Posted By Posting
Sep 07, 2010
mayamom
NEWBIE
Hi, I am new to this forum and have a 20 month DD with GERD. She wakes up every hour or hour and a half and most medications do not help. I also noticed that she is a very busy baby and did stuff earlier than other babies in general like crawling before 6 months and trying to talk before 12mo. Has anyone else noticed this connection? Please feel free to share- we are not bragging- just sharing info. I truly want to connect as many dots as possile.
Sep 07, 2010
dcd
Yep.

My daughter has been very alert since the day she was born. I remember as a newborn she'd often stay happily awake, just looking around the room, for 4-5 hours at a time. People always comment on her "bright eyes" and how interested she is in everything around her.

She rolled over at 3 months - first from belly to back. But by the end of that same week, she'd also figured out how to go back to belly.

She is 6 1/2 months now. She started "scooting" sometime around 5 months and crawling the day before she turned 6 months. The week she started crawling, she also started trying to pull up on everything, us, the couch, etc. Yesterday she woke up from a nap and when I went in to get her she'd pulled herself up using the sides of her crib. She was clutching onto the railing with her face resting over it. (Mattress has since been lowered to the lowest level!!)

She is also a good solid foods eater. When we tried cereal around 4 months she ate the entire bowl in one sitting the first time - like she'd been waiting to eat for months.

She definitely has reflux, and definitely has an MSPI. But Prevacid - even with Buffer Babies - has pretty much done nothing. Which makes me so confused about the reflux - why isn't the medicine helping? What am I missing? She's improved somewhat on the Nutramigen formula (a little less spit up; less nighttime cough/congestion), but she still fusses with her feedings and wakes up ALL. NIGHT. LONG.

We don't know to what degree the reflux and allergy are affecting her at this point, what is causing the continued night waking, what other factors might be in play.

We're giving craniosacral therapy a shot - first appointment is today. And she has an appointment for allergy testing on Friday.

Sep 07, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
my son had (and still does to some degree) very severe reflux. He vomited buckets many times a day...his skin and hair always looked terrible, BUT he talked earlier and was very coordinated from early on...his vocabulary still impresses people...and his clarity...he cannot eat well, but he can do everything else!
Sep 07, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Jedd started out pretty delayed but we are sure that was contributed to by his heart defect. His body just barely had the energy to breath let alone eat and learn motor and speech skills. He ended up very delayed and qualified for E.I services for ST and OT. The only reason he didn't need PT was because I would come home from work and work on his muscles non stop almost. That developed his muscles enough that he was OK in that area. He did walk late though but that's attributed to his heart.

Now that he is 3.5 (4 in Oct) he is advanced in speech and his hand eye coordination. You would never know that he started out so far behind. It's amazing. He is the head of his 3 year old preschool class!!!

I do firmly believe though, that with all that our children go through, they are and become much more wise for their years.

We were told that Jedd was probably going to have a high IQ because of the fact that he stopped eating orally REALLY fast. He put two and two together by around 16 weeks of age and completely refused to eat anything orally. I mean, kicking the bottle, flailing his hands all everything.

That coupled with the fact that he had many night terrors at 6 months old post open heart surgery....means a probably high IQ.

He could also figure out how to escape the house by the time he was about 18 months old. He could unlock the inside door and the outside front door and get on the front lawn faster than you could blink. He could do the same with the back door. He could also at that age figure out how to get ON top of the counters.....he's been exciting to say the least.

Lucky us!!! LOL I taught Kids with high IQ and I know they trouble they can cause!!!! LOL It will be fun for sure!!! heeheehee

Sep 07, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
OH and we were also told that he was the toughest case in our city when it came to oral aversion issues. He tried every.single.trick in the book. From pretending to sleep in the high chair during therapy (he would pop up awake when we said, OK all done so we knew he was faking) to playing with the straps, to refusing any type of bottle except the one WE had to squeeze!!!

he was a character for sure for them!!!

Sep 07, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Hmmm, this is interesting....

Lorenzo was also a bright eyed baby from the day he was born, awake more than he slept, rolled over at 3 months, butt scooted at 5 months, started trying to walk at 6 months and walked alone at 8 months (didn't crawl until after walking), started trying to write his name at about 22 months and at 3.5 is now amazing people with his vocabulary and grasp of concepts and is beginning to read and really write.

I have actually often wondered about the relationship between intelligence and sensitivity, and the way kids react to having reflux -- like Jedd making that connection so quickly between eating an pain, and for Lorenzo it was sleep -- he flat out refused to sleep very early on, I believe because he so often choked, had apnea episodes and was probably in pain back then. I also wonder about the attention we necessarily give to them, the close observation we have to undertake to keep them well and manage their reflux -- it seems likely that that plays a role in cognitive development too.

As for sleep and the intelligent baby, I hate to break it to you, but it is EXTREMELY common for bright and curious babies to have a terrible time sleeping, even if they have no health issues. I try to think of it from their perspective -- if I had just become aware that it was possible to flap my arms and fly, you can bet that I would be doing everything I could manage to try to work out how to do it, and sleep would certainly not be high on my agenda.....I imagine that's how it is for these LO's. They know that there is so much to learn and so much to do, and sleep just doesn't seem to be conducive to getting all of that done! On the bright side, however, they don't need us at night forever...

You might also be interested in exploring the signs of Sensory Processing Disorder, which is common among children who experienced a lot of physical pain/discomfort in the early days/weeks/months of life. It is very common for kids with SPD to be incredibly bright in some areas, and to be incredibly sensitive to stimulation (which can mean no sleep, and also a lot of distress from reflux even when there is no pain from acid). I consider it a worthwhile thing to understand for the simple reason that everyone has challenges processing some stimulation from time to time, even if it doesn't have a huge impact on their lives (as it does for children with SPD), so the information is applicable and potentially helpful to every parent. Just another possible dot that might connect to others...

Sep 07, 2010
mayamom
WOW! This is so great. To have so many people reiterate the same thing. With our kids and all their porblems, especially the sleeping issue it is easy to overlook the bright side ( too sleep deprived for it as one mom put it). But I think there is a correlation between extreme sensory sensitiveness and giftedness.
Check with your
doctor first!