflux is also present too.

I would ask to the GI about the possibility of her having a problem causing swallowing/ feeding/ sucking- just to be on the safe side. Also ask him what to look for and symptoms that might show up, and tell him what she does. You can always call the Dr or the nurses and ask too.
Check with your
doctor first!