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Sep 08, 2010
kavyamom
DCD - Buffer Babies question
Dcd, Since you recently ordered the BB, I wanted to ask you a couple of things. I haven't heard back from David. I have sent him an email and left him a voice msg as well. Last week Dr. Phillips was very responsive when I was asking some questions but this week when I am ready to order, I haven't heard from David at all. I am thinking I will just fill the form and send it over to them? Did you just email it to David or did you have to snail mail it to the postal address that they have at the bottom of the form? How did you pay for it - do you have to include a check with the form? What does the intro kit include - do you get a funnel or syringe...did you order anything separately? Thanks. Anyway, hope David gets back to me soon.
Sep 08, 2010
kavyamom
Actually I called David again and this time I was able to get a hold of him and he gave me all the info. So, now I just have to wait for the BB to arrive.
Sep 08, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Side note... You can order directly from their retail site which is www.refluxsolutions.com. It will save you from having to reach him in person next time.
Sep 08, 2010
kavyamom
Yeah, I was aware of refluxsolutions.com but since it was the first time I wanted to make sure of some things before I ordered and hence needed to get in touch with David. He was pretty nice and Dr. Phillips has also been very responsive to all my emails. Now, I just wish BB will work for Kavya :-)
Sep 08, 2010
dcd
I've never talked to Dr. Phillips but I've spoken with David 3 times. Each time I've had to leave a message, but he's always returned my call, even though sometimes it takes a couple days for him to get back to me.

I didn't know you could order directly through the website or even over the phone/email? David told me I had to mail in the order form b/c they're not set up to take CC payments?

I really hope it works for Kavya! It hasn't helped Kylie (at least not with Prevacid), so I think I may stop giving it to her. But lots of parents have had luck with it.

Sep 08, 2010
kavyamom
Yes, they don't take CC payments. So, I also had to mail the order form and a check. I also emailed David the form so he can keep everything ready and as soon as he gets my check he will send the BB. The website just has the order form. I wish they took CC payments. It would be so much quicker.
Sep 08, 2010
dcd
Yeah I guess we are going to keep Kylie on the prevacid/bb for another week. We haven't been very consistent w/giving her the full high dose (27mg)...usually I just give her 18mg. I was doing this b/c I'm still kind of skittish about that high dose and I tried it a few times and didn't notice a difference from the 18mg. But I know I probably have not given it a fair shot. So for the next 1-1.5 wks I'm going to do the 27mg every day. We are also getting allergy testing at the hospital and the cranio therapy at the chiropractor during this time. At the end of the 1.5 wks if there's no improvent I think we're going to go ahead and get some GI testing done. I don't want to, but I think we're almost at that point. And in that case, I feel like we may as well get the probe done vs. the upper GI. It seems the upper GI is pretty limited in what it can tell us, and I don't want to put her through any more tests than I have to.

please keep us posted on how your k takes to the bb. I am crossing my fingers for you.

Sep 09, 2010
dcd
Kavyamom,

I saw a while back you were asking for info on the upper GI and endoscopy tests. Did Kavya ever have these done? Can you share your experience?

B/c if we don't see improvement in the next couple weeks I think we're going to do an UGI. I asked the GI why not just start with the Probe, since it gives more info about reflux? But they said the Probe does not show any abnormalities like tumors (God forbid), ulcers, etc. So the first step is to do the UGI to rule those things out.

But, they also said the barium swallow is mixed with 6-8 oz of formula. There is no way I can get her to drink 6 oz of formula, in one sitting, in a relatively short amount of time. She will technically drink a 4-6 oz bottle, but during the day we give each one spaced over an hour...i.e. she will drink drink drink, then take a break, play, drink drink drink, play, etc. She refuses to just take the bottle all at once.

At night, before bed, I give her a bottle. She's half asleep at this time so it goes faster, but it's still miserable. She will drink about a half-ounce to an ounce and then get really fussy. She'll drink a few sips, then cry and bat away the bottle. I give her her paci, cuddle her, and calm her (which only takes a second). Then I take out her paci, she drinks a couple sips...repeat. Getting the bedtime bottle in her takes about 15-30 minutes.

The middle of the night bottle has recently become difficult as well. She doesn't scream as much because she's very sleepy, but she'll drink a bit, then refuse and snuggle into me...repeat.

I told the GI she does well with her solid foods (cereal, purees) - but they would need her to eat A LOT of cereal mixed with barium, I think. And the feeding doesn't go super fast. The GI nurse is checking on options for us. I know one option is administering the barium through a tube down her throat. I know this probably really isn't that big of a deal, but I almost cry at the thought of this.

I know Kavya is very sensitive and fussy with her bottles too. Just wondering if you can shed any light on how y'all did this.

Sep 09, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I had the same issue with Ryan along with the added kink that he would not eat anything unless he was in a dark room and no one was around. So getting him to drink while pinned down to a table, strange people and strange machines was not happening. They ended up having to give me a giant syringe and I squirted it in as he was screaming bloody murder. He had to swallow or he would choke. My mom and husband walked out of the room.... and my mom is a hard core old time nurse. It sucked, but it had to be done. You do what you have to do to get answers. I only got 3 oz in him and we all called it quits because he started spitting it at us. Now that said, some babies are so starving by the time the swallow test comes they are willing to eat. My son however could have cared less if he starved to death. In retrospect I should have asked about having them place a tempory NG tube and ran the barium down that way. No idea if they can do the test that way but if so, it would be real helpful. OK, now that I have scared you to death.. which was not my intent.. I just want you to prepare yourself that you may have to be tough on this one. As moms we dont always get the fun jobs, but it is on us to do the right job.
Sep 09, 2010
kavyamom
Dcd, Kavya had the endoscopy. We opted to do that instead of the upper GI for various reasons. Kavya has extreme stranger anxiety (and by that I mean not just the typical anxiety that most babies feel). Even our GI said that the endo would be a less traumatic test for her given her personality. Also, there is no way she would drink anything in a strange room with strange people especially on a table. So, if we wanted to do the upper gi, it would have to be the ng tube and I just didn't want her to go through that and make Kavya even more scared of strangers and doctors than she already is. Also, most foods were not suiting her and the GI suspected EE, and so the endoscopy was a test that we wanted to do anyway. So, we just went ahead with the endo.

The endo was actually a very quick test. The hardest part was the recovery from anesthesia for Kavya but I know a lot of babies don't have this issue. She was crying and screaming for 4 to 5 hours after the procedure with a lot of gas and discomfort (I think it was the dye in the Versed and maybe some other anesthesia ingredients that didn't suit her). Anyway, but she was completely back to normal the next day and nobody would ever know she had a scope down her throat and general anesth. the previous day. Since Kylie goes to daycare I think she won't be too uncomfortable with the room or strangers and if you can somehow get her to drink the barium, the upper gi should be a fairly easy test. The tech told me that I would have to put Kavya on the table and then give her the drink. I know some others said they were allowed to give the drink and then put on the table. Anyway, you can call the facility where they will be doing the test and ask for details so you can be mentally prepared. Yeah, I also read that the upper gi doesn't give that much info and since my GI agreed to the endoscopy we just went ahead with that.

Check with your
doctor first!